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useless, sad and angry

Jun 27, 2016 12:58 AM

In too much pain and am too fatigued to pack but I have to move on Fri!
Any suggestions for when I see my docs this week?

Meds from pain clinic seem not to be working after being on them for 2 mos. I'm on Dicyclomine 10mg 3x day
Chloroxazone 500mg 3x day
Gabapentin 300mg 1x day (I don't tolerate it well)
and tramadol HCl 50mg 3x day.

Jun 27, 2016 1:21 AM

Hi auto, u r not useless today... im here with u... but last week i was useless sad and very angry cause i felt irrelevent! I feel better today... so im sending u some good karma ur way... just know... u r not alone feeling this way.

Pregabalin is a newer form of gabapentin that can be taken in lower doses and therefore tolerated somewhat better... and i found bunorphrapine patches quite helpfull. Hope ur day improves hunni x.

Jun 27, 2016 4:21 AM

Thanks for your encouragement. I'd love to have patches but my ins doesn't cover it or pain cream. Weird, right? It's got to be cheaper than pills. I have pain and fatigue from head to toes from many things.
Ice pick stabbing in ears, MS,
feeling electrocuted by fibro, fatigued & stuck in the fog by ms and fibro,
screaming pain worse than childbirth from ibs, +++
excruciating & stabbing leg pain, I don't know why? Does fibro cause this?

Jun 27, 2016 3:59 PM

Autoimmunes, I'm so sorry to hear you have to move Friday and you're unable to pack due to pain. You are not useless! You're just challenged & struggling with a lot of different things on top of the health issues. Im very sorry if the move is unplanned or unwanted. I know what that's like and the stress out cause. It's very difficult packing & moving in pain. Several years ago my sister's hubby died and we had to pack her stuff and get her moved out in 3 days. The house was under a loan and not in her name, and she was left penniless. The stress of my brother in law's sudden death was bad enough. But the moving was absolutely too much and I lost it on another family member who was being too bossy to everyone. We were all exhausted and I was in tremendous pain. But I'll give you some tips that helped us...

Pack & box up things by need: used daily, used weekly, used randomly, not used in ??? Also label by room/who's belongings/winter (summer etc) they are. Then when you go to unpack you will know if it's needed to be unpacked immediately or not. We did not do that for my sister because she wasn't able to help us. When she tried to find stuff it was a nightmare! Take your time and do little bits at a time. Do the easy light stuff first, and leave the heavier stuff until someone can help you. Let others help!! Rest a lot in between, even if it means napping.

I can't help you with the meds much. I'm on tramadol & gabapentin & Chlorzoxazone, and I guess because I'm allergic to so many other meds these work for me. Hopefully others will have suggestions in this area. (((Hugs))) & prayers!! 🙂💕🙏🌼

Jun 28, 2016 8:59 PM

Thank you! @flappyslady 81 I'm going to take your advice. The heat stops activity and brainwaves for me. But even a bit at night would help.

Jun 28, 2016 9:41 PM

I know how you feel. The humidity makes me sick and do dizzy and constant reactions and pain that so many days I end up in bed feeling pretty useless. But like everyone said, the most important thing to remember is that we are not useless. We are doing the only thing we need to do right now because that's what were capable off giving our bodies the rest it needs to get better.
Also dealing with meds that are not working. Hope you find something that works!

Jun 28, 2016 11:22 PM

I have screamin leg pain as well, and I too have MS we're in this together.so it might be your MS giving you the leg pain. I feel,as,though I'm heading for a flare. Just wanted to say I sympathise with you and you hang in there sweetie

Jun 29, 2016 1:03 AM

Autoimmunes, I don't know if it's ever been suggested to you or if you've ever heard of it, but there is a test your doctor can do (it does not matter whether it's your GP or your pain doctor) that is done with an oral buccal swab. It is called a Comprehensive Pharmacogenetic Report and it is based on your 23 chromosomes that you are born with (and NEVER change) and it tells you which medications metabolize well, which ones don't, which ones you should never take and which ones could cause you to have problems. It gives you the information broken down into categories of different kinds of meds and you are given a copy of this report to keep and have for other doctors in case you need medical attention for another matter, it can be helpful in telling them what medications will benefit you. I had it done and it made a difference because they were able to make changes to my meds to work more efficiently and not have to take so much. I hope that this is helpful to you (and everyone else reading this who may not have heard of this test). Hang in there, somehow we get the hard stuff done even though we don't think we can. Know that you have your pain family behind you to help you through. {{{Hugs}}} 💕🙏🏻🌻😊

