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Mar 26, 2017 9:04 PM

Ok I was at JCPenny's and I was dizzy and my mother got me a wheelchair and now my body is aching and let me tell you being in a wheelchair is no fun thing.

Mar 26, 2017 9:16 PM

I hope you feel better soon.

Mar 27, 2017 9:45 AM

When I went to Disneyland last year (my first time) I had to be in a wheelchair most of the time. It sucked, but on most rides we got to cut the line. :)

Mar 27, 2017 10:04 AM

Why were you in a wheelchair???

Mar 27, 2017 10:07 AM

Because it was too exhausting to walk around the park

Mar 27, 2017 1:27 PM

I understand your feeling towards wheelchairs. I've been and still am horrible reluctant to using them. But I've learned for me it was more of a pride thing for me. Once I began to see the chair as an aide and it allows me to be somewhat more normal I became OK with it .

Mar 27, 2017 3:11 PM

Yup, fighting the chair with every step I force myself to take. I can't push one for myself anyway though thanks to a shoulder that hates me. I just can't keep it in place today.

Mar 27, 2017 3:51 PM

My problem is if I have to go to school (middle school) in a wheelchair will I be treated differently?

Mar 27, 2017 10:30 PM

So yeah it will be annoying newfibrogirl and ScaryAnn

Mar 28, 2017 6:39 AM

LifeOnPaws do you take anything that will help with the dizziness?
Is the dizziness part of your condition or a side effect of your medication?
I would be fighting the wheelchair at every level as well but that is a pride thing mostly.

Having a wheelchair at school could be taken a couple of ways the first and more preferable one is that your peers would take your condition more seriously and offer to help you more or the other way is that your peers could say why are you in a wheelchair now but you didn't need one before. Unfortunately your kids at school can be horrible but there are also ones that will help
It's hard to gage how your peers will react to you going to school in a wheelchair

Sending you positive vibes and warm healing hugs xx

Mar 28, 2017 7:31 AM

LifeOnPaws, I was in a wheelchair for almost 2 years. Prior to being wheelchair bound people made fun of me and taunted me about me lying about having a medical problem. The second they saw me in a wheelchair, I could tell that they felt ashamed for ever taunting me. The first day or two people didn't really talk to me, after that they started to apologise and to ask what had happened and a few asked if/how they could help. Feel free to DM/PM me if you want to talk about it or just reply here and we can keep talking

Mar 28, 2017 9:00 AM

I don't know if I will use a wheelchair later in life it's a possibility-

Mar 28, 2017 9:44 AM

If you have to use it use it. My Powerchair is my legs I'm a quadriplegic, there are always going to be dickheads but that's the same for anything in life. Most people are great. Accessibility can be an issue but, again there are always going to be challenges in life.

Mar 28, 2017 11:44 AM

What walking aids are you using at the minute LifeOnPaw's? And roughly how far or for how long can you walk?

Mar 28, 2017 12:06 PM

I'm not using walking aids since my POTS is making me dizzy so THEN I can't walk. I can walk about a half a mile so basically 15 minutes of walking. TiredPainNInsane.

Mar 28, 2017 5:59 PM

You know that's a good estimation of how far I can go with my fibro fatigue. My last trip to Disney I used a battery powered cart I rented there. I tried theme parks without a chair and was miserable--wanted to collapse with fatigue. Was trying to chase a 5 year old so wanted him to have fun. I took a lot of sitting breaks.

Mar 29, 2017 5:23 PM

have you considered trying walking aids LifeOnPaws? If you're reluctant to a wheelchair you could try a Walker which is like a zimmer frame with a seat for you to use when you need it.

Mar 29, 2017 9:07 PM

No my Pots isn't that bad yet TiredNInsane-

Apr 01, 2017 7:55 PM

After my first injury we purchased a wheelchair. We bought season passes to Disneyland and found that I could only walk around for about an hour without excruciating pain. Once we got the wheelchair we were able to navigate this park but it really wasn't much fun from a sitting position. We no longer have season passes and I don't think we will look at purchasing one again. I'm grateful that the wheelchair sits in the garage untouched. This means I'm walking around for now.

May 02, 2017 8:46 PM

I'm in a wheelchair all of the time due to fatigue. I have a power chair here and a small manual to tale out. I don't recommend going that route if you don't have to.

May 02, 2017 9:18 PM

I use a walker most of the time for balance problems and fatigue. It helps to have a chair when you need one and boy do I use it! People will still be a dickhead to you in a walker but it helps with the seat and also gives you extra space you may need to get around! I also use a wheelchair when I know there is no way I'm going to make the journey. I am actually on Vacation now and plan to use my wheelchair for an art exhibit tomorrow!

May 02, 2017 11:07 PM

After the car wreck. I was measured and fitted for a. Drive. Brand power chair. Once it came in they adjusted it all and bolted into position for me for correct posture and height etc... It works great for me.

2 years later I was "graduating" to a wheelchair. I was in a nursing/rehabilitation home at the time for 3 months. I must of tried out 25-30 wheelchairs. Along with that. About 10-15 types of seat cusions for them.

I liked 2 different models of the brand name of. Drive. Wheelchairs. (i can't remember the cushion name. But Medicare didn't cover that one anyway) the Drive company supplier came and measured me and said only 1 of the 2 models I like they still produce. So I got that one and the Medicare approved cusion. He went through and bought the vision I liked and gave to me for free and set up my wheelchair for my height and all. I like it. Its comfortable for me.

2 years after that I "graduated" again. This time to a rolalator. (a walker with 4 big wheels) This one I choose was also a. Drive. Brand name. With carpal tunnel syndrome in both wrists I needed arm supports for the unit. So they put it on. The one I choose had a plastic fold down seat. So when I was to tired I could sit down. And if need be be pushed around.

About 16 months after that I was able to walk again using a wLking stick. And still do today. On bad days or after seizures I may use the power chair or wheelchair or rolalator. Just depends how bad I am or what I need.

For me I really like. DRIVE brand products. And the service and help you get.

May 06, 2017 10:16 PM

I have had so much fatigue ive been contemplating a wheelchair. Most of my pain is in my arms shoulders so i would need one to be pushed. Ive seen one in Golden Violin catelogue i like but it looks flimsy. Ill check out that Drive brand. Thank you all for sharing.

May 06, 2017 10:35 PM

Don't forget. There are lots of types of wheelchairs for Each manfracture. So do some research and homework.

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