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What the h@!! Is this?

Dec 21, 2015 11:58 PM

I hurt, run a low fever, feel like I have the flu, the itchiness starts then enter the hives. Gigantic plate size, hot red hives that allegra and benadryl combination do not help as the dermatologist said it would. It is not a food related and I have been on same meds to long for that to be it. I quit taking pain pills just to be sure it wasn't them.

I have other autoimmune issues and have wondered if my arthritis is RA because that is the only thing I can find similar and the hives seem to be on joints and my spine.

Anyone relate to this?

Dec 22, 2015 3:46 AM

I'm sorry ur in pain honey bunny.. It does sound like some type of reaction. May be to a detregint or something new uv brought in the house. Maybe ur tree if u have one uop

Dec 22, 2015 10:30 AM

Sounds like an allergy, could it be mold or something? Either that, or a flare plus what would usually be a minor allergy. I hope you can find out the cause and feel better soon.

Dec 22, 2015 12:36 PM

Shammagren, I've had itching badly for several weeks. I actually scratched welts! It turned out I've suddenly become allergic to something in Snickers & Musketeers & Milkyway candy bars... Yay! Not!!! I hope you can figure out what's causing yours. I know how miserable it can be. (((Hugs))) πŸ™‚πŸ™πŸŒΌ

Dec 22, 2015 1:00 PM

I get nerve rashes that sound similar because at first they thought I had shingles but it was just the CRPS causing a nerve rash from stress or whatever. No allergies. I hope you figure it out, I know it's not fun! Good luck ✌🏼️

Dec 24, 2015 7:39 AM

I do suffer from cronic uticartia basically bad hives not due to any allergic reaction. I make my own laundry detergent because I took that thought out years ago. It is just strange how it starts on the joints and has other symptoms. I went to urgent care and am on steroids in addition to the allegra and benadryl so at least I will have a hive free xmas.

Dec 24, 2015 8:56 AM

I wouldn't rule out medicine that you are already on. You can form an allergy to them after a while. I should correct that and say a sensitivity to them. My body treated a drug like I was allergic to it but I just needed to be off of it for a while. I also had that happen to me with a food coloring. I really am not allergic to anything. But at times, my body will become sensitive to specific things and I will have to lay off them for a while. I am not saying this is what is happening to you. I hope you are able to find out. I thought it was Claritin that was specifically prescribed for hives. That is what it is said in medical books. Best wishes.

Dec 24, 2015 9:02 AM

We make our detergent too. I have to use ivory or dice unscented bath soak. I'm developing itching spells when stressed. And Profiler, thanks for the reminder. I hadn't thought about my meds. I need to figure out what was started a few months back. But would it only cause itching in joint areas? (((Hugs))) & Merry Christmas blessings to all! πŸ™‚πŸ™πŸŒΌπŸŽ„

Dec 24, 2015 9:20 AM

You know, I didn't think of that. That is quite a sign. Is your hives just over the joint area too? Is it a lot of different joints or just a few? What about your knuckles? Does anything feel swollen jointwise?

Dec 24, 2015 3:39 PM

My itching/rash is inside my elbow & knee joints, and the knotch at the bottom of my neck (at collarbone, scaly), between my fingers, and corners of eyes & mouth, and on chin. Drives me nuts!

Dec 24, 2015 3:39 PM

Oh, the knuckles of fingers & this get red, dry & scaly too πŸ™‚πŸ™πŸŒΌ

Dec 24, 2015 3:53 PM

My family has basically stopped using detergent, shampoo, replaced the fluoride toothpaste with baking soda, and try to use hot water instead of soap on our hands. I don't know why, but soap keeps causing rashes and nerve pain in my arms within minutes. We do use dish soap though

Dec 24, 2015 4:19 PM

I have psoriasis on my palm of left hand, fingers, wrist. Very difficult to live with, redness, intense itching, then dries skin out cracks inflammes etc. And I am left handed, gets worse with stress or doing household chores...also have patches scattered on my body, it is crazy!!!!!! It looks horrible on my palm, like leprosy. But I deal with it. Just thought I would throw that out there. Love and Blessings

