Is any one else constantly tired? It doesn't matter if I sleep all night or not I am always tired. I got a full nights sleep last night and took a 5.5 hour nap today. I feel like I am always sleeping. I did a sleep study recently and it did come back with sleep apnea but only on my back. I do not sleep on my back because of my spine issues. It causes me a great deal of pain and to loose function of my legs until I am able to get the nerves unpinched when I sleep on my back. I don't believe the sleep apnea is the cause. I just don't want to sleep my entire life away.
I do have fibromyalgia as well booboo. I make it in to rem sleep by the early morning but of course then am getting up. That may be what it is. I tell the drs I'm so tired all the time and they say it's the nature of my conditions. My body is fighting hard all day to battle the pain. I also am being tested for Wolf Parkinson White and Pots. I have tachycardia events all day long. My heart could be a major cause of the fatigue.
I just wish there was some way to battle it. Caffine makes the heart race and pain conditions worse so I am supposed to stay away from that. I have good sleep habits so there is nothing to adjust there. I do pool exercise 3 days a week so exercise isnt the issue.
Apparently I just get to sleep my life away. So just call me sleeping beauty.
That is my motto - 'I'm sick and tired of being sick and tired'. The fatigue is probably the worst thing about the condition for me - I can deal with pain to a certain extent I think I am used to having pain if that makes sense - but being constantly tired all the time really depresses me. I have 3 kids and I just want to be able to do all the things I used to do with them. I get confused at work and I hate that. I've always loved my job and now I'm struggling to keep up with it. I wish non of us had to deal with it. Take care. Hayley 🌈
It makes total sense Kew2012. The pain is bad and there are days that it is unbearable but after a while functioning in pain becomes the norm. The fatigue is the worst part for me as well. I want to be awake enough to see my kids grow. I guesse I'm lucky if that's what you want to call it that my youngest is 16 now. The kids are a great deal of help, they clean, they run errands, and they drive me when I can't but I'm begining to feel like a burden to my family.
Ckingman your children sound like a wonderful testament to you as a mother and person. But I understand exactly what you mean, it's my youngest daughter's birthday today and as much as I have enjoyed being with her and seeing her smile I'm soooo tired which makes me feel guilty. I hope they make a pill/drink/magic cure for it! I think functioning through pain is totally how I feel too. Hope you're doing okay 🌈
I get this too and I have fibromyalgia. I think it’s a combination on emotional exhaustion from dealing with the overwhelmingness of the constant pain and non restorative sleep. For me I found having a therapist I could unload on really helped with the emotional burnout that was happening but the physical side I just had to suffer through. Taking care of one side of things really helps even if you can’t tackle everything that’s contributing to the problem
I have been contemplating seeing a therapist. These days a therapist is about the only medical professional I don't see. When I tell my husband "I have an appointment today" his response is "which ologist are you seeing today" lol.
I wanted to find a support group but it seems they are pretty limited in my area. Then while looking for an app to log my symptoms and vitals I came across this app and you lovely people. I'm so greatful to have people to connect with who understand what it is like to live in a broken body.
If anyone happens to come across a store that gives refunds for broke down, damaged, and defective bodies please let me know.
I honestly reached a point where i had to stop working. My husband is amazing. It was rough for a bit but he managed to find a job that made up for my income loss and we are piecing things back together slowly. I need to apply for disability but don't even know where to start. Plus that is the final admittance that the health issues have taken over my life.
Not a whole lot of change here. I'm still connected to a heart monitor 24/7. Still tired. I actually just woke up and it is almost noon here. I slept from midnight to 7 a.m. drove my son to school and then was back to sleep by 9. My pain levels have improved a little with the warming weather but not dramatically. I just exist each day.
I will see my specialist the 9th. We are now looking into the possibility my issues being MS. I see the sleep Dr on the 12th to try and figure out an option to help improve my sleep. My dermatologist put me on a new med for my HS and it seems to be working.
Really though I'm tired of it all. I do not want anymore diagnoses. I want to be healthy even if it was just for a day.
I'll be sending you love and positivity for the 9th, I hope it's not MS.
It's so hard to see any positives when you're dealing with so many things but I'm a firm believer there has to be that pot of gold at the end of the rainbow - for us that would be a healthy happy day! Things people take for granted.
Keep me posted on everything and I'm always here if you need to talk or vent.