When the pain is the worst, and no pain relief or alternative therapies have worked, and it's just you and the worst pain imaginable. What gets you through? What keeps you sane? I think of my daughter, and how I need to get through it for her, so I can take care of her. I'm interested in what keeps you motivated to get through the hard times. What's your coping strategy when every thing else has failed?
Much like you it's my children that push me to get through the day. My eldest is 9 so is aware more than the other 2 girls when I'm not feeling well, she's a star. She helps me so much that that then drives me to do what I need to do for them.
I try to tell myself that pain is no constant thing so I always hope tomorrow will be better. Mindfulness or resting helps sometimes. And my kids are my motivation too. However, when it's really bad, I guess my husband keeps me sane by taking over tasks. One other thing by the way that keeps me on earth a bit is doing something creative. It is a challenge when in pain to find out what is possible though. Or watching my favourite series. Good luck to you all!
I’m single and don’t have children, so I just put it into my passion, photography, I’m a Getty images and press accredited, and it’s the one thing I can really loose my self in. All the best of luck to us all.
I do my best not to focus on my pain and do fairly well, until it's above an 8. I read, listen to music, watch a movie, do relaxation, play brain games like Sudoku & Scrabble, color & occasionally cross-stitch (arthritis makes that pretty difficult now days), but most of all & always pray and trust God for the strength & endurance to get through.
When I feel well enough, being around a few of my favorite people helps to take my mind off the pain. It’s amazing how different people make me feel. By the end of some encounters, I’ll be drained and in much more pain while at the end of others, I’ll feel better at least emotionally.
Hello. New to the app and community. I downloaded to document pain and help with my own notes. I have been reading through some of the topics and post and feel the need to answer though I am a month late. I will probably need to read my own advice a month/2/3 months from now. Like many above my wife and kids. Myself. All friends and family faces in my head keep me going. I don’t wish to let any of us down. When I am at that consistent 7-10 days on end I have to usually sweat it out...and swear it out. lol. I focus on my drive. My Hope to getting back to who and what I once was. On some levels when my pain has just overwhelmed and exhausted me I do finally break. Mentally and physically. I have researched and analyzed every possible reason for my disposition and I have just curled up for a few days just practically beyond reach as far as communication with others goes. I will practically stop wanting to take my meds or even eat. No movie, book nor song can fix it and then I seem to snap or something does. Outer body type experience that I wish I could be without but that is not the reality. I think focusing on the present and on myself and my needs only get me back to functional. Hard value to learn and do but I now know what end results will be if I don’t take care of me then tackle the rest. Amazed i still am here and that the world is here whenever I go into that dark place. Hard to explain. Usually a lot of tears cried out no matter the route I go. Setbacks for me have been hellish. One of my problems to start off with in the first place has been understanding how to describe my own pain and find any consistencies good or bad to help me manage pain. I think it is probably important at least from my perspective to keep trying to figure a lot of this out on my own. To continue to have faith that be it through the hands of a Dr or God almighty or however that today will pass and tomorrow will somehow be better. Or at least I somehow better for it. That last part I may not ever come to grips with no matter what as I have missed too much life at this point due it already. For the past few months I have simply hoped that I will be able to smile and share the holidays out of bed. It’s my goal. It’s my focus. On good days and on bad ones. Maybe the answer is to just have one goal.
I only began having this god awful pain a few months ago. On October 2 this year I had surgery to repair herniated disc and when I woke up from surgery the agonizing pain was gone! It was the most wonderful thing and I was so happy thinking that little problem was solved. Not! About 8 or so days later the pain began creeping back and is now as bad or worse than before. To get through the pain and not go completely insane, I just am trying to remain determined that somehow - maybe a different neurosurgeon? - this problem causing the pain will be fixed. I am almost 63 years old and determined that I am going to have an active and happy and pain free old age and I will not accept there is not a solution to this. Who knows - maybe the neurosurgeon who did surgery didn't do something right or left something that should have been removed? It is distressing that what I thought worked and ended pain didn't but there has to be some permanent solution to this problem.
I hear you @Laus. I do infrared sauna 1-2 times a week, acupuncture 2-4 times a month, I dog sit - animals help, watch the Golden Girls (laughter helps), I look at pictures on my phone that make me happy. Anything NOT related to the pain or my illnesses is helpful - YouTube videos on makeup, skincare, car reviews, dog breeds, movie reviews. I make sure to make a plan for every day - even if it’s as small as showering and making lunch. I give myself things to do. Just because I’m at home doesn’t mean I have to go insane.