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What not to say to a Dr.?

Feb 13, 2016 8:04 PM

So I've heard a lot of people haveing letters coming and issues with disability. I'm in my first appeal process and waiting nervously. So what would u suggest I should or shouldn't say to a Dr.?
Example: of I get the pain under control I can go back to work?
I walk a mile a day?
My pain keeps me in the bed or house everyday.
The fatique is overwhelming I just wanty life back.

Most of these all thinks I feel I want my life back. But the life I have now I can barelyake it to the mailbox. I always give my best and do t wnt to give up on anything. But it would seem if u do give up then maybe they will hear u better. I'm.not trying to cheat anyone or be dishonest. I just so der if its the things I'm saying that gives them the idea that I'm not as in as much pain as I am.

Feb 14, 2016 3:38 AM

I would just be honest with my dr. I have been, I have filed for disability and I just tell him like it is.

Feb 14, 2016 5:14 AM

I use to tell the doctor I really wish I could go back to work but I can't handle the pain. That I loved my job. So they got they feeling you had contentment in your work and you were not looking for a handout from disabilty. I feel that that helped me. I wouldn't tell the doctor that you cook for your family every day like I thought you said you did lunch. That makes you appear to be functional. Focus on the things that you can't do. Your limitation. They are going to want to know what you can do. They will want to know if you can drive. So know your limit. They will only want to know if this is for disabilty. That is some of the things.

Feb 14, 2016 8:37 AM

Great question Newfibrogirl,
For me It is a constant challenge. I have been on disability for 10 years, finally accepted after 3rd try. Currently other problems have come up and communicating with health professions continue to be very disappointing and difficult. But I have found some great people along my journey. Am I the same person from 11 years ago? No. Will I ever be the same? No. I need to be able to live with my new life. Self acceptance is big for me, and hard work. I will need to answer the question parts because of my current fatigue, pain, concentration level and eye pain.
I will answer this question separately of talking to a doctor and disability. Even though eventually they both need to communicate.
I think that the previous 2 comments give good information. Be honest.
If I had my medical conditions in control yes I would work. Because of the difficulties/challenges of my diagonises this prevents me from working.
I have found when I say I can not do something because of pain, what is it about the pain? Is it unbearable because pain medicine is not supporting and helping alleviate the pain? When is the pain present? After doing something,is it constant, preventing you to sleep, not allowing you to do normal activities like getting out of bed, getting clothes on, are you ok to drive or challenged to take the bus, can you afford the medicine,treatments of Physio, acupuncture, doctors, devices, etc, food, a roof over my head, maintaining looking after me and my life, plus having a family or animal to want to care for. Is the pain medication working, how does my body accept or not accept medication or pain, why do I have this pain, or need assistance with any of this. Am I able to take care of all this? When looking at this I feel many things, it is important to keep in mind to refer to my list of things I am doing good for myself, I am important, I am doing what I am asked to do.
This is it for now, I'm exhausted.
Remember that you are not alone, although at times it may certainly feel this way. Sincerely,Beets.

Feb 14, 2016 8:41 AM

I appreciate people's input to the topic question asked so that Newfibrogirl, myself and others can grow and learn more. Beets

Feb 14, 2016 5:56 PM

For me in the UK it was all about using the right wording. The right phrases and buzzwords seem to be what hits the spot. First try I was completely refused with 0 points despite clearly being very unwell. Second time (about six months after the end of the first) I got help from a local advocate and I spoke while he asked the questions and wrote it down. No lies were told and nothing was exaggerated. Just using specific wording made so much difference! They also recorded the assessment in my home so there could be no miscommunication involved. Remarkable difference. Within a week I received standard rate care and high mobility. Until 2020.
Just goes to show how important the forms are.

Feb 14, 2016 7:43 PM

Just be honest to your doctors what's going on with you because only God knows what going on with your body if you be truthful what you're going through.

Feb 14, 2016 7:56 PM

I goes through pain everyday sometimes it's weigh out to worst things that I can't control like I can't sleep, can't stay in bed a long period of time or can't stay on my feet a long period of time, left arm I can't lift, legs swelling, feet burning, numbness, tingling, headache, fatigue, etc. Etc. Oh my God what a life change I never exprience as a humane being.WOW

Feb 14, 2016 8:28 PM

What not to say to a doctor.... " I know my body more than you do" I think you are not listening..etc Or You are not God, we have one and you are not it...Ummm.... Please pay attention to me, my pain is as real as my attorney....lol /now you all please realize I am playing.. I am a disabled nurse...so I know exactly what you can and can't say to them. Newfibrogirl, I love you as my friend, you are doing everything correctly. You be honest and God will take care of the rest!!!love TERRI

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