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Trying to come to terms with this Life!

Jul 06, 2016 7:43 AM

Ever since I was 14 I've had back issues. Doctors after doctors none of them would do anything about it until I've finally found one! I'm almost 25 yrs old and I have the back and hips of a 75! DDD, spinal stenosis, bone spurs and bulging disks. Also found out I've got a few things wrong with my hip which will require surgery to fix it. I've never had an accident. How do you cope with realizing that your going to be going through this for the rest of your life? I have 2 kids aaccident it's hard every day to fight the pain because I just want to play with my kids. I want to be able to run around the yard or ride a bike with tad I cant!

Jul 06, 2016 8:16 AM

Hi Krystalklear! It not easy when you want to do one thing and your body just says otherwise. You have to accept that you cannot do everything and learn to listen to yourself. The worst is living with the pain of over doing it. Do what you can each day to keep your pain from getting so unbearable that you simply start mising everything. I cannot imagine having full time little ones. When my nephews stay one night it takes 3 to recuperate. Enjoy what you can!


Jul 06, 2016 8:19 AM

Thank you JudyLynn! I'm glad that I found this app so that I can have some reassurance from others like myself. When your friends and family can't imagine what we go through its hard to talk to them sometimes.

Jul 06, 2016 8:23 AM

I think you'll like it here krystalklear. There is so much insight and so much understanding. Don't be afraid to ask or talk about anything. We're glad you found the app too!


Jul 06, 2016 7:51 PM

Welcome to the community family Krystalklear! I'm sorry to hear you have these issues so young. I'm 54 and have these and more, but I started with the spine issues in 1991 following a car accident. I was 30 at the time I had my first cervical fusion, & 3 & 7 yr olds to look after. My second surgery came 3 years later, and I'm scheduled to have my 3 Rd cervical fusion (c3-7 will be solid fused) in August. I have issues all down my spine but apparently my neck is my weak point in my spine. The doc said my neck is abnormally longer for my body than most people, which causes weaker joints. Yay me! Lol

Over the years I've learned what I can and cannot do, primarily nothing over my shoulders and no heavy lifting anymore. Warm showers help loosen the stiffness and aches, plus warm me up. I have muscle relaxers and Tylenol arthritis (OA), plus tramadol. Heat pads, massages, and voltaren gel are good too. But I'm never pain free. I explained to my children in simple terms they could understand, even at their young ages, why I couldn't do certain things. But we still did things, by putting rest periods in between.

Try adjusting what and how you play with your kids. Instead of playing on the floor, move the toys or games to the bed or at the dinner table. Rotate active with sedentary play; pushing them in swings vs coloring together or doing playdough. And if your kids are young enough for naps, nap with them. My youngest & I use to crash for 2-3 hours. Ahhh! 😴 Of course she was also the one who went full steam ahead except when asleep. Lol. Kids are resilient, helpful, and full of surprising suggestions when they think about it. My granddaughter (10) knows I'm having surgery and will be in a neck brace, unable to look down. I was joking about needing bibs to wear at meals and she suggested I use her plastic tv tray to raise my plate up where I can see to eat. Hugs & prayers as you find ways to enjoy time with your kids and cope with the pain after! 🙂💕🙏🌼

Jul 06, 2016 9:52 PM

This is my support place where I have found people who have the same experiences, can understand, relate and validate. I have a 3 and a 5 year old and find myself in a similar predicament every day. The disappointment of "overdoing" it is very difficult.

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