Hi guys, I've had spine surgery for my scoliosis and now suffer with chronic pain..I've tried lots of different medications,exercises,pain machine, I want to know what helps your injury? Please help me out.
& has anyone had a positive experience with marijuana??
I wish I had a magical answer for you. I have scoliosis, thoracic Spondalytic myelopathy, degenerative disc disease, spinal Spondylosis, degenerative joint disease among other things. I've had 26 surgeries in the last 20 years, have had physical therapy, massage therapy, trigger point, bio feedback, injections, etc.... I'm on heavy duty pain meds. You need to find a good pain doctor and make certain he/she listens to you and understands where you're at. I wish you the best.
I also use a TENS Unit and I'm on 100mg of morphine 3x a day plus 30mg oxycodone for breakthrough pain... I have others as well but try to limit my drug intake because my pain is still between 7-8 ON my meds.
I would like to say that pain pills help. They did for a while, but their effectiveness wears off. I had to find a new way to deal with the pain. I found that heat was a good source. But I was thinking how my going to carry that around all day. Then I found the thermacare wraparound disposable belts for your back. They are so so awesome!!!! They make my pain so much more dealable. I don't know what I would do without them. Another product that I've found that helps me a lot is Biofreeze. It is a spray that I found you can buy cheaper on Amazon. I'll admit, it is a little costly. But for bad pain it is well worth it. Those things you can get over-the-counter. The last thing you need or you need to get from your doctor a prescription. It is called a tens unit. I am sure many people on this support group have mentioned it. But if the electrode patches are placed in the right area you can block the pain signals from reaching the brain. And that will really take care of your pain. I have found that really effective along with those other things and I have mentioned. I don't know what I would've done without them. The medicines that doctors offer just don't enough. So we need to search for alternatives. I am always searching for new things to help my pain. I am looking right now into a handheld ultrasound device to help my pain. I decided to do that because ultrasound help me so much when I went to physical therapy. It really reduce my pain. So I'm thinking this device even though it's not as strong. Another product I'm looking into is an infrared heating pad. I am told that the heat goes deep within you like 1 to 2 inches. This will really help my shoulder which the socket has no Cartlidge anymore and is bone on bone. And would greatly help the back. The things that I'm looking for I do not recommend yet. But I'm just saying we need to be proactive in looking for things that will help us with our pain because doctors are not going to always tell us everything out there that's going to help us until somethings been studied for 10 years before they'll tell their patients that it's okay to use. We need it now!!
Thank you so much @ Alwaysinpain, I'm sorry to hear and I wish you the best also. Yes I've tried a TENS Pain machine but that doesn't seem to help me at all :(. Yes,I'm in Australia and kind of hoping marijuana becomes legal so I can see if I get some pain relief.
@profiler wow,thank you for all your information and advice, I wish you luck. I have tried heat..it doesn't seem to do much for me and you're right how can you carry it around all day, yes I feel as if pain medication wears off. I'm going to look at getting that belt you spoke about and the bio freeze. Yes I know, we need what we can get and pain is so unfair.. the worst things always happen to the best people.
Profiler is absolutely correct... We all have to be proactive in our care for the pain we suffer. I am currently looking into acupuncture again (did it for a while, it is costly, it didn't help much after a while. Perhaps I need to find a better acupuncturist). I've also ordered a book that a member of the community mentioned which deals with trigger point. I've had the injections but they were very painful and the relief was minimal. I do, however, use Therma-Care Patches (all of them from the belt to the smaller ones for my neck and shoulders. My shoulder also has no recognizable joint left and now my right shoulder is degenerating in the same way the left one did. I'm also looking into the Tommy Copper compression gear. Everything from gloves to sleeves, knee/ankle supports as well as actual clothing from underwear to shirts, etc... I'm working on meditation, breathing excercises and possible hypnosis. However, we all have to begin somewhere. I'm in the 20th year of this horrible daily pain so I've been through a lot of things to make it better.... And, yes, narcotics wear off more and more quickly over time. There are MANY of us here and I'm sure there are more folks that may have thought of things we haven't. Oh, another thing I've been doing is being careful of what I eat. No gluten, using several FRESH/ORGANIC herbs like sage, basil, Rosemary, thyme, etc.. There are also other foods such as fruits and certain veggies (super foods) that can aid in helping reduce inflammation, boost our immune systems and help to heal our bodies in a natural way. Hope that you find help to ease your pain because being in pain 24/7/365 really sucks... The very best of luck.
I think that is a good point Alwayzinpain. I am currently looking for information on what foods aid in causing my inflammation. I have heard about it but have never given it the attention that it deserves. If I were smarter, I guess I would have done it a long time ago. It may have helped me have less pain. But sometimes it can be so overwhelming. But I need to learn these things and the foods that reduce inflammation because my body becomes inflamed often. My sed rates get high. I can't get the Rheumatologist to look at it but the test show it so I have to find some way to treat it.
@ Alwayzinpain, I have tried 3 sessions of acupuncture and it did nothing but make me sleepy, yes it's kind suppose to relax you but my pain level didn't decrease. I will look into what I eat, I take OPC for my inflammation. Yes pain sucks! but things that work for someone may not work for someone else..unfair. Thank you,good luck to you also. @ profiler, hell yes it can be overwhelming. A suggestion is OPC for inflammation it didn't change my dramatically but I have less of a burning sensation now.
Tumeric, certain types of cactus and certain types of chillies can help inflammation. So can getting good nutrition generally, involving watercress in your diet can have amazing effects (others experience not mine but watercress did help me with my general health a bit )
I like to help others if i can, haven't found anything myself yet but... I will someday. If you would like some more advice (in a lot of pain now) you can email me at: firstname.lastname@example.org Or kik/snapchat me at reecebrowne1 And if you talk to me on one of those we can even organise a Skype call whether voice or video or text. I just want to help people. Put the title to the email as "from catchmypain" Hope I've helped