I found out my leg pain and numbness is probably from the tumors pressing on my sciatic nerve, which means it could eventually become permanent. I could lose function in my legs permanently. I found out it could be causing the Gastroparesis, pressing on certain nerves, again, which means it could become permanent. My ovarian and uterine pain is also probably because of the tumors pressing on my nerves. I’m at a loss. I don’t want to do treatment anymore. I can’t do this anymore. I’m so sick of all of this. Fuck Neurofibromatosis.
I understand totally..I've got tumors too. Which have grown outside the uterus area and have attached to my bladder and other major blood sources. My life had totally stopped. The pain is unreal and the changes in my body are mind blowing. I understand completely where u r in the frustration.
Frailfairy, what kind of treatment are they talking about? Can the surgically remove the tumors, safely? I've had 2 in my lifetime, and the last one has caused a huge list of other diagnosed problems. I understand the frustration. Take a deep breath and breathe. Don't let any doctor rush you into any treatment. Be at peace with whatever you decide. Sending hugs & prayers for you! 🙂💕🙏🌼