Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

To have answers...

Jun 28, 2016 3:23 AM

I'm new on here but have been pretty comfortable in the things I've shared and things that have been shared. I just wanted to say that I feel for the many of you that don't really have any answers or diagnoses. Although chronic pain changes even if you do have answers, I truly feel that having some answers to your pain is half the battle. Some days you are so sick of going to the doctor or for another test.....but keep on going. A proper diagnosis can really be life saving. At least, that's what I believe.

Jun 28, 2016 6:41 AM

Judy Lynn,
You are so sweet to think of others when you're struggling too. Yes, I completely agree. Having answers is half the battle! I get very frustrated at my doctor because he Γ½hinks I should be satisfied with meds to help my symptoms. If I ask the "Why is all of this happening to me?" Question, He gets a bit I'll and tells me the same answer...." It's because you have RA! "

Jun 28, 2016 8:59 AM

I just found a new doc that I really like. He said, "Yes. You have fibro, but how many of your symptoms have nothing to do with that? Let's see if there's something else going on here, too." Way, way, way too often doctors lump everything under the chronic problem.

Jun 28, 2016 9:08 AM

Fatiguedfighter this is very true. A good doctor that will keep testing and keep referring when it's something out of their expertise is so important. Then of course, no matter how tiresome, it's so important to keep all appointments. The medical community has to do their part as we have to do ours. It's not easy finding a Doctor that you totally trust. Every doctor is as different as every one of us.

Jun 28, 2016 9:36 PM

Yeah, I get that a lot,especially because what I have is so unknown. I have chronic muscle pain, and we went for testing and they were just like well I don't have any disorder we can think of. Well call u back when we figure something out. That's it.
Welcome to the community! Its great here!

Jun 29, 2016 12:28 AM

Luvmylabmolly, you are kind to post your thoughts to those who hurt and hurt and wonder what is going on with their body. It is so Hard to to keep reaching for an answer and most times waiting.

Jun 29, 2016 12:43 AM

It's incredibly difficult. All we go to new doctor's or new testing for is to get answers. When that door closes or we don't get an answer it is easy to get frustrated. Frustration, I think, is common but really an emotion that is so detrimental to the whole pain theory. Nothing good really comes from frustration so it's one emotion that we should try chaneling in a different direction. For me, when I'm so frustrated that I know my pain gate wide open, I journal. Waiting for result or waiting to get a new appointment...whatever were waiting for is frustrating in itself. So really, how we best deal with frustration is going to be a remarkable tool.

Jun 29, 2016 12:44 AM

Judy Lynn,
That is so very sweet of you to think of others and offer such kind words of encouragement. I'd like to welcome you to our community family. I have not had the opportunity to correspond with you as of yet because I've been off for a short while. Being a chronic pain sufferer for over 22 years, having had 30 surgical procedures (with more on the horizon) and a laundry list of confirmed diagnosis, I understand the frustration of those suffering without any answers as to why. It's incredibly frustrating as well as disheartening.
I am glad that you feel comfortable with what you have shared with the group and with what the group has shared with you so far. We are, indeed, a very close knit group of loving, helpful, zany and wonderful people from all walks of life, all parts of the world, all different diagnosis (or no diagnosis), but all share the daily struggle of chronic pain. I hope that you find this family community to be supportive and helpful to you. I've been on here for a couple of years now and have made some very strong, forever bonds with people that I consider my extended family and it's been a Godsend.
You will find many people who are more than willing to offer any support, information, share experiences they've had or just listen when you need it. I wish you the best, welcome you once again and look forward to getting to know you better. Have a blessed night. {{{Hugs}}} πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Jun 29, 2016 12:47 AM

Thank you, Alwayzinpain. I'm excited I've found my way here.

Jun 29, 2016 11:00 AM

I completely agree with you on knowing the cause being half the battle. I also believe trying to keep focused on the positive areas of our life helps us deal better with the negative. But on bad days those thoughts are the furthest things from our minds. That's why we are all so lucky to be part of this group, where we can all help each other through the bad days, celebrate the good, or quietly reflect on our own blessings. Hugs & prayers to you and everyone for a blessed day! πŸ™‚πŸ’•πŸ™πŸŒΌ

Jun 29, 2016 7:01 PM

Sleepingbeauty...just wanted to say hello and thanks for the post. I loved reading your mesage. Its so nice to hear others experiences, good or bad. I think we learn so much from each other. Let me know If I can help with anything.

Ready to start relieving your pain?

Join Community