Many combined factors over the past 3 decades of my life, like multiple automobile accidents, many slips & falls, over 20 surgeries, etc. But the biggest one was multiple doctors dismissing my complaints for over 2 years as being "symptoms" of already diagnosed issues, but later turned out to be a mass growing in my abdomen, adhering to multiple internal organs & tipping my immune system into overload, resulting in the hypothyroidism, autoimmune skin issues, Sjogrens & fibromyalgia. So I guess in a nutshell I can say "poor doctoring".
I was unfortunate and was born with hypermobility syndrome, so have always had problems. As I get older though I'm getting more hypermobile and my fibro is getting worse. It's so fun to explain that to people when you're only 21.
Hi gingernelly I can imagine. It’s like drawing the shortest of the short straws.
Most people are blessed with very good health and are ignorant to the problems faced by many of us. I was 23 when everything hit the fan. So understand how cruel life can be.
However, having said that there are people worse off then us. I know it’s hard to take that into perspective especially since we started with these pain issues from such a younger age. But imagine being 6,7,or 9 years old and having pain. At that age the concept and reasoning of pain is not even understood.
I hope and pray all of us who face this battle daily find peace, solace and courage to keep fighting
I am triggered by working at the stables for more than 3h and anything cold touching my skin it’s very frustrating because I’m 15 and can’t do any of my favorite winter sports like skiing and snowboarding without being in a lot of pain
Thank you sakram! I worked in medical records when I had to quit. I can imagine how much harder it is for you to have to give up doctoring. And I tell myself often, "there are many others worse off than me." Just for the record, I'm changing PCP because he recently missed my hubby's prostate cancer, all because he doesn't think PSA tests are necessary (nor pnuemonia shots or shingles shots...).
Hopefully you will. Maybe I can eventually use my skills in some capacity down the road. However right now it's taking everything I have to keep our bills and paperwork organized. Fibro fog is compounded by the Sjogrens. But I won't give up trying to do my best, one day at a time, one step at a time. 😉
Triggers...weather (high humidity/ temp extremes). Overdoing it, stressors ( good and or bad), chronic pain. Watching to much TV (inactivity, sitting or laying to long), to many surgeries, Muscle tension. Waiting to long to take my pain meds, my being overweight, poor diagnoses. Try to do your best with what your given in life🌺