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What to expect

Aug 14, 2015 9:23 PM

Hi I finally have appt with a Rheumatologist on 20th and want to have idea of what to expect. I did blood work today so i hope to have results in hand. Wondering if dr will give me something for pain? I hurt bad every single day. I feel uncomfortable asking for pain meds because I've experienced a diff doc thinking I'm a pill seeker when that's farthest from truth. I'm nervous not feeling g like drs understand what I'm feeling. My hopes is dr will take one look at me after exam and know what's up. If anyone can tell me what to expect at this appt and what I may walk out with that would be awesome. I can't have another dr leave me high and dry. Thx

Aug 14, 2015 9:55 PM

In my area, the primary doctor is the only one that prescribes meds. That way, there's no medication mix up. I'm not sure what is happening with you, but the thing should be able to give you other meds that could work for your condition. Hope you feel better after seeing them

Aug 15, 2015 12:09 AM

Be honest and open with the doctor. Explain what a good day is, and also your worst days. See if he is willing to prescribe something you can take when the pain is really bad. I have found that doctors respond better if they see that you are not wanting every pain med going and that you only want to take them when the pain is bad. Research some of the pain meds that are available and the different types. Knowledge is powerful and you can use it to your advantage. Take someone with you who know what pain you're going through to be an advocate for you. I pray you do find this doctor helpful and that you get some pain relief.

Aug 15, 2015 3:09 AM

Thanks for your advise. I live in small town and prevent pcp left me high and dry when I'm crying in pain and everytime walked out with nothing so upset. This is a joke. Just wondered if since specialists would help me. Single mom and I can't pick up baby with my hands killing me. Fingers crossed that I will walk out with something for pain so I can tend to her cause she's 30 lbs which causes major issues. Will rhem dr be sensitive and help me? What can I expect walking out with? Plus he's almost hour away. Urgent care gives me approx 20 hydros but not making diff :( I pray that rhem dr takes one look at me and helps me. Just nervous because my pcp I had I'd walk out with nothing which is crazy with daily pain. I fired him. What are your experience with dealing with rhem dr? You'd think I can get help with pain . Thx

Aug 15, 2015 7:38 AM

Yes. Specialist can prescribe meds. Pain killers, anti inflammatory, and meds to slow down the arthritis. I pray that this Dr sees your plight and treats you for your illness. I am so sorry to hear about you not being able to pick up your baby. I found other ways of coping. If they wanted to be picked up, I would sit down so they could sit on my lap instead.I pray that you get the treatment that you so desperately need.

Aug 15, 2015 9:05 AM

Kat, I saw my rheumy doc at first for fibromyalgia & osteoarthritis (OA). She referred me back to my pain specialist at that time. A year later I was back in her office for different symptoms, and after several tests in her office she ran bloodwork and referred me for a lip biopsy. When I followed up she said I have Sjogrens and started me on Plaquenil. I've been on it 2 months and its helped my sjogrens and fibromyalgia. My pain stays at a level 3-4 now, except on flare ups but I still rarely go above an 8-9. My PCP brushed offer all my complaints until I saw the rheumy doc and an endocrinologist, who both wrote him letters. Now he treats me much better.

You were given good advice about taking someone with you to advocate for you. Hearing from another helps the doc understand. At the 1st time my hubby went he made some remark about me getting back my old life. The doctor stopped and literally scolded him, then explained the disease processes to him so he could understand I will never have my old life back. He was a semi doubted at first, but being with me for various appts, he's learned to be my biggest support and advocate to others.

Having your baby climb into your lap is a good idea to. I had cervical & lumbar disc problems when my youngest was about 8-9 months old. Thank goodness she learned to walk & climb early, likely watching her older sister. I was no longer able to lift her so she would climb in my lap or onto the bed, and her sister helped her into the carseat. It ended up making her a very independent young lady, and a compassionate one.

As suggested, go in with knowledge and calmly explain your good days versus your bad days, then give them symptoms you have. Explain what you use to do that you can no longer do. I will keep you in my prayers. 🙏🌼

Aug 15, 2015 9:44 AM

Hiya Kat! Everyone gave good advice so far. I would also like to add to make a list of questions you want answered and dont be afraid to get the dr to explain anything he's saying that you're not understanding. In my experience rheumatologists do not go out of their way to full explain but will of you ask. I always feel very rushed out of my appointments.

Also just take 15 or so minutes to research online about some RA drugs so you'll be able to follow along more easily when they (hopefully) explain and recommend treatment.

The main ones are NSAID's (anti inflammatory) and DMARD's (disease modifiers) normally used in combination. Just do a quick google, easy peasy :)

Good Luck! ! Let us know how it goes

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