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Nov 24, 2015 9:15 PM

It's seems my life now is just waiting... Waiting to be seen in the pain clinic, waiting to see a surgeon, waiting for a diagnoses. I have started a pain regime which is helping alittle but I don't like the idea of becoming addicted to codeine so am not taking it as I should... So I remain in pain. I can barely function. If I do to much I have a flare up of pain and spend 3 days in bed then slowly recover. Thanks for listening to me vent. I'm a bit lost. I don't know what to do to give my life purpose... I'm interested to hear what others do to pass time... It's so hard because I used to be so active and out and about... Now I feel like a recluse, hidden from society... Not participating... I can't commit to anything in case I have bad pain or a migraine... This isn't how I want to live my life ....waiting!....

Nov 24, 2015 9:22 PM

Oh my, I feel for you friend. What I do to pass the time is read (a lot) anything I can get my hands on be it fanfiction, a book or sometimes articles, I find it hard to read sometimes because it requires me to hold something up for long periods of time but I generally prop my book or tablet up on a pillow or just cry a little while I keep reading. I also spend a lot of time with my cats (I have 12 of them), I also spend a lot of time researching about cats because I love them. Otherwise I spend time with my family and friends. Oh, I also watch a lot of youtube. Do you have any hobbies?

Nov 24, 2015 9:43 PM

Hi I'm Greg. It seems we're all the same. I bought a Kindle ebook. and try to calm pain as i read I have 700 books on it , 3/4 you get for free. as i read I'll stop and lay down and mentally start at the fingers pushing a mental wave of calmness then to toes back to the top of my head until I've quieted down the easy area's I can't get through 1 leg as thats the main pain area and I can't feel it. it takes time to learn how to do it. but like you said we're pretty trapped to our house. So something else to try. Actually I can get the calm effect up a1/4 of my leg now a days, it doesn't work when nerves or pain is high. But it does give you a prolonged time calmness when you're slightly better. I'm in Darwin Australia. you in NZ have some of the most beautiful scenery in the world. make an effort I know easier said than done. but try . bye Greg

Nov 24, 2015 9:46 PM

Wow..you must be twins.. I've been here fornso long trying to navigate through Dr appointment, flare days , making family friends understand why I can't do what I use to do, feilding all the wut of oh is it really that bad, ect ect. Honestly I'm like you as far asy day to day.
I start early helping my mom care for dad who has two cancers I cook and plan the meals for family of five. When I can I do the shopping and run the errands. Then I catch up with the guys here chat with my boyfriend and friend back where I use to live and I watch TV. That is just about it.
I desperately desire my old life of being a pasrty chef living on my own doing my own thing.

Nov 29, 2015 2:40 AM

Thank you all for your responses... I do appreciate it! I am delayed in getting back to you all because I had such a bad flare up of pain then yesterday woke feeling better than I have in a very, very long time! I still have pain but a lot less, my head feels clearer and I've been able to do things!!!... I've done some housework, organised things and started doing a new mosaic piece for the garden! Since my earlier post I pushed myself to advocate for myself and find out why I'm waiting so long!... So I'm seeing my GP for a pain review tomorrow, am on the cancellation list for an earlier appt with the surgeon and found out why the pain clinic has not given me an appointment yet... Thank you all for helping me feel less alone. Wishing you all the best : )

Nov 29, 2015 10:13 AM

ChchKiwi, sometimes waiting is inevitable. But staying on top of things your doctors are supposed to do is important. Good for you taking actions and getting in sooner! I oppose you feel better soon. I'm having severe pain today from sciatica. πŸ™πŸŒΌ

Nov 29, 2015 11:01 AM

Flappsy, I'm sorry to hear about your sciatica. It's rough, I know. My niece was SO excited to see me that when she hugged me hello and goodbye, she cracked my neck and I've had a blaring headache ever since Friday. It's bordering migraine and I'm trying to not let it get that far but today I'm losing some ground. It'll be ok like it always is. The rest is the entire house is sick😷 and I was just getting better. Now I have a cold, aches, fever, chills πŸ€’. Ugh, I've had enough of this crap, but I am at least sleeping here and there. Sending {{{Hugs}}} and prayers to all for a peaceful and less painful Sunday.πŸ’•πŸ™πŸ»πŸŒ»

Nov 29, 2015 8:21 PM

Hugs, rest & prayers! πŸ™πŸŒΌ

Nov 30, 2015 3:42 PM

OMG this has so been my life for the pay 12 years it really sucks doesn't it the day I drive to my sisters wedding and a guy opened his car door up while I was driving past with my family in it was the day I got migraines every second week vomiting excruciating pain and then I find out 10 years later I have nerve damage down my neck my doc didn't organise an MRI so I couldn't get any compensation I went to see about getting compensation a couple of years ago when I found out this is what is has been caused from it really sucks as I've had to struggle at work ever since that day I really feel for u πŸ’œ

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