Well, did have an absolutely wonderful couple of days. Lost weight without even trying(10 pounds since December). Pseudotumor is headed towards remission finally. Had a horrible night last night. Thought I was getting a stomach virus, but that's not it. Something has sent my pelvic floor muscles into what can be described as spasms. Can walk but it's a little challenging. Was hoping to avoid going to my pcp again, but this is totally nuts. I've tried everything I can to get it to stop, but nothing is working. Thankfully have an appointment with my pcp on Wednesday afternoon(she's easier to get in to see then my gyn is). The only position that feels good is laying down. And it also feels like my lower back is involved as well(below accident level). Hope everyone is having a light or less pain day. Blessings.👼
7, I think that appointment really made me hurt worse. But she said she would call with lab results and to check on me Friday to see if I'm feeling any better by then. One more day to go this week. I think I can, I think I can. Then starting more IV antibiotics Friday morning. Getting stuck with an IV needle sure as hell beats having it cut out already.
7, not really. Was spasiming so bad that I was trying to keep from screaming at work. Never a good day when that happens. And alas, my urine again showed microscopic blood yesterday. Go figure!!!! I thought they would figure out why with the cystoscopy but apparently not. I just want to beat my head against a wall right now, cause I'm very frustrated. And can't make heads or tails out of the issue already. Pain has remained about a constant 5-6 all day. Haven't slept through the whole night since Sunday. Something has got to give already........
I do piece wor(light assembly, etc). It doesn't pay much but it gets me out of the house. On a good pain day, I can go all day without a hint of pain. But on a bad pain day, like today, I muddle through it. Today was a don't talk to me, or I bite your head off kind of day.
I understand about not screaming... I'm in more pain every day than I ever had giving birth! But we just can't go around screaming all the time & so others, even docs don't get it. Except a previous few, if we're lucky. That's great that you do get out. Applause! & gentle, gentle hugs.
And 7, I told my mom that next time I'm going to stop second guessing myself on which specialist to call and go with my first instinct, which is usually correct about most things. Right now, I need to go lay down and try to sleep. Don't know if it will happen but at least have to try it.
7, I believe you are right. At this point, something needs to give. So I'm going to call my pcp back and let them know that I need to be seen again. I'm hurting and miserable, and just can't get comfortable at all. It's to the point of tears out of sheer frustration.
I'm so sorry. I hope you get maximum relief asap! Jeez. Dealing with this uncharted or maybe unchartable water as our dx's are, is so hard. It's way different from the (already hard enough) task of just being a person. That's why we're, at the very least, Super Human, to quote somebody here. And maybe with the relief, a little treat of some sort.