Dec 24, 2015 8:22 PM

Terri, is yours psoriatic arthritis? I've wondered if I'm developing something in the Arthritis field because I already have OA & Sjogrens, plus hypothyroidism. πŸ™‚πŸ™πŸŒΌ

Dec 25, 2015 8:31 PM

My rash starts on joints, ankles, wrists, hips, my spine, collar bone, fingers, thumbs then when I can't avoid scratching it moves out from the joints. For example the red on my thumbs, wrists and elbows all went together until my arm was red. I am 46 i have been diagnosed with hashimotos thyroid, fibro, chronic pain syndrome, OA and of course more. I have been tracking the pattern for over a year..painful joints, flu like symptoms, low grade fever, hives on joints complete loss of appetite. Sometime mass quantities of benadryl will calm it enough to temporarily go away. Could be a couple weeks or so and it is back. I also seem to flare between ovulation and my cycle it 90 percent always happens during this time. The doctors are so he'll bent everything is fibro but other than the flu symptoms I don't see the connection. I have taken a few months to stop pressing the doctors so I can zero in more on the pattern and see what ideas i come up with. I want to be able and go in and say i want this blood test because of this list of symptoms. I have been tested for RA and lupus. The numbers of both are the high of the "normal". My sed rate has been elevated for years which they never seemed concerned about.

Dec 25, 2015 10:36 PM

Good way to go about it Shammagren! I get dry scaly patches (strips) over the knuckles of my hands & feet, and in between the fingers & tires normally. This has been happening for several years. Then suddenly today I noticed 5 spots of scaly, rough skin, smaller than an eraser, at joints of between fingers of my hands. It almost looks like scaly warts but not raised up. I've never had warts before, but my sis head them as a child (she held a lot of frogs! Lol). Any ideas? πŸ™‚πŸ™πŸŒΌ

Dec 26, 2015 11:08 AM

Flappsy, that almost sounds like psoriasis. I actually get the same thing on my hands as soon as the weather changes. Mine gets really bad though and the patches get thick and crack and bleed. This is the first year I've been able to get some control over it. Every time I go to the bathroom and wash my hands I use Nutrogena Hand Lotion after I dry my hands off. They haven't gotten dry and those that were cracked and bad are now gone. I hope this helps you. It really doesn't sound like warts to me. (LOL @ the frogs!!!😜).πŸ’•πŸ™πŸ»πŸŒ»

Dec 26, 2015 6:19 PM

I am not an expert on frogs or warts lol but I got excema that would come in small itchy dry patches. I use sauna lotion for dry and itchy skin as per the Dermatologist. I use to use other lotion all brands but they made my itchiness worse. You have to be careful a lot of lotions have bad stuff even expensive ones. Maybe try aloe gel with no alcohol.

Dec 27, 2015 6:06 AM

I would strongly suggest that you see in allergist and have them do a panel on you. When I did, I found out that I was allergic to just about everything. I couldn't even go outside and enjoy the summer. I couldn't open the windows. The dust would set my allergies off. The allergies would set off asthma episodes that were long in duration. I'm now taking the immunosuppressant shots. My life has changed dramatically as a result. Hope this helps you.

Dec 27, 2015 8:15 PM

Thanks donamel it is not allergies at this point I wish it was at least it would be easier

Dec 28, 2015 7:58 PM

Thanks for all the suggestions. I'll try and remember them when I see my allergist &/or rheumatologist. Donamel, I totally understand the allergy/asthma connection! I have dust mites allergies among many others. But my last allergy shots nearly out me in the hospital. I've developed 3 autoimmune diseases over the past 12 months which likely isn't helping. My asthma hit me in 2001, and yes, my life changed since it's exercise & allergies enhanced. πŸ™

Dec 29, 2015 7:35 PM

I have been researching when I can stay awake which just not much and have been reading up on auto inflammatory syndromes. I have auto immune issues including the dreaded autoimmune phenomenon which is they have no clue. At any rate, the auto inflammatory, while rare sounds like I may be on to something or at least is something that sounds more along the line as what I am talking about. My newest is lumps in my neck, I have had them before but it has been awhile, developing a non hive rash. I need to get out of this flare I think it was around thanksgiving when it started.

