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UK Fibromyalgia,

Oct 10, 2014 8:53 PM

Hi, I am 25, had fibromyalgia for 5 years only known what it is for a year. For me the pain is everyday but different places, pains or somedays it can be more fatigue than pain. It always seems to be one thing or another, I had managed to complete my degree while working part time but had to take an extra year. Since, I have tried different jobs but the economy the way it is and with the fog as well as the physical it's not likely I will find a job. although I am still looking for part time admin. I am finding it hard and scary because it's always getting worse, lately I have just been really weepy I will cry at anything but atleast since being on the amnitrptalyne I am not half as depressed as I was or manic. So that's me, is there any more UK peeps??? anyone fancy a chat? any discussions welcome! I am from north wales! feel free to chat!

Oct 19, 2014 6:03 PM

I'm from Dorset, I am 29 and I was only diagnosed last year. I've suffered from fibro since I was 19 and all because I had to have a double patella realignment. I'm in so much pain everyday and it's in random places. I'm on tramadol, gabapentin, sertraline and amitryptoline.

quick question: do you get burning on the soles of your feet?

Oct 22, 2014 3:37 PM

hi there, I'm from Nottingham and today was the first 'attack' in ages that I've had. so much pain and that's with strong painkillers. I was diagnosed about 11 years ago and for about 6 years couldn't work full time. I've just started a full time job again about 2 months ago and am so depressed that I'm having an attack, there are alsorts of viruses at work and it's that I think that's triggered this attack. I cried twice earlier all I want to do is get my old life back where I used to work full time but I'm struggling. mine is so similar to yours as you describe pain moving about and/or exhaustion you never know what or when it's going to hit you do you? it'd be nice to chat to another UK peeps and I'm part Welsh lol family name was Powell from Tonypandy. take care hope you don't suffer too bad oh and I'm 47

Oct 23, 2014 12:52 AM

hi I'm from South Cumbria. 36 had ME/fibro pain since uni (although possible as far back as 11 - got regular headaches that then went to min 6 earaches a year then throat infections). I got the flu jab (6months to get rid in 1st yr) then glandular fever in the second yr. diagnosised properly in 2008. also have cervical stenosis to add to pain levels. still just and so managing to work. 2 days working from home to cope.

Oct 23, 2014 7:48 AM

this fibro junk sucks! lots of pain today, plus chronic migraines and spinal stenosis. believe it or not but my horses keep me sain and moving. I suffer from depression which is also part of fibro; I mean really...who wouldn't be depressed being in pain all day! stay strong ladies!

Oct 25, 2014 12:47 AM

hi, I'm from Lincoln area (uk)and am 45 years old. I have recently been diagnosed with fibromyalgia and raynards syndrome. I have had chronic pain for over 17 years. was originally diagnosed with slipped discs in neck. I also suffer from trapped nerves, muscles spasms, depression and migraines. in the last eight years I've gone downhill very quickly. I'm on very strong pain meds but they don't take the pain away, they just help a little. I'm struggling to cope with every aspect of life at the moment. trying to stay strong as I have children, but it's getting harder to do so. just so tired and down all the time. I had to give up work because of my back, I'm struggling just to keep house, feel guilty because my elderly mother helps me more than she really should do. it should be me helping her. the weather isn't doing me any good at the moment, wrapped up like an Eskimo. my hands and feet are so painful and cold, I don't know what to do with myself. the pains off the scale. how do you all cope with the constant pain and tiredness. am just back on my feet, so to say, after a severe migraine that put me in hospital 5 days ago and feel at my lowest I've ever been that I can remember. would be glad to talk to anyone who has similar aches and pains.

Oct 27, 2014 8:31 AM

I'm in Dorset too......childbirth and a whole heap of mega stress and crappy life situation triggered mine I am convinced..... exhausted pretty much always, in pain always..... both in varying degrees, mess haven't helped, I'm glad to be here and meet some other fibro fighters Xx

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