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What is this? Help predict my ailment! 🤪

Jun 20, 2019 7:00 AM

Hi everyone,
Background of me:
35yrs old, fit and healthy, Hashimoto’s thyroiditis, worsening sporadic joint pain last 5 or so years. Now more frequent than not.
Affects wrists/hands, knees, ankles/feet and lower back. Rheum diagnosed poly arthritis and said this may change over time to RA.

Now I’m having a flare, I’m so tired, I am extremely sore at night, during night and on waking until I get moving. I am almost locked up, especially my back. I’m currently wearing back brace and feel so much more mobile with it on.

This weeks bloods (6 vials testing everything under sun) came back “normal” this included inflammatory markers and HLA...so why am I in so much pain and so restricted all over!

I’ve had random days where my entire skin feels bruised and face puffy and extra tired but it passes in a few days.

Given my autoimmune history any suggestions??

Thanks guys!
Ps: yes I’m heading back to rheum just curious if I sound like any of you!

Jun 20, 2019 7:48 AM

Hi K Caust I’m Shore nice to meet. You Welcome to pour community. I do feel the pain in my Lowe back in the mo to and st night and when I’m resting up .
I’m getting my follow up in July 17 from my back injection. Sometime o do feel like not going any where bc of my pain .
Others here where I live say I should go out I do go out they just don’t see he at the times I do.
I’m going out this morning soon in about hour for errands and my fiancé dr visit them I’m going to bible study’s this afternoon.
So yup I feel restricted at certain times .
I hope that you feel better and get your answers to . Hug gently Shore❤️🦋🙏🌈🤗 if you ever need to Beth it chat I’ll write back ))))) later

Jun 20, 2019 7:50 AM

Hi oh btw I do have thyroid troubles to but manage it )))

Jun 20, 2019 7:56 AM

Oh this is what I have I looked it up I have Hypoparathyroidism hug gently had to tell you what I have late Shore ❤️❤️🙏🙏🌈🤗

Jun 20, 2019 10:53 AM

KCaust, welcome to the community. I've been here since the community was under Catch My Pain (now Pain Companion), and have learned many things from talking with others and doing research. It's very common for those like us who have autoimmune (AI) issues to develop more AI issues. I started off with hypothyroidism and fibromyalgia (which many doc's consider AI), and then was diagnosed with Sjogrens and an AI skin rash issue (scales form, itch then peels...over & over). Your symptoms sound like my fibro & Sjogrens, but only a doc would be able to diagnose it. Surprisingly my Sjogrens was not diagnosed by bloodwork, but by an oral cheek biopsy (painful!!), and only because a white rash appeared and wouldn't respond to various treatments over 4 months. At the time my pain was off the charts, muscles and joints. Once I was diagnosed with Sjogrens and started on plaquenil it cut my pain by 2/3rds (except in flares). I have since realized I've had Sjogrens symptoms since I was a teenager, but never having heard of it until diagnosis...yeah.

Some suggestions I learned from others and trial/error:
Keep a detailed journal of your daily symptoms and treatments (meds, stretching, showers, dietary changes, etc). Then show your rheumatologist and your PCP. The more details they have the better.

Jun 24, 2019 2:19 PM

Something I did that worked wonders was the lifestyle change of clean eating. Mine style is modified paleo. Also, I am looking into seeing a functional medical doctor. They run some labs that a regular medical doc won't. Regular medical doctors fear the pharmaceuticals and insurance. The functional don't deal w either.

Jun 24, 2019 2:28 PM

Hi Zetarlov Hug have a nice day Shore 🦋❤️❤️🙏🙏

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