I’m 14 for those of you who don’t know I have had my pain syndrome since I was 5-7. I just started high school and a job plus handling my pain issues parents and chores. I want to do it all but I can’t I don’t know anymore nothing is the same everything is so much different and my pain is getting worse my family and I avoid things that may cause my pain but I still have it I just don’t think i can do any of this anymore 😞
Horsesnuggler12: If having a job is getting to be too much for your pain, then I would suggest that you quit. When you're an adult, you may be able to get on to disability support through government. I'm very concerned about the last sentence of "I just don't think I can do any of this anymore," because on another recent post you talked about being depressed. If you are thinking about suicide or feel like you may hurt yourself please reach out to your parents, school staff or friends. You can also call the National Suicide Prevention Lifeline at 1-800-273-TALK (8255), contact a local crisis service in your area www.oregon.gov/oha/PH/PREVENTIONWELLNESS/SAFELIVING/SUICIDEPREVENTION/Pages/cntymap.aspx.
I wish I was in the same state as you so that I could help you more, but please remember that as a community we are here for you when you need us.
You are a freshman in high school. That is a very big jump from middle school. You are dealing with a lot of strees from that alone. When you add a job , you hsve now increased your stress 10 fold. My advise to you would be to quite you job if that is at all economically feasable. Going to school is your job right now. You alsoshould be aware that you have school counselors avaiable at most American high school. I understand that daeling with a chonic at your age is difficult. I have had asthma since I was born. I am now in my 50s but I still remember what it is like to want so badly to fit in. I know how, for lack of a better word, mean high school girls can be. Just hang in there and do the best you can. Rememberr this is only 4 years out of a very long life. Remember you are not alone. You do not need to endure this alone. This community is here for you day or night.
it may seem too much but know you're stronger than you might think.
I was bed ridden for years not working. Now I have two jobs Working about 60 hours or so, my pain is just as bad if not worse, but I get through two hours at a time. No more.
13 years now and it still seems like too much but knowing I'm not alone makes it easier. Looking for the positive in my day helps me look forward to things.
If you haven't tried it, Mayo Clinic has a Cognitive Behavior Therapy program which teaches you to live on lifes terms. Accepting how bad it is and going with it. Not complaining but talking. It takes a lot of practice.
Also there's a good book called how to stop worrying and start living by Dale Carnegie. I'd suggest reading that.
Even working 60 hours, in the cold, I still have to come home and clean, make dinner, and dress myself. Work within your limits but don't let CRPS control you and your mood.
ScruffyCub Great job!!!!! Take that CRPS and kick it away.(wanted to say something not soo nice, but kids might see). Let people know, especially the younger ones/newer diagnosis, that the pain is Really Bad sometimes, but it Can't eat you or kill you; Thank God. Keep your head up, keep smiling/laughing, live your life the way you want; DON'T let CRPS tell you how. Peace and Luv
I understand. I was around age 13 when all my problems began. I had to quit basketball, baseball, and more. My dream of being in the WNBA came crashing down. Looking back I don’t know how I got through those years. Maybe it was because I had a great therapist. Which is what I would highly recommend. You’re going through so much at that age before you add in pain. I would look into some books on living with pain and try your best to create new hobbies. Knitting, reading, sewing, anything that you can do. And please look into seeing a therapist. It’s the only thing that got me through
Excellent advice by all...especially talking to parents, teachers, other adults about how you are feeling. If you can't show them this post and the responses. It's easy to for others to say you can get through when you are the one experiencing the pain and feeling hopeless. But suicide Is a permanent solution to a temporary problem. Tomorrow you can feel different. Too be so young dealing with such a difficult illness has to be tough! I'm so sorry your life is impacted by this illness. To repeat what the others have stated...quit the job. And ask your parents for a pass on some of the chores. If you can get through school you are doing more than enough. Again show your parents, teacher another adult this post. We want you to get the support and help you need. We love and care for you and want to hear about you getting ready for graduation. Praying for you!