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Walking aids Fibro?

Jun 28, 2015 4:53 AM

Last night my knee gave way and I almost fell to the ground (thankfully I was in my flat and next to a sofa) it was really painful right from the hip down to the foot on that leg afterwards, I had to take strong pain meds just to get to sleep, but is ok this morning (still a little painful but nothing like last night)
My question is, when did you start using something for assistance? Because it can be fine one minute but I'm scared that what happened last night will start happening when I'm out :(

Jun 28, 2015 8:28 AM

Sarahjane, When I saw my neurologist in November he identified whole right side weakness in my arm & leg. I suffer from vertigo and dizziness and told him sometimes when I walk I better sideways into walks of doors. At that time he told me to start using a cane of walker for stability. I laughed at him and said "no thank you."

Over the holidays I took a bad fall twice because of dizziness. I now use a cane especially in public, and I have a basic walked in my house and a rollator in my car, in case I needed them. And when I'm having asthma issues I use e-carts at stores that are too large for me to walk. Since January I have been having tremors all over and rubbery feeling (jello) legs sporadically. Hand tremors are every day. I'm no longer too vain or proud about using whatever device I need, even at 53. You do what makes you feel safe and comfortable in walking. I'm lucky I didn't break a bone when I fell.

Advice on rollator... Go where you can try them out. I at in 6-7 different ones. I found out real quick that only one adjusted the seat height as well as adjustable handles. It's by Drive Medical. I'm 5'3" and the ones without an adjustable seat made me sit to high where my thighs sloped down towards the floor. It put pressure on the back of my legs, hurting. Good luck & be careful! πŸ™πŸŒΌ

Jun 29, 2015 1:47 PM

Thankyou for the advice, I'm only 28 and my pain is quite mild most of the time thankfully. I only really suffer at the moment if I overdo it on the housework, and after work it can be quite bad because I'm on my feet all day. I get the odd shooting pains which stop me in my tracks, but it's pretty manageable otherwise.

Jul 03, 2015 2:48 AM

I used to be able to walk unaided but then went onto a stick. This progressed to crutches but normal ones which I couldn't manage cos of my wrists so I bought Smartcrutches which I loved. Unfortunately pain and vertigo now mean I have to use a wheelchair when outside. Just wonder when it's gonna end.

Jul 03, 2015 7:23 AM

I get the vertigo too sometimes. At large stores I use an electric car, because I can't walk them z anymore. Sometimes I can bend over to pick something up, and when I straighten up wham... Woozie dizziness! Fast walking does the same, of turning my head too fast. I'm learning to do everything much slower. And i don't ever think it will end, only get worse. πŸ™πŸŒΌ

Jul 03, 2015 7:42 AM

Flappy.. I used elec car today in shop and whilst I was going about I developed the puling feeling of my eyes and blam double vision happened. I seem to develop this anytime now esp when tired. Get exhausted very quickly. Not sure wot going on :(

Jul 03, 2015 7:46 AM

Have you seen a neurologist that specializes in dizziness and movement disorders? That's who I'm being sent to at Mayo. God be with you and get you through all this! He is my strength & support. πŸ™πŸŒΌ

Jul 03, 2015 11:55 AM

Sarah I got a young German Shepherd dog that I trained to be my service dog to help me with my stability.good luck.

Jul 03, 2015 12:32 PM

I used to be able to walk unaided and then went to a cane for A long time. With the pain in my shoulders, hands and wrists, I couldn't lean on the cane for support or balance so I stopped using it. Now I just have to make sure I watch where I'm puting my feet and I have slowed down quite a bit. Sometimes there just is no easy way. I take one day at a time, sometimes one moment at a time. The wonderful thing is that I have all of you here to "lean" on and bitch to and vent with. This is a great place and it sooths my soul and my nerves. I hope you all have a blessed and peaceful day with less pain.. You're in my prayers πŸŒΊπŸ™πŸ»πŸ’•

Jul 04, 2015 1:02 AM

Thankyou for your replies.
Weezie - That's such a cute idea but can't have a dog for various reasons.
Alwayzinpain - I find this very soothing as well, it's lovely having people to talk to (although it means that you're all suffering too which isn't all good)
I went for a walk after work yesterday, and on an uphill part, my lower back downwards was absolute agony. It was like a horrible burning feeling as if I'd walked for miles and miles and miles... But it had only been 5 mins in. I was holding onto my partner for support, although still didn't think I'd be able to get up there!
πŸ’™ gentle hugs to all

Jul 04, 2015 6:43 AM

Wish I could make everyone's pain disappear. I hate that so many of us suffer. Wish they'd find the answer to all this so our suffering wasn't in vain.
I drove too far yesterday. I shouldn't have agreed to it. 😞 I hurt massively today and my breathing hurts. Happens every time I do too much driving.
It's afternoon here and I'm in bed. Had a poor night and feel wasted.

Sarah Jane, I now rely on two elbow crutches when outside but rarely use them indoors. I'm too stubborn to admit my need for them in my own home. I use the walls a lot instead. My walking is crappy now. It's gone downhill so fast. Just over two years ago I was walking anything up to 10 miles easily every other day. Summer last year the crutches had to be added as I could no longer walk evenly.
Last week a short walk that should have taken 15-20 minutes took me an hour and a half. I've gotten so slow! I refuse to stop though. I won't let this beat me.😠😣
My mother suffers from ME. She became so bad years ago that she ended up in a wheelchair. The doctors said she would need it for the rest of her life, that she would never walk again. But her stubbornness got her out of it and walking. Over time she relearned to walk and move without aids. Now she does better than I do by a long margin.
The point is, no matter how low this condition takes us, we can fight it and we can win. Even though right now it feels hopeless and there's no light at the end of that tunnel, it is there. You just have to keep fighting.

Jul 04, 2015 8:18 AM

PJB - It is such a shame that so many of us are here suffering. I still sort of deny it sometimes, then do something that really aggravates it, and come back to reality. That at my age, I can't do as much as someone of my age and even older can. My nan is 80 next year and still walking around everywhere!!
I still go out of my comfort zone though, because I have to, to show my children not to let things get to you, and to be outdoors with them. I'm going to do that for as long as my body let's me!

Jul 05, 2015 5:40 PM

Good for you Sarahjane87 sometimes a bit of bloody mindness doesn't hurt but there's also part of being strong when u take aid and give your body time to recuperate. I've been fighting w/chairs crytches and walkers well I'm only 47 but had to give in. I cab do more in the long run by accepting defeat than pushing thro. Hey a walker on wheels is great tool for shoving the laundry basket across the floor!

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