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CatchMyPain Community and Pain Diary App to manage chronic illness

Vicious Cycle

Apr 03, 2016 6:26 PM

Hello, first off I'm new to the app so bare with me. I've been in chronic pain for over 15 years now and it's been tough. I'm currently without a pain management doctor due to loss of insurance. I'm disabled and unemployed, the insurance I have makes it very difficult to find a new doctor without driving 2 hours away. I just wanted to reach out and get a feel for this app. I appreciate the opportunity to vent. Thanks guys!

Apr 03, 2016 7:20 PM

Welcome! I don't know what it's like to not have access to a doctor (I live in Canada). I do know what chronic pain feels like and how nice it is to vent. What diagnosis have you been given?

Apr 03, 2016 7:36 PM

DDD, osteoarthritis and fractured T-11, T-12 all in my back however about 16 months ago I was hospitalized for a month with double Pneumonia and since my discharge I've had recurrent Pneumonia and bronchitis. I also have an IgG deficiency and severe asthma/allergies. My s.o.b is constant and simple tasks such as walking to the mailbox or taking my shower is a daily struggle. I've developed new pain symptoms due to my asthma. I live in Georgia and the guidelines for pain management here are extremely strict and honestly some are ridiculous. My husband is very patient and understanding but I'm really having a difficult time coping with the chronic pain.

Apr 03, 2016 9:27 PM

We have dealt with reoccurring pneumonia with our doctor. My husband is the same. Sometimes that is almost worse, I find. I keep a lot inside because of how understanding he is. He never complains about his health anymore. I feel bad about that. Just because I have more bad days than good doesn't mean he isn't allowed to have a bad day too. I've been having a hard time coping too. I'm fairly new to this app (2 months in) and although I've suffered from IBS my entire life, my new chronic pain all started in the last 9 months.

Apr 03, 2016 10:55 PM

WELCOME Help! I am happy to welcome you to our wonderful pain management support group..We may not share the same disease processes, but we do share common feelings, struggles, stresses, ,fears, and lots and lots of love &encouragement. Remember, You are not alone. We actually have some really fun times in here as well. Keep talking and sharing and before you know it , checking in with your new friends here will be as necessary as breathing! Can't wait to get to know you. I am dealing with quite a bit of spinal pain right now...it has been very taxing on my mental and physical energy. It has just been plain ole lousy. But, this too shall pass. Much love and Blessings, Terri

Apr 04, 2016 9:50 AM

Im so sorry for being such a bother to everyone and i promise i wont be a bother to anyone else

Apr 04, 2016 3:26 PM

Welcome to the community family! Bless your heart... GA is baaaad for allergies! I've lived here all my life and was 40 when I developed asthma due to allergies. It's tough here. I keep masks in my car in case I'm driving through burning brushfires/smoke or fresh cut hay areas. And pecan trees pollinate on mother's day, so I have to avoid going to see my stepmom because they live on a farm with 30+ trees. Lol. I've not had pneumonia or spine fractures, but I have everything else in common with you. They're trying to find out why I'm having sob with activity now. Insurance restrictions are bad here, and yes sometimes I've had to drive long distance for care. And my hubby's job provides insurance, but this year they've gone up in cost and restrictions.

Are you in or near a big city, or in a small town? Atlanta, Columbus, & Savannah use to be the places to go, but now many smaller places are growing in medical care options. Waycross, Dublin, Macon/Warner Robins, and Athens offer quite a bit. And even smaller towns are pulling doctors in 1-2x a month from larger places so patients have care. Mayo actually bought a hospital somewhere around Waycross, so before long that hospital will offer options like Mayo elsewhere. Research and see what might be available in indigent care clinics too.

Have you been checked for fibromyalgia? I've had DDD & OA since the 90's, but I developed fibro 8-9+ years ago (official dx 2012). Then last year sjogrens, both are autoimmune issues. Chronic pain can be overwhelming at times. After joining this community I've learned to do relaxation & gentle stretches, and I definitely laugh more. We all understand chronic pain. And coping skills have to be learned by trial & error of various methods, in order to find what works best for each individual. You'll find lots of suggestions and support just by asking. Hugs & prayers you'll soon be coping much better! 🙂💕🙏🌼

Apr 04, 2016 9:03 PM

Wow! We do have a lot in common. I to have s.o.b with exertion and asthma due to allergies. I'm allergic to grass, weeds, trees, mold and animal dander....especially CATS!
I live in Warner Robins, Ga.
I've never been evaluated for fibro but I'm starting to wonder.

My skin is tender to touch and my joints hurt, I have been diagnosed with OA in my knees and back.
I really appreciate this information. It's awesome to have ppl to talk to that can relate. My husband is very caring, understanding and compassionate but sometimes I feel as though I "bother" him with my health issues.
Thank you so much for your positive outlook!

Apr 05, 2016 6:43 AM

Hey Help! We do bother them, they are men...(giggling) they would rather , hmmm, I don't know what they would rather do ,come to think of it. Fish? Hunt? Have long periods of quiet time while sitting on the toilet? Dunnno....lol

Apr 05, 2016 10:29 AM

Terri, I see you have one too! Lol

Apr 07, 2016 7:27 PM

Omg...Help! I Iive in Warner Robins too!

Apr 07, 2016 8:14 PM

No way! Crazy stuff!👀

Apr 07, 2016 8:48 PM

Ok, same here. I've had a rough couple of days. Hope all goes well with PT. I'll email you tomorrow.

Apr 09, 2016 9:48 AM

Hope all is well with you guys. I haven't been on in a few, I've had a couple rough days!

I've had intermittent hand, hip/joint pain and stiffness in the past but lately it's become more frequent.
I was dx with arthritis in both knees and my back a couple years ago but most recently my ANA and ESR were negative for RA. The Naproxen my PCP gave me doesn't seem to work anymore. I feel like my docs are missing something. Things got WORSE for me after I was hospitalized with double Pneumonia (for a month) about 16 months ago.
Have any of you been dx with RA even after negative ANA and ESR?

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