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What else could it be?!

Mar 03, 2016 2:21 PM

I was at my doctor today in my usual tears and I just don't believe I only have fibromyalgia. I think there is something else going on with my back on top of the Fibro and I have done for years now but now I have been diagnosed with Fibro they are happy to stop investigating there. It's not that I WANT anything else to be wrong but I just feel there is a lot going on in my back. I can tell what kind of pain I get with Fibro but then I get a different kind of pain like I'm experiencing at the moment again and I recognise a big difference in the type of pain. MRI scans have been clear apart from a herniated disk in my neck. I'm certain there is more to it.

Mar 03, 2016 2:29 PM

Have you had contrast mri of your back.

Mar 03, 2016 2:30 PM

Just herniated discs alone can be the reason for the pain...following you have a neurologist?

Mar 03, 2016 2:35 PM

No I haven't. Are there many things that show up on a contract MRI that wouldn't normally be seen on an normal MRI? Or is it mainly to give a clearer image? I must suggest thins to my GP.

Mar 03, 2016 2:36 PM

Terri I have asked to be referred to Neurology.

Mar 03, 2016 2:40 PM

I'm new to this site. I also have fibro n also lupus. I have waited19 yrs for them to look in to the fact it could be something else. Only you know the difference in pain but I would tell the doctor what u want to look into and also asks for blood tests. You deserve to be treated with respect and the fact you know your own body.

Mar 03, 2016 2:47 PM

The doctor today seemed to be more focused on my mood as I was crying. If course my mood is lie I'm in agony, have been for years and they are still not listening to me. It's like u say I know my own body and know the difference in my pain. I asked to be referred to Neurology ages ago and still haven't heard anything. They wanted to even put me on more medication today. It's shocking to me how willing my doctors are to throw medication at me but won't consider the possibility there could be something else wrong. I'm trying to hold my job down so I had to tell them I don't want any more tablets to add to my already extremely long list I want answers.

Mar 03, 2016 2:48 PM

Of course my mood is low I mean - typo!!

Mar 03, 2016 2:58 PM

Have you tried something called biofeedback? Ask your doctor about it or research it yourself. An immediate thing to do is to buy a good tens machine. You can wear it under your clothes and it is amazing to help with back pain. Hope this helps

Mar 03, 2016 3:58 PM

I have never heard of it. What does it do to help with the pain? How does it work?

Mar 03, 2016 5:27 PM

SpiritualGirl, I have DDD/OA, bulges, herniation, tears, and facet stenosis all along my spine. And I have fibro. The doc should understand that fibro isn't the cause of spine pain, as fibro affects the soft tissues rather than the spine. Have you had any blood work that shows inflammation? If so they should be looking into that too. I've done PT to help strengthen weak muscles & legs, and I can tell it's actually helped my low back some. Of course it's also aggravating the sciatica too. I see my Ortho doc tomorrow and I'm going to let him know it.

Are you on cymbalta for the fibro? If so, has your mood and/or pain worsened since you started it? The reason I'm asking is I was on it 6 months when my mood declined and I became an emotional meds, while my pain increased. It was all side effects from the cymbalta. I did epidural steroid injections for my spine pain, 2012-2014 and I still have a lot of relief, although the sciatica & cervicogenic headaches are slowly returning. Sending you hugs, love, & prayers that you can get the doctor to listen to you and investigate further. πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 03, 2016 6:23 PM

Thanks hun, that's why I keep pushing it as I just know this back pain isn't down to Fibro. It can't be. I haven't had blood work to show inflammation or anything they sent me to Rheumatology who had a chat with me and then done tests on my pressure points and diagnosed me. My herniated disc only showed up in an MRI which was for my headaches. As soon as I got diagnosed with Fibro it been a closed case as far as they are concerned. I am now on Vensir XL for my mood as the previous one Duloxetine wasn't helping. They want me to continue with the Vensir XL to see if it starts to make any difference. I just feel my mood would lift if the pain was managed. They refuse to give me steroid injections due to me having opsteopenia. The pain clinic did give me Botox injections in my head for the headaches but it hasn't helped. Maybe I'm living in a dream world but I just think there is something and if they could only figure out what it could probably be a case of a simple tablet that will settle things down instead of this crazy cocktail of drugs I have been prescribed - or maybe it's just wishful thinking. I really hope ur sciatica and headaches don't return fully on u! Sending u lots of prayers also. It's hard that once one thing seems to improve other things return or get worse. I'm visiting Los Angeles in June and I want to be well enough to enjoy my time there. It's my wish to move to LA and I think the weather alone would seriously improve my health. πŸ’–πŸ‡ΊπŸ‡Έ xx

Mar 03, 2016 6:36 PM

It took me 2 years+ to get more tests to prove mine was more than fibro. It was just a fluke oral rash that kept growing (not yeast-thrush) that they biopsied and found I have Sjogrens, and also hypothyroidism. Both those & fibro share many common symptoms, and all are in the auto immune category. Keep a journal of every symptom, and keep pushing. Get a second or third opinion from doctors elsewhere if needed. Good luck & God's blessings for answers & treatments. πŸ™‚πŸ’•πŸ™πŸŒΌ

Mar 03, 2016 6:51 PM

Thank u so much. I will definitely keep pushing this time as I cannot go on like this. Something needs to be done. xx

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