I had infertility issues for years before adopting three and having one surprise. I was (and continue to be) shocked at the questions people would ask me. People I hardly knew would ask deeply personal questions - often. I came to realize that they asked because my situation was so far beyond their personal experience that they didn't realize how inappropriate it is to ask those types of questions. Sometimes curiosity overrides good judgement.
I think it's the same with chronic, invisible, illness. Until you've lived it, you just don't get it. I've found that if I have brief, fact based, answers prepared ahead of time I usually do ok in explaining my illness while being diplomatic enough not to offend.
However, for the people closest to me, I educate. When I find a good meme that reflects my struggle, or an informative article, I forward them. Sometimes it's easier for our loved ones to insist it's all in our heads. Remember that this isn't just happening to you. Chronic illnesses impact your entire family, your circle of friends and so on. They are grieving for your old life, too. Facing this reality can be deeply frightening for all involved.
I feel like I have limited options. I can ignore it, or I can educate. To be honest, I ignore it a lot more than I educate.
FatiguedFighter said it very well. There will always be those who don't, don't care, or even question or sanity. We just have to try and help those who really care to understand. My hubby didn't understand until I started having him go with me to appts. Doctors helped him a lot. Hugs love & prayers for strength, courage & wisdom to help you get through. And we are all here for you, was understand. 🙂🙏💕🌸