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When pain wakes you up....

Jun 17, 2016 5:48 PM

I usually fall asleep ok because I have Endep and melatonin on board and tramadol. I find that the tramadol wears off and by 2am I'm in a pain flare. I usually get up and stretch and walk around the house which has me wide awake or I take tramadol again which has the annoying side affect of alertness which takes about an hour or more to dumb down the pain and I'm also wide awake. I do use mindfulness and feel relaxed during the mediation but not sleepy. The pain team tell me that uninterrupted sleep is vital.

So what does everyone do to get back to sleep?

Jun 17, 2016 6:33 PM

I think I'll lurk here for tips, if that's ok! Experiencing the same thing with dihydrocodeine.

Jun 17, 2016 6:43 PM

Well, i usually get my flares during the night. I used to take tramadol which i find wear off quickly then my rheumy changed it to codein which works better. I take about 60mg of codein and it lessens the pain after 15-30 min. I got an anti depressant drug that was prescribed by my doctor when i was going through depression because i felt so frustrated and angry of having lupus. This drug really relaxes m. I take it every night to go to sleep. And it also stp my feet feeling tingling.

Jun 17, 2016 7:04 PM

Well I have nortriptylin and Ambien and tramadol. If I do t have an early day the next day I just to nortriptylin and tramadol and just fall asleep slowly and endure the waking.. but if I'm in a lot of pain or a storm is gonna come during the night.i take it all..and the combination of all three tends to give me about six to eight hours of sleep. I do t do the three combo every night but plus most evey night I also use herbal teas I did k at bed time and keep by my bed so if I do wake in the night I will sip on the chamomile and green tea and it tends to help soothe me back to sleep.

Jun 17, 2016 7:41 PM

What is sleep?
Uninterrupted sleep doesn't happen in my world and being on call over the midnight shift often means I cant take anything so I've never tried anything prescription.
I find i go to bed around 10pm or 11pm and it takes an hour to fall asleep and then i wake sometime between 2am and 3am and then only start to get tired again around 5am and my alarm goes off at 5:30am.
It's a little better on evening shift because i can sleep in, however nothing gets done (including self care) because i don't get up until i have to leave for work.

Jun 17, 2016 8:06 PM

I too am on melatonin, and I sleep on a heating pad every night. It seems the only thing that helps, I do take a Roxycodone if it's real bad!!

Jun 17, 2016 8:48 PM

Hi all,
Glad I read your posts. One, because I have the same problem with tramedol wearing off and haven't told my doc, and two, because it hasn't occurred to me to keep a nice cup of tea handy. Also, self care... I take care of everyone else first and then if there's time and energy, me. That's bad, I know. But, I see that in not alone.

Jun 17, 2016 11:01 PM

I am in the same boat...what is sleep? I get two and a half hours and pop up wide awake for about four hours. After laying there frustrated with my mind racing I just get up, go read or watch a re-run. I do try to avoid the TV because of all the light.When I can finally go back to sleep I do. The biggest problem is when the pain is so bad that my brain works it into a dream and I wake up sobbing hysterical and then it really takes time to get back to sleep. I used to take benedryl and that worked great but now that makes my body jerk. I have also taken elavil very low (25mg) dose used for pain and that worked for awhile but now it makes my body jerk too. Maybe my body is telling me I am a jerk, lol. Apparently I am just to twitchy for my own good. Short version I just get up and do something quietly. Absolutely avoid the computer because the blue light balance wakes up your brain and then you will never get back to sleep. Hope you all are having a reasonably low pain day.

Jun 18, 2016 12:13 AM

I recently started tart cherry concentrate and it actually helps me fall asleep... I was highly doubtful. I tried it mostly for rheum pains but have found it makes me sleepy.

Jun 18, 2016 12:53 AM

I agree with you all... What is sleep??
I'm just starting to try the cherry extract, invisiblepain28.
For those of you use take melatonin, what dose do you take?

Jun 18, 2016 3:55 AM

Marajuana helps me sleep for a while. Sick of reliance on tramodol or morphine (which looses its potency and creates addiction).. i used to use these with alcohol in desperation. But as you can guess Its not a good road to be on.. so the sacred weed for me. Which has its own problems. But hey balancing up the odds i stick with now. its hard what ever we do, we must keep fighting.G

Jun 18, 2016 5:34 AM

Diamond I have taken 2mg Melatonin for 2 weeks and I can go up to 4mg. I'm not sure whether it has a synergistic effect with Endep as the dr told me to take them together in the early evening. It did make me very tired in the mornings but not so much now.

Jun 18, 2016 6:11 AM

The tart cherry juice has melatonin in it and that's why it's so effective in helping you fall asleep. That combined with the actual melatonin you take, it really helps. For those of you who vape, you can also get e-juice infused with melatonin, triptophan and other things that will help promote telaxation. I find that late evening if I vape a little big (like 4 hits off the atomizer) I relax so I can drift off. I do, however, only get between 2-3hours a night. Usually up all night and fall asleep around 5:30am and then wake at 7:15am. {{{}Hugs}}}} 💕🙏🏻🌻😊

Jun 18, 2016 9:35 AM

Wow, I didn't know! When I have tried melatonin before (3mg), it didn't help me get sleepy. So interesting. Thanks.

Jun 18, 2016 11:14 AM

I agree with you Groggy. Marijuana is what works for me too and as a bonus it has multiple positive benefits like anti-inflammatory properties. I can cut my opiods by 70%. Tell me which one is better for my body. I do not smoke it I take it orally.

Jun 20, 2016 1:22 PM

I take nortriptyline, Tranxene, & gabapentin 1 hour before bed. If I can't fall asleep I take melatonin, which I usually go to sleep within 30 minutes. If I wake in pain I take tramadol (or a muscle relaxerfor spasms), which makes me sleepy too (it wakes my sister up). And if I still have trouble I either read or play Sudoku or Scrabble until I'm sleepy enough to go back to sleep. Occasionally that's not until the next night. We all know that feeling very well! 😴

Jun 20, 2016 3:37 PM

I too struggle to sleep. Melatonin worked for a month, then it woke me up instead. I took 5 mg didn't feel anything below that, plus it's otc . Now I take Valerian. It helps, but I have to take it on a cycle or I'll end up disassociating without sleeping. However, I have to be in bed within 15 minutes of when I feel effects or no effect. I also take Phenibut (alternates weekly with valerian) which helps with my anxiety, so I sleep.

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