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Feb 18, 2016 12:20 PM

I have had the worst few weeks of my fm I have ever had. I got the flu and the fever chills made me feel like I was dying... I was diagnosed last month but have been dealing with the symptoms for 2 years. The depression waxes and wanes. The pains change so often it's hard to keep track. The only thing I have been given for help at this point is flexril. But taking it one day and not the next makes me nauseous. My husband is doing his best to understand this illness but keeps telling me life has to move forward as normal. My beautiful daughter doesn't understand why mommy can't play sometimes. This has been biggest heartbreak and I'm finding hard to move forward.

Feb 18, 2016 4:45 PM

FM is so unpredictable. I have it too. It is very frustrating with those close to us who don't understand. You are fortunate in having a loving family and so I have hope that your hubby will be open to learning about this weird illness and gain awareness about your struggle with FM. Keep writing here. Hugs.

Feb 18, 2016 4:52 PM

Also, there are other meds that can help (like Neurontin) so keeping a pain and discomfort journal can help in talking with docs. Smiles-

Feb 18, 2016 4:54 PM

I do keep a pain journal. It so hard to look at though. So many different pains. Thank you for your kind words. I appreciate it :)

Feb 18, 2016 5:00 PM

I know what you mean. I'm keeping my notes here & don't look at them. I have years of diaries but don't look at 'em because they are a downer. I also have deep, chronic depression and a host of other illnesses haunting. So Yes, don't look at them - with this online app I think you can just send it to the doc.

Feb 18, 2016 7:31 PM

Keisha, because fibro is so unpredictable it makes it hard to treat. Flexeril isn't going to help as much except for muscle cramps or spasms. I'm on gabapentin, a muscle relaxer - Parafon forte, and Tramadol for my fibro. I went through several meds before finding what works for me. As 7autoimmunes said, using your pain notes, things you do to help relieve pain (ie; ointment rubs, warm showers or baths, massages, etc), and what you take that did or did not work, that will help your doctor know what to try next. On the website there is a " letter to the normals, " which may be helpful at explaining to your husband. I will post it separate, as the links don't always work within a message. I remember how difficult it is to be too bad to play with my child when she was young, so I really understand. I hope you can begin to find some relief soon. Hugs, love, & prayers. 🙂💕🙏🌼

Feb 19, 2016 10:18 AM

Thank you for this! I read it and I cried! I have CREST syndrome disease, with a lot of the same symptoms. So I used it as a guide, wrote my own & sent it to my parents & my husband. My parents responded with a huge sense of better understanding! my husband hasn't read it yet, but I am hopeful.

Feb 19, 2016 1:43 PM

That's so great! I'm glad I remembered it & shared it. But mostly I'm glad it's been of help to you! Hugs, love, & prayers your hubby will better understand too. 🙂💕🙏🌼

Feb 22, 2016 12:08 AM

Tonight I drove him to urgent care due to his illness. He never gets sick. He's been in bed for 3 days, & he looks awful. He was telling me all that hurts on his body cause he has the flu. I welcomed him to my world & stated how I completely understood. Than later he said he was sorry for not being a better husband. Small steps forward....

Feb 22, 2016 1:13 AM

Thank you Flappy, for the link. I read the letter and although I do not have Fibro I have PMR which my doctor has told me it is like Fibro x 10.

Feb 22, 2016 4:21 PM

Someone here shared it with me 2 the ago. I'm just glad to share it forward.

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