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Jun 26, 2015 10:17 AM

I have this and Iam still trying to figure out to deal with all the pain I go through on a daily day. You have dr tell you what Meds to be on but nothing really works to good if they do only for a short period of time so any other ideas what to look into thanks

Jun 26, 2015 10:33 AM

HABSprice16, I have TMJ, degenerating TM joints and jaw bones, trigeminal neuralgia, tinnitus with hearing loss, and migraines (head symptoms). My orthodontist made me a splint to wear 24\7 and its helped the TMJ a lot. Yesterday I had to remove it due to the migraine and related jaw/teeth pain that developed.

I use gum numbing gel and I heat a shoulder pack then wrap it under my jaws and over my head, including the ears... It's very good feeling and helps all the symptoms. Good luck finding what works for you. I'll be praying for you! 🙏🌼

Jun 26, 2015 10:39 AM

Almost every med I've had prescribed hadn't helped pain for more than a day, several made the pain much worse, caused swelling or allergic reaction.
I have crps too, just some suggestions if they're available...
Lemon balm - treats nerve pain, sold as a tea but can grow wild, I have several bushes in my backyard so I eat it like lettuce
low dose Naltrexone (LDN) - helps the body develop its own natural pain killers but can also make painkillers less effective (that's the part that usually scares people) but if painkillers don't work anyway is worth a shot and helps regenerate nerves
avoid Tylenol/acetominaphen - there is evidence to suggest that Tylenol increases nerve damage and can make crps symptoms last longer
Gallium - used to treat arthritis in horses, I've gotten back some mobility after using it, also good to treat allergic reactions
Dimethylsulfoxide (DMSO) - I'd look this one up, but I've gotten mobility back and it has speed much of my pain so I can use my hands again without much pain. Someone in here had a house that had issues with its organs after use through an IV, so definitely research. It also tastes/smells strange so it might take some getting used to.
Kava root - muscle relaxer used as a tea
Magnolia extract - very strong painkiller, has stopped hallucinations caused by pain, especially when used with kava
garlic - great painkiller
ketamine - I haven't tried this yet, but it's one of the few things that actually seems to work as a treatment for crps. Is supposed to reset the body, but it's hard to find someone who would suggest trying it.

Best of luck finding something that helps!

Jun 26, 2015 5:35 PM

Ferritbandit--re ketamine--I am probably seeing a new pain doctor. We had a consultation, and one of the things he uses is a ketamine infusion--I think he does use it for crps. My psych uses it for depression (he did this several years ago and could because he does palliative medicine). I think there are supposed to be sme good things about it, but that no ones sure how or why it works.

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