Jun 29, 2016 1:48 AM

Wow😊 Thanks all. @alwaysinpain, I've come never heard of that test and have Neuro appt next week. Yay, I'll bring it up. Hope Medicare covers it.
Fired Kaiser health because for 3 yrs, starting 3 weeks after MS dx, they denied my coverage. I could not be seen anywhere - I'd already been disabled by it & so couldn't buy other ins, and they wouldn't see me.
@holliedays, my leg pain feels like it is my bones and muscles and fat, everything. Is yours that way? I'm glad to hear there's someone else here with MS. I'll make sure to tell Neuro.

Jun 29, 2016 1:57 AM

Autoimmunes, I'm on Medicare and they covered it so you shouldn't have any problem. Let me know how it goes.{{Hugs}}💕

Jun 29, 2016 10:31 AM

Yes I feel it deep within my bones feels almost like as the same as if how your finger would feel if you tied a rubber band round it till it turned purple

Jun 30, 2016 12:56 PM

Hi. Mine's like that out like they're in a volcano or crushed in a train wreck.
Today is better so far. Slept 11 hrs, been awake 1 hour, ate, took meds, exhausted. Back in bed, Pain building.
@alwayzinpain That's great news.

Jul 01, 2016 9:43 AM

My leg pain is going away except for the random nerve pain that randomly hits where ever it wants. Feels like someone throwing stones at me . I went to the YMCA yesterday and did what I could and feel pretty good today. You know, I've heard that water arobics is really really good for MS

Jul 01, 2016 9:56 AM

It is so nice that somebody understands me I'm sorry that you have to go through this. Lots of sleep is good. Sometimes I have slept 20 hrs like it was normal...I love my sleep..try not getting deressed_i know it's tough but you know what stress does with your MS.

Jul 01, 2016 7:30 PM

I had a generic defect, treated from saliva, which shows I over metabolize benzodiazepine meds. And another generic defect (MTHFR gene) means I don't absorb & metabolize dollar (B9) so I take supplements.

Jul 03, 2016 1:08 AM

In case anybody reads this, I am feeling better about me today. Maybe? maybe? Magnesium is helping? I always hope any momentary reprieve will last...
What do you find

Think I need to keep trying to get the pain clinic to understand that the low dose combination of meds is Not helping me live better. Tramadol, Chloroxazone, Misoprostol, gabapentin, Dicyclomine, Escitalopram, vit D, magnesium, calcium...

Jul 03, 2016 1:12 AM

Oops... what works for you??

I've got MS, fibro, arthritis, bulging & torn discs, ++.

Jul 03, 2016 5:23 PM

I'm glad today is a better day for you. I've got all but the MS you listed. Having surgery on C3-4 in a month. Whoopee. Lol I should be a pro teaching the docs what to do! (Prep that is) Lol I hope tomorrow is a good day too, but just remember one step at a time. Hugs love & prayers! 🙂💕🙏🌼

Jul 03, 2016 10:19 PM

Yes, you should! Sometimes the docs don't even give post-op instructions (specific ones at least)!

Jul 04, 2016 1:04 AM

Flappsy... I have that same thing with the MTHFR Gene!!! Gee, are you sure we're not twins separate at birth... LMAO!!!💕🙏🏻🌻😊

Jul 04, 2016 1:44 AM

Hey autoimmunes! Is your fibro diagnosis definitive? I have the same agonizing pain. Every pain sensation imaginable and experience them all at once. But I have CRPS II. Have you heard of this by chance? A movie is coming out about this disease. Take a look at the trailer it's called 'TRIAL BY FIRE' let me know what you think?

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