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What's it worth?

Aug 06, 2015 4:59 PM

I got a call today from Mayo financial depot, in response to a message I left them. The doc I saw there wants me to see two more docs: ENT & Neuro-psychologist. The problem is my insurance does not cover the psychologists at Mayo, only a few outside that area. If I see her it's going to be 100% out of my pocket. It's a 6 your testing exam, which is going to be very intense the last said, and very very expensive: $5700.00. Yep that's right!

Part of me wants to say, "no way, find a doc in my network!" The other part of me is saying, "people dont go to Mayo first. It's a last resort because every other doc has failed to find answers. A six hour exam is totally abnormal so this doc is going to be intensely thorough. Do I really want to take the chance at a mediocre exam after all the time and money it has taken to get this far?". Then I look at the amount and think, " where the heck will we get that kind of money?! " What's it really worth, the whole picture? My hubby doesn't know yet, and I feel like I'm up the creek without a paddle... What's your opinions??? πŸ™πŸŒΌ

Aug 06, 2015 5:59 PM

Holy crackers that's a lot of money!!
I see what you're saying about it being thorough so it might be worth it...this is a tough one.

This is going to be completely out of character for me to say since I've expressed my lack of religion in the past but you are confident in your faith like my mother is, and I know what she would do...I think you should pray about it.
I was raised very catholic and I feel because it was forced on me unil I moved out I somewhat rebelled as an adult. I also have much different view on things than Catholicism. HOWEVER I'm definitely jealous of my moms strong beliefs and she has had some seriously weird unexplainable shit happen to her from what seems to come from prayer.
So from reading your past posts and getting to know you as a lovely person, I feel like this will help give you some clarity of what choice will be best for you. Of course still try and weigh the odds but it seems like the type of situation your just going to have to blindly make a choice.
Sorry if this was dumb, but I hope it helps you lol
I'll keep you in my swears πŸ˜‰

Aug 06, 2015 9:29 PM

Sweetsassy, that was not dumb at all. You expressed it beautifully, so thank you. I've had faith in God since age 12, when He saw me through a very dysfunctional family. Like you I had religion forced on me and I rebelled at going to church at 18, because I saw it as a ritual only on Wednesdays and Sundays. More importantly I grew to have a relationship with God. I talk to Him just like I talk to anyone; crying, joyful, frustrated, and even angry. I hear Him through small voices in the quiet, through intuition, and through the advice of others. I couldn't live any other way. But I also don't force my beliefs on others, not even my children. I do pray for everyone. For me it's not about what religion I or anyone is or isn't. Instead it's about simply having a relationship with God; He loves me even with all my flaws, and unconditionally. And I love God.

I am praying about this expense and decision, and I have to trust if God leads me to go ahead then He will also help me find a way to juggle our finances to afford monthly payments. And if I'm guided to use a different doctor then He will let it be with a good one. He's done it before many times. It's just the not knowing which path to take that's hard. That why I'm asking help. I appreciate yours very much. Thank you for responding. With the headaches I've fought all day my mind just seems cloudy. I hope you have a good night! πŸ™πŸŒΌ

Aug 07, 2015 2:33 PM

Flappy...if you can somewhat manage to finance it I would really think it's a good idea to take this opportunity. Yet again due to the uncertainty about what is involved, I would think very hard about it though,

I'm desperate to find a cure or the very least, knowing exactly what is wrong with me. There's so much pain that we go through and if they can pin point exactly what's wrong, I would take the chance. That's my opinion though. I don't think many of us have a chance to request such thorough examination. I see it as a good opportunity. No matter what your decision is, there will be no right or wrong answers. I truly support whatever decision you make as everybody's circumstances are different. I wish you all the luck you need.

Aug 07, 2015 7:50 PM

FlappysLady81 - I am still in the test group and they added a personal message option. See if you can get it. I have a few ideas to hit the insurance company with from a different angle. I sent you my number. Too much to type...lol

Aug 07, 2015 8:03 PM

Flappsy, before I became disabled, I worked in the medical insurance field. I handled all sorts of things from selling to billing to customer service and claims. (I worked for a broker so if one of our clients had a problem with their insurance and they couldn't get something approved or they couldn't get something paid for and they were getting billed, they would call us). At any rate, at this point in time, if your in-network doctor is telling you that you NEED to have this six hour test to get the information they need in order to help you and to diagnose your current situation, their office should call your insurance company on your behalf and explain that it is a specialized test and it can only be done by this specific doctor and it is needs in order to give you proper treatment, the insurance company should grant the authorization to have it done as an "in network" test as a courtesy. The doctor at Mayo may need to send in a written letter signed by him/her explaining why you need this done and why it needs to be done where they are sending you. Then, you can also call your insurance company at the same time and speak to a patient liaison and explain to them that you are in financial strain and cannot afford to pay for that test and could they please help you out. Between the doctor letter from Mayo and your plea to their liaison, they may just surprise you and grant the authorization. That is the direction that I would take. I will keep you in my prayers and wish you the very best of luck that this will help and you will be able to get the test without all the aggrevation that you are dealing with now. It doesn't help your health any if you have to deal with the anxiety of knowing you need a test you can't possibly afford. Keep us posted and let us know what happens. I will speak to my old boss and see if there are any other suggestions that I can give you that will help you along. Be well, my friend and I hope you have a peaceful night and restful sleep with less pain. Sweet Dreams.

