Okay so I'm just sitting hear quietly and have noticed a really GOOD side effect of getting rid of the extra spinal fluid. I can finally touch my eyelids without wincing and the constant ringing in my ears has all but stopped(right ear is quiet, left ear still there but less noticeable). I'll take that!!!!!! Actually it really stopped after they log rolled me off the radiology table on Monday, but I thought it was just a fluke. It's NOT!!!!!! Monday was totally worth it......
Ann, did you have an adjustment period after your tap? I think I'm just getting acclimated to less pressure right now. Feeling like randomly being unsteady on my feet and like I just need to sit down like right then. It's a little unnerving for me.
I believe I was a bit off kilter for almost a week. I was in the hospital for four days after the first tap. Then I stayed home for another week before going back to school, to work on getting my strength back from being bed bound for so long. I was bed bound for over a month before I was diagnosed. It took me a while to bounce back from it.
Amanda, I am happy that has stopped. I have heard that can cause people to go mad after a while. So people have used white noise to deal with it. But I don't understand how that would elliviate the need for quite. I am just glad it nearly gone. Best wishes.
Profiler, when it first started, I was about to go mad with it. At this point, just waiting for the report to come back to the neurologist from the radiologist. It's a game of wait and see right now, whether they are going to go more conservative with it(meds) or if they are going to recommend shunt placement at this point. Not going to stress or think about that until we get to that point.