So I presented the spoon theory to one of my family members and it did not go well. She basically zoned out. Did not get the point of why we were talking about spoons and how spoons have anything to do with me helping out. So I suppose il have to try again later. And in the mean time just do me.
Sometimes they just refuse to get it. They think that it's going to be some complicated thing and so they zone out to save themselves, not realizing it's the simplest thing on the world. Maybe, instead of just explaining, hand them a handful of spoons. Make them interact. It's much harder to zone out when you have to participate. Have them "help" you explain to someone else by participating. Play to their ego. Tell them how they're so much more evolved that you know they understand and could they play this part so you could show others in your family. It's just a suggestion. Anyone else got any ideas? It's a great concept for explaining, but how do we get ppl more receptive?
Sounds great phoenixrising. My sister took to it right away. She actually printed out the paperwork so I could bring it to my mom. However my mom who is recently I'll herself is just not able to hear anything like this. She knows I'm sick but she is having a hard time right now. I'm living with my parents to try and help out but in that process they taking me out physically.. But I'm gonna have to try and get to her another way
I'm so sorry. I'm lucky, in that my mom has fibro as well and so understands my dx better than I do. I feel today and she and my father and my son all three were right there (we all live in the same, upscale, trailer park) to help me get back home so I could rest. I'm sorry and I hope that you can get the e understanding soon. It makes a great deal of difference in healing. Hugs
Yes it does..my uncles both have fibromayalgia and they support me as much as they can. They come by and help me out . my mom's nurse also tries to help her understand my illness telling my mom how stress is the number one enemy to me getting better. But it has not sunk in n yet
It takes some time, and then there are some ppl who really just can't grasp the situation because it's not directly their pain. I'm not saying your mom is selfish, not my place and I don't know her, just saying that it's harder for others to empathize when they don't have the experience to draw from. I'm glad that you do have some familial support, though. 😊
I know I just started with asking how they stayed their day. At first, it was just "I get ready for school" but then I broke it down into brushing your teeth, showering, etc. I also had very few spoons, which better reflects my life, but also helped when it came to short attention span. I usually do around 7 spoons, and explain that that's my normal, or really high without meds, but that's me. Sorry it didn't go well.