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Trouble Breathing /Lupus

Jul 24, 2016 1:41 PM

Does anyone else with lupus have a hard time breathing out of nowhere for no apparent reason? It doesn't have to be from moving at all.

Jul 24, 2016 1:57 PM

A friend of mine who has Lupus has had issues with breathing. If it continues or worsens I'd go or call the doctor. Just be safe.

Jul 24, 2016 2:31 PM

Thanks for responding. Is it heart or lungs for her? I've told the docs a couple of times but they don't seem to say anything about it. They listen to my heart and lungs. In the beginning I had heart tests and lung x-rays but nothing shows. It's getting worse and more often now though. It was quite scary yesterday. It happened again today. I don't have much faith in finding help in the medical world. Sorry your friend struggles with it too.

Jul 24, 2016 2:49 PM

For her she has had trouble with both heart and lungs. She had it for about three or four years now . She tries to stay as healthy as she can before something else goes wrong. It's a really hard process.

Jul 24, 2016 3:30 PM

Yes I do have trouble breathing out of the blue but usually if it is with severe pain in chest or back area I go to the e.r. I have had two pulmonary embolisms so that's not something I play around with. Please be careful and don't wait to get checked out.

Jul 24, 2016 4:29 PM

I have some rib pain. Can a pulmonary embolism happen without severe pain? Thank you for the warning and sorry for what you've been through.

Jul 24, 2016 4:31 PM

NFG it's so crazy unpredictable living with lupus. You can almost believe you have it figured out and then it blindsides you in a completely different way. To be blunt it just sucks.

Jul 24, 2016 7:44 PM

Gibber..yes..my friend has had so many close calls and such a struggle with her health. Lupus is a terrible disease. I'm sorry you have to endure it.

Jul 24, 2016 7:46 PM

Thank you. I feel for your friend too. <3

Jul 24, 2016 10:05 PM

Has your breathing gotten any better?

Jul 24, 2016 10:16 PM

Yes, rib pain and shortness of breath is nothing to play around with. The "rib" pain could actually be lung pain. I'm sorry, I'm not trying to scare you but I'd rather you be safe than sorry.

Jul 25, 2016 8:57 AM

NFG I just got up this morning so I'm not sure how it will be yet today. It usually comes out of nowhere, lasts for a while, on and off then goes. So far in the half hr. I've been up. I'm okay. Thank you so much for asking. That's really kind of you. How are you doing?

Jul 25, 2016 8:58 AM

Super GMa if it happens today again I will call the doc. Thank you so much for caring. How are you doing?

Jul 25, 2016 4:10 PM

No problem at all gibber. That's what we are here for. To make sure we're all as ok as we can. Im doing well. Adjusting to chemo and all thst co.es with that. Thank you for asking...

Jul 25, 2016 4:13 PM

You're very sweet. Glad you're hanging in there? Is the chemo your on Methotrexate? If so I'm on it too.

Jul 25, 2016 4:15 PM

My dr did give me some meds for thr nausea ( can't think of the name ) and did also mention the Benadryl. However, noodles crackers and coke or ale are my best friend's today.

Jul 25, 2016 4:21 PM

Ohh okay. I give myself an intramuscular methotrexate injection once a week. That's tomorrow for me. Thankfully with the injection there hasn't been any nausea just fatigue, a cough and I have a hard time finishing thoughts after. I've heard pill form is more likely to cause nausea so I'm not going there. Also with the injections the side effects happen right away, with the pill form I can blindsided as to when they're going to hit. I'm blindsided enough with lupus.

Jul 25, 2016 4:24 PM

I understand totally..and your right. The side effects do come faster with the injection. I opted for a one month injection schedule. So I don't have to to stuck but once a month. I just have deal with the large dose of meds all at once. It is rather thst then being repeatedly stuck.

Jul 25, 2016 4:43 PM

I hear ya. We all have to decide what works best for us. How much do you have to take all at once? Does it fatigue you too?

Jul 25, 2016 4:47 PM

The script says 3.75 mg however I don't know how that balances out. But yes it is a cruel beast as I call it. It gives me a steroid type high then it Alanna me to the ground and drag me for a while.

Jul 25, 2016 4:54 PM

Not fun. I hope it gets easier as your body adjusts to it. It has for me. The extreme fatigue used to last 3 days now it mostly just lasts the night of and maybe the next day so I can usually just sleep through them.

Jul 25, 2016 4:58 PM

Drs say if I can make it through the next two weeks I should have experienced the worse of it. So I've just just over a week left. So far so good. I went to PT today and had some dizziness and was very much below where I was before but they know why so it was good. Right now besides the fatique it's the shortness of breath that's getting to me. Mostly though it comes if I ignore the fatique and keep pushing. My endurance is shot.. so I've got some ground to make up.

Jul 25, 2016 6:47 PM

You'll get there. Take care of you and one step at a time. <3

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