I am Stef and have been dealing with pain now for 10 years, January. I am,a,married mother of two boys 12 and 10 and fell ill throughout my second pregnancy.
The new RA specialist has asked me to keep a journal and that's how I found this app/site.
I have wide spread pain in My joints as well as stomach pains (I think "this is it", every time i have an attack)
I also suffer of neutropenia, anemia, splenomelagy, ibs and I get skin rashes over my hands and at times over my whole body. Noone knows what this is? Sciatica and bursitis as well as carpel tunnel is also there. If anyone has similar issues do let me know! We have to be our advocates sometimes. I do take long and short acting hydromorphine again ( amongst other strong meds ) now that the injectable methotrexate and prednisone has been discontinued. We There are a few drs that think I may have EDS, Does anyone know about eds? Thanks for your support, Stef