Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Tinnitus has stopped!!!!! Yippee!!!

Mar 30, 2016 12:27 PM

Okay so I'm just sitting hear quietly and have noticed a really GOOD side effect of getting rid of the extra spinal fluid. I can finally touch my eyelids without wincing and the constant ringing in my ears has all but stopped(right ear is quiet, left ear still there but less noticeable). I'll take that!!!!!! Actually it really stopped after they log rolled me off the radiology table on Monday, but I thought it was just a fluke. It's NOT!!!!!! Monday was totally worth it......

Mar 30, 2016 2:29 PM

Yeah! That's awesome!

Mar 30, 2016 2:35 PM

Ann, did you have an adjustment period after your tap? I think I'm just getting acclimated to less pressure right now. Feeling like randomly being unsteady on my feet and like I just need to sit down like right then. It's a little unnerving for me.

Mar 30, 2016 2:43 PM

I believe I was a bit off kilter for almost a week. I was in the hospital for four days after the first tap. Then I stayed home for another week before going back to school, to work on getting my strength back from being bed bound for so long. I was bed bound for over a month before I was diagnosed. It took me a while to bounce back from it.

Mar 30, 2016 3:32 PM

Amanda, I am happy that has stopped. I have heard that can cause people to go mad after a while. So people have used white noise to deal with it. But I don't understand how that would elliviate the need for quite. I am just glad it nearly gone. Best wishes.

Mar 30, 2016 3:58 PM

Profiler, when it first started, I was about to go mad with it. At this point, just waiting for the report to come back to the neurologist from the radiologist. It's a game of wait and see right now, whether they are going to go more conservative with it(meds) or if they are going to recommend shunt placement at this point. Not going to stress or think about that until we get to that point.

Mar 30, 2016 4:24 PM

Did you have pain with the ringing and was there any pressure? I know that sounds like sinus but it seems to come and go when my sinus seems fine...

Mar 30, 2016 4:32 PM

7, no pain with the ringing or any pressure. Mine is actually caused by pseudotumor cerebri.

Mar 30, 2016 4:57 PM

Thanks, wow I learn something or 10 every day here. Do you have other sounds with ringing? Going to look up that tumor so I understand yours better.

Mar 30, 2016 5:50 PM

7, it's not actually a tumor. It's a condition where the pressure inside the brain increases for no obvious reason. Pseudo means false, so pseudotumor cerebri means false brain tumor.

Ready to start relieving your pain?

Join Community