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Thyroid Cancer, Surgery, and EDS Diagnosis

Aug 03, 2017 2:14 PM

So I found out a week ago that I have thyroid cancer. I have been very stressed about it because it means I will be going through my first surgery. Not only that, but I am supposed to go see a geneticist in September to be assessed for Ehlers Danlos Syndrome, a connective tissue disorder. Not having the full diagnosis yet is scaring me because once they stitch me up after the surgery connective tissue could build up and stretch out the scar. I am not the type of person who worries about there looks and I am fine with having a scar because that's just how it is when you go through surgery, but for it to stretch and be on my neck I am a bit nervous. I am unsure if I should contact the geneticist and aware them of the upcoming surgery, or if it wouldn't matter to them since they haven't seen me as a patient yet. I am not looking forward to the added pain either.

Aug 03, 2017 2:55 PM

I'm sorry you have thyroid cancer and have to have surgery. I'll be thinking of you and hope everything goes smoothly. Good luck with the EDS diagnosis.

Aug 03, 2017 4:06 PM

I'm so sorry about your thyroid diagnosis. If it were me I would cal the doctors office and just ask them. It can't hurt by asking.

Aug 03, 2017 4:36 PM

I am sorry you have thyroid cancer and need surgery. My thoughts and prayers are with you. I would call the geneticist anyways or just talk to your doc about it.

Wish you the best of luck. Remember we are all here for you. ((Gentle hugs)) plz keep us up to date πŸ€—πŸ€—πŸ€—πŸ€—

Aug 03, 2017 6:13 PM

I'm so sorry your going through this I will be thinking of you and I hope your surgery goes wellπŸ’•

Aug 03, 2017 9:21 PM

I'm waiting to find out if I need my thyroid taken out too. My mom had hers out a couple years ago and while the scar is big , over time it's become almost invisible. After it healed she used Mederma on it religiously and I swear it's why she looks so good today. Good luck with your surgery. Try not to stress and think of it as a positive step towards better health. ☺️

Aug 03, 2017 9:29 PM

@ Goobette38. Sending prayers your way as well. I hope you get good news . Keep us updated . Pm if you need to talk . ((Gentle hugs)) πŸ€—πŸ€—πŸ€—πŸ€—

Aug 03, 2017 11:27 PM

Definitely talk with your doctor that is doing the surgery! They can do double stitches and take other measures as our skin tends to heal differently.Including but not limited to leaving the stitches in longer and using more stitches. If you do have EDS your body may not process anesthesia correctly. So they need to know to watch for signs of early or late waking. My Dad is the one I know I inherited EDS from and he has had many surgeries and never had a bit of problems, but I never know from one procedure to the next how my body is going to respond.

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