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Tongue Pain

Dec 05, 2014 10:48 PM

Nothing relieves the pain in my tongue except ice, I don't have an infection or abnormal colour, just seering pain. Anyone else found relief or a diagnosis?

Dec 06, 2014 10:07 AM

I have to say, I never did before but when my teeth started to break and I had to have oral surgery, I developed pain in my mouth, jaw, gums, tongue, etc.. I'm pretty sure it's RSD (Reflex Sympathetic Dystrophy), which I have already been diagnosed with. It tends to migrate to places I've had surgery as well as areas that I have severe degeneration. There are meds for nerve pain but they have nasty side effects and I couldn't stay on them. Check with your dentist and a neurologist. I'm on here daily if you need me. Good luck.

Dec 07, 2014 11:30 PM

I have been to all kinds of specialists, even a naturopath, but not a neurologist. Immunologist said salicylate intolerance. Have avoided salicylates (diet and skin products)for 4 months but no improvement. Dr of Oral Medicine says Burning Mouth Syndrome, prescribed increasing doses of Rivotril for 12 months now and alpha lipoic acid with no relief. Google says some people get relief with this regime. Does anybody have any other suggestions?

Dec 08, 2014 4:51 PM

Neurologist sounds like a good idea, or it might be referred pain from a muscle trigger point?

Dec 09, 2014 12:31 PM

I think my GP is getting sick of me asking for referrals to specialists. I've consulted dentist, urologist (about medication I take), oral surgeon, endocrinologist, oral medicine specialist, two immunologists, one said I had Sicca syndrome (Sjogrens), an auto-immune disease. I had a nuclear scan of my salivary glands (not functioning up to par) and both tested my eyes which are dry but hardly ever bother me. I was told to use lubricating eye drops. Also cosulted my optician. Symptoms of Sicca is dryness (the body at war with its lubricating glands). However Burning Mouth is not one of the symptoms. No doctor has explained Sicca to me, all I have learned is through Google. My questions just get brushed of. One immunologist referred me to a consultant dietician and the salicylate-free diet to no effect. I had already cut out a lot of foods anyway as they irritated my mouth, even chocolate and plain yoghurt and salt of course. I use a toothpaste with no additives. The dietician recommended toothpaste with just fluoride but that too stung. I should mention here that I my husband is a Vietnam veteran with severe chronic PTSD and it has only recently come to light that he had PTSD from an emotionally and physically abusive childhood - a double whammy. My life has been like treading on eggshells not to mention the emotional withdrawal. Earlier this year I spent two months with my son and his partner after they were badly injured in a motor cycle accident. The relief from my domestic situation was really refreshing although I was running full time nursing two bedridden people. My mouth was less sore and towards the end of the two months I was enjoying my two cups of tea of a morning which I had long given up. That didn't last after I returned home.
I think that says something although none of the doctors seem interested in that fact. Anyway I'll ask for a referral to a neurologist. I've tried everything else.

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