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when a flare is never ending...

Dec 26, 2015 3:34 PM

.... is it still a flare or has it become the new normal? I have so much to do and I can barely crawl out of bed to pee (I do make the extra effort for that lol.... Somehow, I'm thinking that wetting the bed will not make me feel better). I've been on an increasing flare for a while now and this SUCKS!!! So exhausted

Dec 26, 2015 3:49 PM

You're right Phoenix, increasing & constant flare ups suck! It does feel like the new norm, which horrible and not appreciated at all!!

Dec 26, 2015 4:36 PM

Plus the migraine. I just want it to stop

Dec 26, 2015 5:06 PM

I know you do, sometimes, that is worse than the flare up pain .

Dec 26, 2015 5:15 PM

I am dealing with the same type of flare up and my normal stuff is not packing the same punch medicinally. I am also dealing with a very high amount of stress not related to the holidays.
At least we all have a wonderful sounding board and fantastic a support network.

Dec 27, 2015 1:39 AM

Hi there, I am new to this app and still trying to navigate. Flare-ups even more challenging when they occur without any provocation. Fibromyalgia is a very cruel condition. I empathise with all chronic pain sufferers.

Dec 27, 2015 1:53 AM

I have CRPS and chronic migraines, I feel like this all the time with the constant pain too! I stay in bed most of the day and it is still so bad. I tried Botox for my migraines because they are so frequent but after three sessions it has not helped. I'm getting another spinal cord stimulator at the top of my neck (paddle) this year so hopefully that helps! Let's keep fighting this hard fight together!

Dec 27, 2015 1:56 PM

Today is a bit better. Migraine is gone. Back still spasming and I can't shake this exhaustion. I don't want to sleep my life away, but I kinda do. I don't even know if that makes sense.

Dec 27, 2015 8:07 PM

Yes, you make sense as I feel the same way except my migraines go away for a couple of hours and come back with avengence! Praying for you, as I know how a constant flair can be, working on one for over 100 days straight! Thank God for this board and being able to track it! God Bless you Phoenix!🙏😘

Dec 27, 2015 8:22 PM

I also tried the botox for the migraines Megan,; it only worked for the first time. How is the spinal cord stimulator? I've been leery on surgery, though the amount and frequency of the migraines has had me contemplating it.

Dec 28, 2015 2:40 AM

I have had times when my flare is ongoing for a long period of time. That's when I know I HAVE to slow down and rest. Like really rest like I have the flu. 2-3 days of rest. I hope you are able to do this.

Dec 28, 2015 8:21 AM

Yes I'm with jesswoo..but its hard to get at times. However we have to care for ourselves better then others.

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