My condition is getting worse. The headaches are getting severe. I do have migraines that run in the family but never this severe and bad. Usually when I have my migraines I can take medicine lay in the dark and go to sleep and I'll be okay but these headaches get so severe that I literally scream and cry and can not go to sleep. It comes on suddenly and severely. Also my swelling is spreading it started at my arm and is spreading to my legs to the hip all the way down my toes on both legs and I have jaw swelling and stiffness as well. The swelling is very bad and painful. I also have very bad chest pains sometimes it hurts when my heart beats and I have been having trouble walking and been feeling light headed. One minute I am fine and next minute I can not barely get around and in extreme pain. I have been to a neurologist, orthopedic surgeon, 4 hospitals (children's hospital and UAB hospital) and my two local hospitals. A urgent care place and my primary doctor and none knows what is going on. Where should I go? I am very scared.