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Apr 11, 2016 12:40 PM

Well, did have an absolutely wonderful couple of days. Lost weight without even trying(10 pounds since December). Pseudotumor is headed towards remission finally. Had a horrible night last night. Thought I was getting a stomach virus, but that's not it. Something has sent my pelvic floor muscles into what can be described as spasms. Can walk but it's a little challenging. Was hoping to avoid going to my pcp again, but this is totally nuts. I've tried everything I can to get it to stop, but nothing is working. Thankfully have an appointment with my pcp on Wednesday afternoon(she's easier to get in to see then my gyn is). The only position that feels good is laying down. And it also feels like my lower back is involved as well(below accident level). Hope everyone is having a light or less pain day. Blessings.👼

Apr 11, 2016 9:21 PM

Ask for Levsin, a muscle relaxer that works on pelvic muscles. Hugs & prayers you feel better soon! Go to the ER if need to. 🙂💕🙏🌼

Apr 11, 2016 10:08 PM

Flappys, if it gets that bad I will, right now it hasn't spread upwards. It's really, really uncomfortable though.

Apr 11, 2016 10:15 PM

I'm so sorry you're feeling this pain. Hope your PCP knows what to do and that you get relief ASAP.

Apr 13, 2016 3:32 PM

Just as an update:
She has no idea what is going on. Should have just gone with my first instinct and gone to the gyn. Something is really not right.

Apr 13, 2016 5:32 PM

I'm so sorry, really hope you get some answers and relief! I had a super good day, for a change, yesterday but today is back to Pain. Would gladly give you one of my good days if I could.

Apr 13, 2016 6:56 PM

7, I think that appointment really made me hurt worse. But she said she would call with lab results and to check on me Friday to see if I'm feeling any better by then. One more day to go this week. I think I can, I think I can. Then starting more IV antibiotics Friday morning. Getting stuck with an IV needle sure as hell beats having it cut out already.

Apr 14, 2016 2:43 PM

Oh Amanda, I don't doubt that appointment made u you hurt worse in so many ways... . I hope today is a little better. Gentle hugs.

Apr 14, 2016 5:41 PM

7, not really. Was spasiming so bad that I was trying to keep from screaming at work. Never a good day when that happens. And alas, my urine again showed microscopic blood yesterday. Go figure!!!! I thought they would figure out why with the cystoscopy but apparently not. I just want to beat my head against a wall right now, cause I'm very frustrated. And can't make heads or tails out of the issue already. Pain has remained about a constant 5-6 all day. Haven't slept through the whole night since Sunday. Something has got to give already........

Apr 14, 2016 5:59 PM

Yikes! What do you do for work? I've been disabled since '02 and I miss working but know I can't. How do you manage?

Apr 14, 2016 6:38 PM

I do piece wor(light assembly, etc). It doesn't pay much but it gets me out of the house. On a good pain day, I can go all day without a hint of pain. But on a bad pain day, like today, I muddle through it. Today was a don't talk to me, or I bite your head off kind of day.

Apr 14, 2016 6:40 PM

I understand about not screaming... I'm in more pain every day than I ever had giving birth! But we just can't go around screaming all the time & so others, even docs don't get it. Except a previous few, if we're lucky. That's great that you do get out. Applause! & gentle, gentle hugs.

Apr 14, 2016 8:09 PM

And 7, I told my mom that next time I'm going to stop second guessing myself on which specialist to call and go with my first instinct, which is usually correct about most things. Right now, I need to go lay down and try to sleep. Don't know if it will happen but at least have to try it.

Apr 14, 2016 8:26 PM

Wishing you pain relief and pleasant dreams.

Apr 15, 2016 3:03 PM

Nope, still not sleeping through the night either. Getting very irritable with it already.

Apr 15, 2016 6:48 PM

Amanda, I believe you're right to keep trying and hoping, and gathering data and insights like you do. I think our instincts can be based on info that we've gathered but haven't consciously processed.

Apr 15, 2016 7:44 PM

7, I believe you are right. At this point, something needs to give. So I'm going to call my pcp back and let them know that I need to be seen again. I'm hurting and miserable, and just can't get comfortable at all. It's to the point of tears out of sheer frustration.

Apr 15, 2016 7:55 PM

I'm so sorry. I hope you get maximum relief asap! Jeez. Dealing with this uncharted or maybe unchartable water as our dx's are, is so hard. It's way different from the (already hard enough) task of just being a person. That's why we're, at the very least, Super Human, to quote somebody here. And maybe with the relief, a little treat of some sort.

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