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Undiagnosed chronic pain

Oct 04, 2014 10:39 PM

Since three years ago my ankle and knee on my left leg, and my right ankle, have all been highly irritated by walking, moving and doing daily activities. In the last two months the pain has spread into my wrists, my left and non dominant being worst, my left hip, right knee slightly, back, and shoulders. I am only 15 and my parents won't take me to see a doctor at all. I don't know what to do and taking medication along with heating and icing multiple times daily has gotten me nowhere. I really enjoy the outdoors and being with friends but I can't do that very much because of my pain levels. I've been to PT for my left knee and ankle before, twice, and this didn't improve anything for more than a mere month or two after wards, even as i kept doing the stretches and such I did there. I have a pet tortoise and I really love to play with him and will be getting another. I just want to be able to go to my closet at the other side of my room to get him without having to stop as soon as i stand up due to the pain. I am also still in high school, and the 7:30 to 2:30 schedule is not for me, plus we have outdoor hallways.

Anyone have any suggestions for anything...?

Oct 05, 2014 1:17 AM

I think you need to be more stringent with discussing your issues with your parents and constantly remind them of the pain you are suffering. Do you have a school nurse or gym teacher you can discuss this with. Maybe they can give you some recommendations.

Oct 05, 2014 8:07 AM

Even a guidance counselor to deal with the emotional side. Why won't your parents take you to the Dr. if you don't mind me asking?

Oct 05, 2014 9:14 AM

I so feel for you. I am 45 and in my teens I had pains and was sick alot. My mom wouldn't take me to the dr even though I had really good insurance through my dad. I was always faking it or having growing pains or lazy. I ate aspirin like it was candy. I felt like I was crazy all these years and was just diagnosed with fibromyalgia. Talk with a school councillor, keep trying with your parents. Do you have a school nurse you could see? I hope you get the medical attention you need.

Oct 05, 2014 9:52 AM

Can you go to the doctor by yourself? If not definitely see if your school has a counselor you can talk to, they can often help with referrals etc :-)

Oct 05, 2014 10:05 PM

I am pretty much where shammagren says. I have family visiting and my grandpa believes it's some sort of arthritis. he has had the issues I am and he was diagnosed with fully body arthritis. however, mine is beginning to spread, today they decided they would get me a knee and wrist brace tomorrow. however, that doesn't help everything but it is a start. my grandparents are trying to convince my parents to get me to a doctor, they would take me but aren't listed as someone who could bring me to my offices. so I hope to see one soon.

to answer you, cspinelli, they feel as if I'm faking all of it. they don't realize the pain I'm in. and don't seem to be interested. I found out that seeing a doctor would cost us no more than $15 and that a specialist wouldn't be much more which angers me much more!!

at my school I don't have a counselor I feel comfortable with this year. the one I had last year, who left, I was very fond of. sadly I can't go to her this year.

Oct 06, 2014 12:44 AM

I'm so sorry, I'm a mom and I wish I could help you! I hope you find relief soon.

Oct 12, 2014 5:55 AM

being in chronic pain all the time is bad enough, but being so young makes it worse, i am 16 and have a condition called arachnoiditis, this means i get chronic back pain all the time. i guess it may be the money side of things that may be why your parents arent keen. i live in England so all my treatment is free on the nhs. Keep trying to persuade them and tell them how much pain you are in. i hope you get somewhere soon xx

Jul 05, 2015 5:12 PM

Anyone know anything about growing pains? My daughter 3years old complains of bad legs mostly around her knees in the day and wakes up screaming at night in pain it usually lasts for around 10 minutes I have to massage her legs it's the only thing that seems to help I'm guessing it's growing pains but not sure if it could be bad curculation as I have raynaud's and most my family have problems with there knees anyone got any advice thanks in advance

Jul 05, 2015 7:17 PM

That Singing Girl I am so sorry that someone as young as you are going thru this. Just keep talking to your parents.about it. What state do you live in? It seems like you should be able to take your self to your Dr.

Jul 05, 2015 7:31 PM

U r describing lyme disease. U need an LLMD. Lyme literate medical dr.

Jul 05, 2015 7:33 PM

Chronic back pain can be bartonella. A co infection to lyme

Jul 05, 2015 7:34 PM

Find me on fb. Lea wolven

Jul 05, 2015 9:45 PM

Thatsingingirl, have you noticed swelling or discoloration of the affected area that's in pain? If so you need to see a rheumatologist. There are a number of disease issues you could have. Start keeping a detailed journal of what hurts when and if it looks different from the surrounding areas, etc. Then show your parents or school counselor and ask them to please get you in with a rheumy doc. You don't have to like the counselor, but they still have to help you. Good luck and I'll be praying for you! 🙏🌼

Jul 05, 2015 11:31 PM

I would definitely try to see a doc. Arthritis runs in my family and I am 14 but have been diagnosed with CRPS, and the way you're describing it reminds me of that. At first I thought it was an early arthritis since my mom and aunt both got arthritis in their late teens.

I totally understand having issues with school counselors, I've only met one that didn't ignore me. However, is there a new one, or some local clinic you could go to?

My pain began in my wrist. I put a brace on it every night, but made my own due to the normal position causing my thumb to spasm.I used a pie knife, covered by a sock. Then I wrapped a scarf around it.

Definitely bug your parents. They should be listening to you. My entire family has chronic pain and other disabilities, so I have a lot of people to talk with. Do you know any other teens with chronic pain?

It was nice to have a friend with chronic pain since she wasn't judgemental, like most people.
Best of luck getting treatment!

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