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Waking up every hour or two

Sep 02, 2015 7:02 AM

Been diagnosed with Ankylosing Spindylitis for seven years as well as degenerative arthritis from sports my whole life.

In the last few months, I have not been able to sleep more than an hour or two without waking in severe pain- despite sleeping pills. My doctor told me this fairly common.
Any suggestions?

Sep 02, 2015 8:02 AM

Hi Paincrusher - I dont have Ankylosing spondylitis but I did a little research on it after I read your post to find out what it is and it sounds a lot like rheumatoid arthritis which is what I have. They are both autoimmune diseases. I can sympathize with what your going through right now. I was in the same situation with severe pain effecting my ability to sleep. I think I'll always have issues with that to some degree but its not as bad as it used to be since I started treatment for it.

Do you see a rhematologist? Are you on any kind of treatment for it to control the inflammation?

Sep 02, 2015 8:02 AM

Paincrusher, I am in the same position. I've been dealing with chronic, unbearable pain for 22 years. I always exhausted and I get only 1-2 hours of sleep a night myself. I have not slept in a bed in over 8 years and sleep in a recliner now. That has its own drawbacks such as not being able to roll over ore really change position. I, too, take sleeping pills but they don't keep me asleep because the pain Wakes me. I try to listen to quiet music or meditate when I can't sleep and also do deep breathing exercises. It doesn't always work but it does help settle some of the anxiety I suffer from not getting enough sleep. Sometimes I get up and walk around, do some gentle stretching and many times swear a lot because I'm angry that I can't get to sleep and I feel like I'm the only person awake and that everyone else is sound asleep, cozy in their beds. It is common to lose sleep when you are in chronic pain, it comes with the territory. However, there are things you can do to help yourself get a better night's sleep. I haven't found anything that has worked for me yet but there are many folks here who I am sure will be able to give you tips. I wish you the best. Welcome to the community!!

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