Years ago after slipping on a wet floor and falling flat of my back, striking my head twice as it bounced up & down, I spent nearly 2 yr with doctors to be told the "tingling & numbness in my left temple was trigeminal neuralgia of unknown cause. It never fully went away, but up until recently it had begun to preclude migraine headaches.
Not anymore. Over the past 2 weeks it follows on the heels of the tremors, tingling, stinging pain & (sometimes) numbness &/or temperature or color changes from my neck to finger tips (esp right hand), which the ER dx as cervical radiculopathy. But the trigeminal neuralgia symptoms now spread to include from the lips & nose to the left ear, then up the scalp and down the neck. Weird! Scary too.
But let's not stop there. New on the list is waking with tingling, stinging pain in the left foot and toes yesterday morning (out of the blue)! I kept feeling like a piece of glass was cutting into my toes. It was pain unlike anything I've ever had. As the day wore on it spread across the bottom of my foot, up the back of the heel and to the top of the calf. Then I noticed I had a severe pinching in the lumbosacral area, and the low thoracic area. And the thoracic area is constantly tingling from the spine towards the right side. I went to sleep with it going on.
Today was a repeat of the whole thing. I was driving and my feet (both today no less) were feeling almost numb, to where I had to pull off and let my husband drive. I couldn't tell how much pressure I was placing on the gas or brake pedals by touch, because of the tingling!!! My husband said I was driving different too, slower.
The neurologist examined my reflexes and strength again last week. He said I'm continuing to have changes that point towards MS. I know I'm getting weaker. I could barely push the public bathroom door open at the gas station today!
I am so tired of all this until I could scream. I'm scheduled for a MS lumbar puncture Wednesday. I don't want to have MS, but I want to know what all this is from. No, I need to know! God please let them find the answers! 🙏🌼