Aug 07, 2015 9:03 PM

First let me say I'm really struggling today. I woke up and while walking to the kitchen my body just started going to the right. I caught myself and grabbed my cane for stability. As the day passed my walking progressed to show visible evidence that my legs weren't moving in sync. My hubby says my right foot comes up higher and my left foot drags. On top of that my right hand has been trembling so bad it's in knots of spasms from the elbow to the neck & scapula. It started Monday and has worsened all week. And then there are the headaches that were different every day, starting last Saturday, and they all merged into a real bad headache yesterday. I don't know what's happening to me, but I do believe it's all connected. My focus and reasoning is off so if my post sounds discombobulated I apologize.

Octobot, LMB, & AlwayZ, I really feel like you all said. It's just scary about the cost. I'm not understanding (LMB) sending me a number?? AlwayZ, the hospital told me to let them file it with insurance and then we can work out payments. But I will ask the primary neurologist to write a letter explaining the importance of using the Mayo doc. I did mention to my hubby that if she does tests via the hospital, the hospital is covered, so it may not come out as expensive. But really, at that cost it must be a real "run through the mill" exam!

Sorry y'all but my brains misfiring and im feeling really strange. I told my hubby if I'm this based or worse tomorrow we are going to the ER...it's freaking me out! πŸ™πŸŒΌ

Aug 07, 2015 9:36 PM

I feel like I'm walking like the "Wizard of Oz" Tin Man!

Aug 08, 2015 11:03 AM

Flappsy, I hope that you are better today. The good news about what you told me is that the doc hospital and original doc are covered which gives you a better chance to get this test covered as in network. I am going to dig and find more information for you. I am so sorry that you are having such a tough time and that you are scared. I'm sending you hugs straight from my heart and prayers that you will get answers and some resolution to this situation. I will keep checking in to see how you're doing.

Aug 08, 2015 11:05 AM

There is a private message option for people in the test group. I sent you my phone number. Basically to help you fight the insurance company.

Aug 08, 2015 5:52 PM

On, well I can't get it because I pulled out of the test group, due to problems in my app & phone. Thanks though, I appreciate it. πŸ™πŸŒΌ

Aug 08, 2015 5:55 PM

AlwayZ, I do hope they will do any testing as in network and I'll only have to pay the doctor fees.

Physically, I woke up totally normal, as if the previous day's hadn't occurred. But I overdid our errands so my feet are killing me. Thank goodness! πŸ™πŸŒΌ

Aug 08, 2015 6:23 PM

Hang in there, Flappsy, and fight like hell for your care. I will do what I can from here with any information and/or advice I can provide. I am happy to hear you woke normal this morning. I'm praying you get answersπŸ’•πŸ˜ŠπŸ˜

Aug 10, 2015 10:29 AM

I'm sorry flappy lady that your going Thur this I'm praying for you and all my cmp family I'm sorry I haven't been on there lately but been busy with tests I've got R.A. Artiritus. Real bad in hands it really hard for me to use them at times and I'm not sure how will get Thur this but I'm hard headed and will get it done hope you feel better flappylady81

Aug 10, 2015 4:17 PM

Thanks Eddieray. I've been wondering how you are doing. I'm sorry to hear about the RA. Are you taking anything for it? As for getting through it, you lean on us anytime!! We will help you through. And remember, God's watching over you and will carry you when you can't find the strength. (((Hugs))) & prayers for strength and reduced pain & stiffness!

Try doing gentle stretches of the fingers (spreading wide), and use a squishy ball to keep your reflexes. They told my family members to move the joints and keep them warm. My sis has it and so does my dad, & grandmother did too. Bless her heart, her pointer finger crooked just so that my grandfather would tell her, "you best stop pointing that finger at people. One day is just gonna go off!". It always made her laugh and she would forget who she was scolding. πŸ˜‰

I can relate to the stiff cramping hands. Mine have been doing so for over a month. I have my rheumy doc follow up tomorrow on the sjogrens and Plaquenil. I'm pretty calm now about Mayo, after praying about it. I'm going to use the doctor they want because if I don't I could be riding them missing something, if I used another doc who wouldn't be as precise treating. I'm at peace we will be OK financially and get the best care. Thanks for your prayers! I hope you have a good day and night. πŸ™πŸŒΌ

Aug 10, 2015 4:59 PM

riding them = risking them

precise treating = precise testing

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