Jan 05, 2016 11:28 PM

A couple years back i had chronic hives for two months, and it was a seriously low point in my life, i feel for you. I don't know if I would have gotten through it without a combination of an antihistamine and oddly enough, ranitidine.

Zantac is a name brand of it and its technically used for acid reflux, but my hives were so bad one night i went to the ER and thats what the dr gave me.
Apparently the ranitidine takes care of another aspect of the hive that antihistamines don't. For real, a god send, if you haven't tried it please do maybe just double check with your pharmacist that it won't interfere with anything you're already taking.

In the end, after getting no help from drs I got rid of my own hives by taking all my food down to the basics (meat and veggies only) then gradually introducing other foods back into my diet.
I'm really hoping im late to the party and you already have this all cleared up :)

Jan 08, 2016 7:13 PM

After hives and rash since basically thanksgiving along with the pain flare things are clearing up. 2 allegra a day, 300 mg Zantac and 2nd prescription of prednisone. Ugh! They are at the point they are referring me to an allergist and want a test of the plaques. This has been happening for years but cronic since late 2013. It is still following the pain and the dr was very interested in the auto inflammatory information I had.

Jan 09, 2016 3:39 AM

Just as an aside. Some supplements are anti-inflammatory too. Consider Omega3-fatty acids if you haven't yet. They are important for the nervous and immune system, but at larger dosage than recommended: 3x2 caps daily. Others i use are curcumin and astaxanthin.

Jan 10, 2016 5:57 AM

Benadryl and allegra do nothing for me so I use zyrtex and other meds. Have you been tested for sarcoidosis? It is an autoimmune disease that is difficult to diagnose and has strange symptoms. It can attack any organ in the body, either individually or concomitantly, including the skin and joints. Mine was confirmed 40 years ago by biopsy and has since spread to additional organs. By the way, it does very unkind things to the skeletal system. Have undergone two bone fusions, shoulder reconstruction and other surgeries and will have two total knee replacements this year. Difficult to walk as bones of feet are arthritic and painful. There is arthritis in every bone and joint in the body from the cervical spine to the bottom of the toes. We won't even broach the subject of the back. Elevated crp can be a telling sign, along with high sed rates. Check out your ACE blood levels. However, the disease could be in active mode and none of the tests could come back positive. It's a nasty bugger and quite elusive. Some people are asymptomatic, others go into remission and still others (5%) suffer from it incessantly and some die from it. Hope you don't have it!!!

Jan 11, 2016 4:55 AM

Dr. Fouradoulas, on the omega 3 fish oil, are you saying 2 capsules 3 times a day. I didn't understand your use of the three in your formula. Please specify.

Jan 19, 2016 8:11 PM

Benedryl is the old school now it is allegra and the stomach med Zantac.

Thank you donamel I will look into that as i have had 2 knee surgeries and have arthritis including arthritis of the spine and herniated discs. I have continued to have an elevated sed rate they can't figure out. I also have autoimmune issues including the attack on my thyroid. I am sorry you have it, it sounds awful or that it can lead to complete awful. I do hope there is something to help it.

Jan 19, 2016 8:13 PM

Oh forgot to mention going to allergist next week as I have gotten worse

Jan 20, 2016 12:07 PM

I sure hope you don't have this disease.

Jan 20, 2016 12:47 PM

Profiler, yes, 3 times 2 capsule a day, that means at least 1g daily. I know it sounds like a lot but its only oil, not a drug. Your body needs it. Keep it for 2 months and see if it made a difference.

Jan 21, 2016 9:38 PM

My hives are worse my entire neck is a giant swollen plaque with the hive having a fever. I feel like I have a terrible cold and the flu in addition to the hives. I am regretting refusing the prednisone but I know it will make it worse when I am done with the prescription. Ugggghhhhh!

