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CatchMyPain Community and Pain Diary App to manage chronic illness

Trying this app out I guess?

Dec 03, 2015 1:31 PM

I don't particularly know what to say, but I guess I should just say why I'm here.

I have chronic fatigue syndrome/M.E and have done since I was eleven years old (I'm now 16), and for some reason it's only just dawned on me five years later that there's most likely some apps to help with my illness, so here I am.

Life's been a little hectic I guess you could say, I've spent the entirety of my teenage years in and out of hospitals, getting what feels like every kind of scan and test there is (safe to say my fear of needles was weasled out quickly) and while most people were out at parties and socialising, the only new people I was meeting were paediatricians.

I've managed to stay in school and complete (and somehow pass) my GCSEs and am now doing A Levels, but God it's hard! Each time I think my energys come back, I loose the feeling in my legs and am bed bound for days and the cycle begins all over again.

I mean I'd hate to sound like a moaner, because I know how much worse I could have it- nothing life threatening here- but I thought I could just voice these thoughts as we're in the same boat, at least a little.

But the main reason I'm here is to just see if there are any tips anyone has to help with living with a chronic illness (any diets, or vitamins that have seemed to help?) because I want to proactive and just get on with life, which I think I'm doing, but anyway to make it easier would be hugely appreciated!

Sorry if that was completely uninteresting or I sound like a completely negative whinger, I just thought I'd see how this posting thing works :)

Dec 03, 2015 7:31 PM

You don't sound like a whiner to me. I'm 15 and chronic illness sucks beyond many other things.
So far as things to try, I'd recommend magnolia bark and kava kava root. They're supplements, at least around here.

Dec 03, 2015 7:36 PM

Turmeric helps too. At pretty high doses.

You don't sounds life a moaner. We're all here to support one another. I'm sorry you're so typing having to deal with all this. I absolutely understand. I spent most of my teenage years sick. But nothing compared to what my life is now. Anyhow, keep your spirits up. That's what we're here to do, keep each other company. Big hugs.

Dec 03, 2015 7:40 PM

I'm so sorry your this young dealing with all this, I don't have the chronic illnesses you have but I do understand being 16 and only being in hospitals, I'm 18 now and I've been living that live since I was 11, so I understand how much it sucks. I wish I had advice but I don't so I just wanted to say I understand.

Dec 04, 2015 3:28 AM

Im not a teen but I was a mom of one who had mysterious illness and every one kept accusing her of being pregnant. She threw up at the drop of a hat. Took over a year to figure out it was hher heart. Best suggest i can give you is cut as much white sugar and processed foods. Those microwave meals, junk food, soda causes a lot of pain. also stay away from diet sweeteners. It has been hard at my age to cut those, and I have cut the microwave food out totally. My pain level has dropped to 1 day out of 4 days .my soda or pop I have cut into half. That is my addiction. Since the artificial sweeteners cause migraines I have never been able to use them. But from the people I know that used them and they cut them, their pain levels have also decreased.

Dec 04, 2015 6:46 AM

Welcome to the site, I can understand pain, I don't have the same condition you have but I'm in pain everyday. I'm in what seems like a never ending flair and my 13 year old daughter is stranger to pain either, she deals with chronic migraines and the pain and aftermath of having a broken hand and messed up knee. I as well spent my childhood letting cardiologist who was trying to figure out why I kept passing out, it wasn't till I was in my early 30's they figured out I had nuerocardiogenic syncope. I also had scoliosis as a child that only made life worse as I got older causing a lot of my pain problems today. The people on this app are wonderful people and they are all supportive when our families or husband's don't seem to. Prayer's going up for you that you have liter pain and a better experience with the tens unit.🙏

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