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Update on family tring to get me to be " normal"

Mar 14, 2016 6:06 PM

So if u guys remember mom had said she wanted me to get out the house more. Do social stuff all.after doing a regular day for me now. Well she made this statement again today which happens to not be my.best day. Pain in almost every joint having to cancel an appointment due to lack of money ect.
So I thank GOD I was able to express this point calmly. As u all know how a normal day goes for us now. The last thing we want or need is someone trying for foeuxs us into unfamiliar social situations. It still seems as if she didn't really understand. Or that the fact of wahy I said hirt her as a parent. But it still doesn't change the truthfulness of the statement. Thst the idea of going out getting dressed having to socialize with new people or even family who are not use to me now. Is just to much. So I'm hoping this a positive step forward to my mom understanding my new normal.

Mar 14, 2016 6:24 PM

I sure hope it is a step in the right direction New! Sometimes family can be the hardest to deal with. Mine's strange, I admit it. They seem to enjoy trying to "out pain" each other. You know the type, you're pain is nothing compared to what mine is. Or even what are you going to do when you get to be my age...

Sending you positive healing thoughts and cyber hugs.

Mar 14, 2016 6:33 PM

I'm really glad to hear you were able to communicate calmly even on such a bad day. Hang in there. You can only do what your body allows you to do on any given day. I hope they hear this message from you soon.

Mar 14, 2016 6:59 PM

Sounds like you are handling yourself just right. Stay calm & state your truth. ( I say this to myself a
lot)

Mar 15, 2016 3:54 PM

I found writing a letter to those who know best works for a while. My letter starts out lloving them for being so concerned, and their concern seems to be better than my doctors. Then i tell them what my body went through on that day, but I never use the word pain. I make it sound like it was better then some other point in time when they were with me. Then I express that i understand that they are trying to help me feel better but I hope they never have to feel what I am going through. Then I put in some of my fears for my future. I also share blogs that I read, maybe a quote from them sor something. Just not those post that is on every fb page. It helps that I blog and have some private messages from some of my readers that I share. My mom is my worst knows best person, lol. I am for my kids, and most of us don't understand their fear for us until we step into their shoes. I mean how many moms wants their child to be worse health than we are?

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