Jan 22, 2016 7:25 AM

I am so sorry to hear about what you are going through. My daughter had the same issue just in different areas like her face. We seen every Dr you could imagine. But finally startesvgetting help with the allergist. I would see one if I were you. He has plenty of ways to narrow it down. I was amazed by how much she was allergic to. But they test for good environment and all things. Plus they can recommend a med that works for you. My daughter take a three different ones. When she was on just two it didn't help much but adding the final has helped. Also I was told by this same Dr that with hives sometimes you may never know. But also let your Rhuemo Dr know it could be your immune system doing it. I've had my lupus do that. But start with them two. If that doesn't help Let me know and I'll ask our Dr what he would recommend.... Hope this helps...

Jan 22, 2016 10:06 AM

Shammagren, I'm so sorry! You must be miserable with this going on. I'm inclined to suspect it's either autoimmune (rheumy) or allergies, like Bshuler. You may want to call and get the prednisone if you can't get seen today. Hugs & prayers you'll find the cause and get over it soon! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 24, 2016 10:03 PM

Thank you bshuler, I have let my rheumatologist know. I see an allergist thursday so trying to refrain from additional meds. I have went elimination diet which has calmed the hives by about 60 percent. I still have them mainly on legs and feet at the moment (they travel) and a rash on my neck and chest. Flappy, as always thank you. I am still wondering about an auto inflammatory response and not an autoimmune. Although I have plenty of autoimmune issues

Jan 25, 2016 6:05 AM

My seed rate was 2 times normal and crp was 4 times normal. My rheumatologist knew I had sarcoidosis but the usual blood makers for that didn't show anything. Well, at the same time, sarcoidosis in lungs got worse and it was working on causing autonomic small fiber naturopathy. This disease is a nasty bigger that hides while it's doing severe damage.

Jan 25, 2016 8:40 AM

In previous message, seed should have been sed. My doctor gives me Plaquinil. I may have mis spelled it. It's an anti malarial drug. I refuse to take prednisone unless it's only thing to save my life. I was on 90 mg. daily for three years. It kept me alive then, but caused other damage.

Jan 25, 2016 8:11 PM

Donamel, I'm on Plaquenil for my Sjogrens, with good results so far. πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 25, 2016 8:20 PM

So tired of predictive text!!!! Instead if bigger should have been "bugger." Don't know how long before I can go back on plaquinil. Have to stay off until knee heals enough from replacement surgery next week. Glad it's working for you. Truly need some relief here and other medical issues. Can I just get a new body? I know, I'd have to wait in line, but not too long since I'm already elderly!!!

Jan 26, 2016 11:13 AM

That's ok Donamel. Every time I try to type hope it usually plus oppose... Total opposite meaning! Praying your knew heals quickly! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 28, 2016 1:41 PM

The verdict from the allergist...

my hives are not a food allergy. He believes it is an autoimmune response and he said until my body gives up the secret of what it is all we can do is treat the symptoms. We put a request into my insurance that I be treated with Xolair monthly shots to see if it helps with the hives.

I so need to figure this autoimmune disease out.

Jan 28, 2016 6:50 PM

Sorry to hear that shammAgree, does that mean you are going to a rheumatologist? Sorry for the news. Best wishes on finding something out soon!

Jan 28, 2016 6:50 PM

Shammagren, I hope you can figure out our too. Not knowing is so stressful! Hugs & prayers! πŸ™‚πŸ™πŸŒΌπŸ’•

Jan 28, 2016 11:33 PM

Profiler I have been to a rheumatologist 3 of them to be exact. The 2 and a half week wait to try the Xolair is going to send me over the edge. My hives are still at tea saucer size. Thank God I already have weekly couselor appointments.

Jan 28, 2016 11:44 PM

What diseases have they tested you for?

Jan 30, 2016 12:31 AM

I have been told I have tested negative for: celiac, parathyroid, parkinsons, RA, cushings, lupus, chorea, myositis, gout, there is more but God help me I can't think of them right now.

I have an elevated sed rate, hashimotos hypothyroidism, type II diabetes, high blood pressure, anxiety, ptsd, fibromyalgia, chronic pain syndrome, restless leg syndrome, invertebral disc degeneration, arthritis of the spine, and so forth.

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