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Well Meaning Friends and Coworkers... Please STOP!

Feb 25, 2016 8:35 AM

I do thank God for every new day He gives me. Each morning I wake with the same pain that I went to bed with. Up and down all night long. I wake feeling as if I have gone through a battle, fatigue, hurting, most certainly not refreshed! Today I have to go into work...where my well meaning coworkers will have all the cures and solutions to my illness. Where there will be articles on my desk...and knocks on my door with people who have no medical credentials telling me what I need to do to be healed. Or telling me about their fifth cousin removed on their great great grandfather side drank donkey pee and was cured of the same thing. Please Stop!
I would like to have woken and got up without this headache, pain in my arms and legs, weakness in my legs that cause me to struggle to get to the restroom like a 110 year old woman...having to have bars on my toilet so once I got down there I can get back up with much struggling. Overstepping the dribbles of urine I couldn't hold but must now clean up. I would like to go to the kitchen for a nice cup of hot herbal tea without having to rest and take a break because of my leg pain... And just fix a simple breakfast ...like pancakes, a smoothie, without changing my plan and having hot oatmeal because my legs just won't let me do more than that today... Have to eat so I can take my boat load of meds so I can halfway function today. Looking at the sink full of dishes that I tried to do all day yesterday but the pain in my arms and legs said not today. I'd like to get that load of clothes out the wash in the basement that now has to be washed again because it has sat too long because if I got down stairs I stood the risk of being stuck down there.
I have some papers I need to submit that I put away and now can not remember where because my memory is not as sharp because of this illness and all these meds I take...just frustrates me too no end. And my hands are shaking like a crackhead going through withdrawals which makes it hard to even send this post. But my well meaning coworkers will have an answer for all of this for me today. I want to say... Please Stop!
I am grateful for this day...that I am alive, that we did not receive the amount of snow they predicted. I am thankful that I have a job to go to although it doesn't provide all my financial needs it does allow me to keep a roof over my head. I am blessed that in spite of my struggles I am still able to live alone, dress myself, and drive. I know God loves me because so many of my needs are met. I am thankful for this forum that I can just "get naked" and not feel judged and share how I am feeling for this moment and not worry about one of you knocking at my tablet screen to tell me I am not feeling what I am feeling right now.
So it is time to hobble back to the kitchen to get out that yummy oatmeal so I can shovel down all those meds so I can transform this body I am trapped inside...and would like to leave in the bed at home today.
I do not even know if I have made any sense here this morning.
I guess I am just a little frustrated... But still grateful...if that makes sense. I could be so much worst...I thank God I am not.
I pray grace and peace to all of you today. Thanks for your precious time. One last request...would you call my coworkers and tell them to Please Stop...just not today.

Feb 25, 2016 11:27 AM

MySistersKeeper, you have made total sense. I understand and feel each and every word that you struggled to post here today. It's very frustrating. People here things on tv about all these "miracle cures" (like the donkey piss from the 5th cousin removed from the Great Grandfather) and they think that if they just "share" that information with you, you'll get all better!! I prefer to think the reason that these people do this is because they don't want to see us suffer and are trying to help. What they are not thinking about is our journey.. Do they not think that we've gone to every doctor imaginable to try to get rid of this pain, had tests that are sometimes worse than the problem itself, taking these meds that have their own set of effects on us.
I don't know how long you have worked at this company but perhaps if you speak to these people.. Don't wait to calm down, don't hide your feelings.. Tell them that you need it to stop!! Tell them that although you know they're well intentioned, it doesn't help you and makes you feel bad. These people can't read your mind and if you take these things and don't say anything, it's almost an invitation to them to offer more and more advise.
I wish that I could make things better for you. I'm glad that you feel as comfortable as you do that you can come here and bare your naked soul and vent these feelings that weigh you down. That is exactly what we are all here for.
The fact that you thank God each morning for another day and all you're grateful for is a good thing. I know what you mean about feeling "trapped" in a body that doesn't work and things piling up that you just can't do. And it's true, at the time, you CAN'T do it. I am sending you much love, gentle {{{Hugs}}} for support and prayers that you find your way through this day without the frustration of these well intentioned co-workers leaving articles on your desk. 💕🙏🏻🌻

Feb 25, 2016 6:22 PM

You need actual support, magic cures are usually attempt at help so if you help them undertand how to give help better it might stop but maybe not i find most people are better at talking than listening. You have us to vent to at least :) *hugs*

Feb 25, 2016 8:08 PM

Went to work today and on my desk was a diet book!

Feb 26, 2016 3:01 AM

OMG, sorry. But I am sitting here at 4am reading these posts and laughing my ass off! The humor I s what keeps me going, otherwise I would jump in front of a bus. We must work at the same place!

Feb 26, 2016 5:07 AM

Really touching post. I relate to all of this. The description of daily life is spot on. You can tell them to stop.explain why. Rant a lityle. Remember they do it because they care.

Feb 26, 2016 11:52 AM

I can't believe you walked in to find a diet book on your desk!! Did you find out who the culprit was?? I have to say, like I did in my precious post, most don't want to see you suffer and do want to help but you have to let them know they are going about "helping" you in the wrong way. It's the only way it's going to help. Let them know that a supportive ear or a walk at lunch on a nice day or just a distraction would be more welcome than all of these so called "cures" they find on the Internet... By the way.. Don't give Terri their number, it wouldn't be pretty for THEM.. LOL!! 💕🙏🏻🌻😂

Feb 26, 2016 12:04 PM

Terri, you kill me. I was laughing so hard when I saw your post about wanting the number.

Feb 26, 2016 2:18 PM

Lol , ahh come on , I need to take care of my sister's keeper! I need the number, I can help, this is something I can do...lol

Feb 26, 2016 2:19 PM

LOL!!! Those poor people.. I'd love to be a fly on the wall.. Oh, go ahead and give Terri the number!! LOL!! 😜😋

Feb 26, 2016 2:21 PM

Yea that's what I talking about! I can do this..they will shut the hell up and start bringing her lunch and gift card for massages! Maybe I can even throw in a pedicure!

Feb 26, 2016 2:33 PM

I ready to get countretto that's ghetto+country on their a$$! People are just rude and have no empathy at all. They don't know that the meds we take causes us to gain weight. Please give Terri the number and me the address, floor, cubicle number and all.

Feb 27, 2016 1:02 AM

You all crack me up!!! Absolutely love it.... You make their attempt at showing love? bearable! I throw the diet book into the fireplace ....that's good use of a unwanted gift.

Feb 27, 2016 9:35 AM

LOL, definitely a great use of it!
So frustrating to have "helpers" like that. I hope they can learn to TALK with you to learn how to help you instead of trying to shove quackery down your throat!

Mar 05, 2016 7:29 PM

Flappy, I am forwarding that on to my darling coworker! : )

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