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Update on my health

Aug 10, 2017 2:25 AM

Well since finally getting health insurance things are moving along. I have a great primary doctor and I mean great. I wasn't even going to go back to this doctors office because the doctor I had before this one was awful. He never did anything for my pain and referredme to doctors when I didn't have insurance. Well he retired and now I have a physician assistant and she is everything. I tell her I feel so blessed to have her. So far she has done my bloodwork and brought me up to normal on some stuff. She has referred me for MRI'S on my back and knees. Doctor referrals to rhuemalogist, nephrologist, gastroenterologist, pain management, and orthopedic doctor. She is doing some pin management till I get into the pain doctor by prescribing me some Percocet and muscle relaxers. My vitamin D is always very low so she prescribed some for me to take.
Now I have also went to the dentist because the Sjรถgren's has really took an effect on my teeth. I have 2 teeth that I knew had to be pulled by found out I actually have to have 5 pulled. I hate the dentist because when I was a child the dentist didn't numb me all the way and I felt everything. He thought I was screaming just to be screaming and put a tool in mouth to hold it open. I felt everything getting cavities filled, from drilling into my teeth and all. To this day it takes a lot to numb my mouth.
But 2 of my teeth are broke down under my gum line so I'm worried about getting my gums cut to get it out and the other 2 are my wisdom teeth and the last one is the side tooth. At my consult yesterday the surgeon assured me he will have them out and I will be sedated and numb. I'm just worried about the pain afterwards and not going into a Sjรถgren's or fibromyalgia flare from it.
But I just wanted to update you guys on my progress, and thank you guys again for the prayers and keeping me positive on getting insurance. It feels good to go to the doctor and not the Emergency Room. Gentle Hugs everyone, you guys have kept me from going crazy.

Aug 10, 2017 7:51 AM

I'm so so happy for you!! Your new doc sounds great and really supportive, I will be thinking of you and I wish you lots of luck for all the tests and the dentist appointments, It will be worth it in the end ๐Ÿ’•

Aug 10, 2017 11:43 AM

How incredibly exciting to know you're getting the medical treatment you need by compassionate caring doctors! Now that you're getting a comprehensive evaluation, doctors can coordinate your individual treatment plan so you can feel better. Yayโ€ผโ€ผ๐Ÿ‘๐Ÿ‘๐Ÿป๐Ÿ˜ƒOne thing I've found helpful is to write down questions beforehand to ask your doctors. Also take notes of their answers. A key question is what are the side effects of all your meds and interactions. Keeping your notes in a purse size pad ๐Ÿ“ helps stay organized. I've made copies of my pain diary to show my doctors. They've really found that helpful. You're in my thoughts and prayers. Let us know how everything goes.๐ŸŒบ

Aug 10, 2017 11:58 AM

Fibrorilla it's funny you should say to keep notes and write down questions because I have a medical book bag. I have a book with the name of my medical team like the primary doctor, rheumatologist, urologist, gastroenterologist, nephrologist etc. with all their names and addresses and contact info. I fill in each new specialists as I go along. I showed it to my primary doctor yesterday and she said let me make a copy of that. I told her we still filling it up, she said it's ok when it gets filled she can make more copies. Also in my book is my medication list, illnesses I have been diagnosed with so far and a list of health issues that need to be addressed. Then I have a folder for all my visit summaries and copies of test results like bloodwork. So I have been keeping everything organized. Cause these appointments are coming in back to back. And thank you for your well wishes and I will keep you guys updated. The only downfall is I had to start the disability process all over again but I let my doctor know that I am trying to get disability and she makes a lot of notes for each problem and how it affects me and what might help to make it better. She said her notes will help me with getting disability.

Aug 10, 2017 12:57 PM

Awesome PaineLady! Being organized is essential especially when brain fog sets in. We ALL know what that's like ๐Ÿ˜ฆ. Your list of doctors/meds is very helpful for them to see to reduce the likelihood of negative drug interactions and trtmt duplications. When I went through the disability application process, it was very important to get copies of all my medical visits, test/MRI scan results for my personal file. Scan results now come on CD/DVDs which is great๐Ÿ‘๐Ÿป. I imagine you've lost 100lbs. of worry off your shoulders now that everything's falling into place! Sending you gentle hugs ๐Ÿค—

Aug 10, 2017 7:40 PM

Yes I have lost lbs off my mind, now I hope to lose the 100lbs of my body that I have gained from my depression and anxiety medicine. I have been able to move around more now that I have pain meds, I mean it really makes a difference. I have an appointment with a pain management clinic, I hope they continue giving me pain meds and alternative therapies like physical therapy. But I didn't realize how much a difference the pain med helps. But now with these issues of getting narcotic pain meds prescribed, I'm just hoping for the best but preparing for the worst. My health issues list is long....I have Sjรถgren's syndrome, fibromyalgia, 3 herniated discs in my back that I know of I think I have more now. Degenerative disc disease, osteoarthritis, torn cartilage in both knees, joint pain in shoulders and hips, chronic stomach pain, and fibroid tumors. That's all I can think of right now but I know I have more physical issues. They are wrote down in my book though. Brain fog is driving me crazy, lol.

Aug 11, 2017 7:51 AM

Wow Painedlady. Good luck in losing weight. You sure have a lot of challenges. I hope you find help with those. (((gentle hugs)))

Aug 11, 2017 8:00 AM

That's awful painlady. God's blessings to you and I sure hope you feel better. ๐Ÿ‘๐Ÿ™

Aug 11, 2017 9:51 AM

I am really happy for you ๐Ÿ˜Š๐Ÿ˜Š I am also proud of you for going back to that office and giving them another chances ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค— I know how hard it is to find a good doctor and I am so happy you got a great doctor and physician assistant.

((Gentle hugs))

Aug 11, 2017 2:02 PM

Thank you everyone for your well wishes and gentle hugs. As you can see with all my health issues I had to fight to get Medicaid. 2 years of going without healthcare took a bigger toll on my body. Especially being in pain all the time, I did find out that my adopted sister actually works at the pain clinic I'm going too so she told me exactly what I needed to have for my appointment. The place looks great online because they offer yoga and movement therapy also as well as physical therapy and epidural shots etc. So I have calmed my worrying down about going.

Aug 11, 2017 2:33 PM

@Painedlady. That's great to hear . ๐Ÿ˜Š it is always nice when you have someone from the inside who can help guide you ๐Ÿค—๐Ÿค—

Aug 11, 2017 2:46 PM

Yes indeed because since my primary doctor started on controlling my pain some, it has been a great change. Today I took my nieces to the library and out to eat, they are 4,3 and an 8 month old. I would have not been able to do it in pain. My pain was always an 8 to a 9, now even though I think it's too low of a dose of Percocet my pain goes down to a 6 for a little while. So hopefully they can prescribe something that will last longer and something for breakthrough pain. My aunt just told me I even look happier and healthier. That's all I wanted was Medicaid to treat my health issues, I hate being in pain and not wanting to do anything. Now I have been over doing it some so this weekend I will rest because I will feel everything tomorrow for sure.

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