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Update

Feb 05, 2015 2:18 PM

So today was the big day or I thought it would be. Continue PT until finished next week, MRI next Thursday afternoon to r/o pinched nerve/herniated disk. Oh and they told me something really interesting that wasn't accident related. I have a very mild form of spina bifida which could be making things worse, but it doesn't hurt me neurologically which is good. That's all for now.

Feb 05, 2015 4:09 PM

That's interesting! Good that you are having those tests done. One step closer to a diagnosis. So frustrating when you know something is wrong but have no answers. Keep us posted!

Feb 06, 2015 12:13 AM

The waiting on the test, then the diagnosis, then the appointment to discuss said test can seem like an eternity. You are on the right path hang in there and if you gut does not agree with your doctor get a second opinion. My lack of confidence led me to go down the wrong path way too many times. Pay attention to your body and dont give up.

Feb 06, 2015 5:17 AM

You know what, it does feel like an eternity now, but I'll get through it.

Feb 14, 2015 9:50 AM

Sorry if this send nosy but what kind of spina bifida? Was it spina bifida occulta?

Feb 14, 2015 10:23 AM

Reece, no that's not being nosy. Spina bifida occulta. It also runs in our family.

Feb 14, 2015 11:03 AM

I was suspected of having that at one point but nothing on the MRI

Feb 14, 2015 11:16 AM

Reece, they just found it on x-ray last week. I'm 34 years of age and I was absolutely amazed. Still waiting for MRI on Monday to r/o pinched nerve/compressed disc so we shall see if there is any evidence of the cord peeking through.

Feb 14, 2015 11:17 AM

Sandibeach, they did try to do an MRI last Thursday but because it was closed, no go. I actually ended up getting stuck in the machine while they were trying to pull me out.

Feb 14, 2015 11:28 AM

Omg, that does not sound like fun. Think it would freak me out if I were stuck in there. Although I've had many (maybe 10) MRI's , if I open my eyes while I'm inside, I start to get anxious and claustrophobic

Feb 14, 2015 3:58 PM

It about freaked me out. I was yelling something like, "get me out of here NOW!!!"

Feb 15, 2015 7:34 PM

Amandamiddleton1234, I was told I had spins bifida occulta from a 1998 MRI. To date it has not caused any further problems. Its the least problematic of all... Look at the www.minds.nih.gov site for spins bifida.

Feb 16, 2015 6:46 PM

FlappysLady, Ummm the only thing I've noticed and that I think might be related is that I have very weak or sorry, no knee jerk reaction on either side. It's always been like that so I'm actually quite used to it, but now I can kind of pinpoint where it might be coming from.

Feb 17, 2015 8:13 AM

Well I guess we can both be thankful it wasn't full spina bifida. My whole right side, head to toes is weak, suddenly, but its related to my back discs I think. But I've had 2 docs ask me if I've had a stroke.

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