I always have mild-moderate muscle pain all over from the neck down, ranging 3-6. My neck & shoulders, feet, hands and buttocks & lumbosacral areas vary, depending on activity. My knees & elbows usually don't bother me unless I walk or climb stairs; they're more of the stiff kind of pain. And at bedtime I begin to have spasms & drawing up in the hands, calves, feet & sometimes thighs. The pain levels depends on whether its fibromyalgia alone, or in conjunction with osteoarthritis, pelvic floor congestion, and IBS. There's not been a single day in over 4 years that I didn't hurt somewhere, be it mild or severe. It sucks but that my life now... Slow & steady 🐢
I was told today that I walk like Frankenstein. I guess I do walk funny when everything hurts...it was my husband who said it too! So jays77 you are being a pain and I am Frankenstein. I am trying to laugh it off...
My head, neck, shoulders, spine, wraps around my ribcage, the back of my thighs, my knees, elbows, wrists, hands, ankles and feet. I'm sure there's more because my pain is so widespread but I guess I should just save time and say my entire body.
Blessed, After I stepped off the scales last night with a shriek, my husband asked what was wrong. I asked him if I looked bigger because the scales have gone up...again. He looked at me with a look like he was afraid to speak and said, "Well yeah, but I didn't want to say anything because you've got enough on your plate." 😰. He added he thinks its all the steroids they have me on, and he's probably right. But now I get to be told I'm in the obese range at my next check up, geez!
Where does it hurt? That is an excellent question. One I usually avoid because most people do not understand. For all of you I will try to explain. I hope it does not discourage anyone. At some point or another I think every cell in my body has got in on the action. The intensity varies, and from time to time areas quiet down for a while. Over the past 16 years I do not think a day has gone by with out my arms and hip hurting. The last 5 years my feet hurt all day everyday and my hands most days. With good orthotics and stretching exercisesy knees are currently less of a problem and my hip is improving. Who knows what tomorrow will bring. We are supposed to get temperature fluctuations tomorrow. Wishing you all a good day tomorrow.
Usually it's my neck, left shoulder, upper arm and 3 fingers. Sometimes it's my upper back, right sciatica, left wrist, left ankle, left hip, all fingers. And sometimes it hurts to try to speak (lol) cause I can't get the words out 😳
Flappyslady, my heart goes out to you. I have always been so conscious of my weight and feel your pain. I recently put weight on but I am not even on steroids! So what's my problem or excuse? Ah, its depressing. But, it could be worse...my husband loves me and I have my sweet.little boys...lots to be thankful for...I will try to remember that.
FlappsyLady, I understand your plight. My heart aches for you. Since 1992 when all this began an I kept deteriorating, I gained well over 100 pounds due to inactivity (not by choice to be a couch potato). I was the one who was never, ever home. I'd get up in the a.m. Have a shower, head to work, come home, have dinner and was out with my friends. I'd come home around 2-3am, catch an hour or two of sleep and do the same the next day. Friday's I'd have a bag packed, leave work, head right to a friend's house and go non-stop partying and go home Sunday (Monday Morning about 3am), to start the week again. When I started to slow down from pain, I still kept going out but only 3 times a week and then the weekend. Then, it just got so bad, not only could I not work, the going out partying came to a crashing halt. I still attended as many gatherings as I could and just stayed an hour or two. Then, it got to the point I was only leaving the house once a week to grocery shop for my family and once a month to the doctor. Now, after 22 years and too much wrong with me to list it all, I only go out if I absolutely have to (doctor, etc). I don't even leave for a haircut any more, my beautician comes to my house.i live upstairs and the most activity I get is cleaning my Ferret, Mischief's cage, and going up and down the stairs several times a day to get to the bathroom. Recently, just changing out some stuff I used to munch on for healthier things, I've lost between 80-95 pounds. (Considering I had my thyroid removed 14 years ago, I don't know how I did it, but I did). I am STILL over 100 pounds overweight but with such limitations on what my body can do, I don't know how much more I'll be able to lose. I don't want people to see me because their first comments are usually, you'll feel a lot better if you just lose weight!!! Well, you know what... After what I've lost, I DONT feel better AND I know and see several people at my pain management doctor's office that are thin and somewhat fit looking and they are in agony. Fat or thin, you are a person with feelings first and foremost. Keep strong in your faith because it really will, as you know, keep you moving forward. You're in my prayers. You are a kind and loving person always here to encourage us and to welcome new folks to the group. I, for one, am glad I got to meet you here in our group.
Flappy, the steroids have dine the same for me along with the biologics for my psoriasis. I'm lookinf forward to getting my CPAP machinr so I can get better sleep! Hopefully that will make a difference. If not I think bariatric surgery will be my last option.
I just worry about what damage all the meds I'm on might be doing. I know they're adding to my weight, but my husband loves me muffin-top and all. I'm very glad we have been committed since day 1, and were 34 years and counting. Most men would have left by now, but he's stood by me. I'm one of the lucky ones in that. I think about having returned to college after our girls were in middle school, got a 2 year degree and worked various posts in medical records (in coding I made good money). I climbed 4 flights of stairs all day, 8 hr, 5 days a week, and now its all I can do to get through the grocery store. Oh the days of health gone by... But at least our house is a one story ranch...no stairs. 😊
Lucky you..... I live upstairs and the bathroom is on the first floor.. LOL!!!! I go up and down so many times a day, sometimes I want to cry. Especially when I get the urge to go, don't think I'm going to make it there in time and then when I di, I just dribble (sorry.. TMI). Then I really want to scream.
FlappysLady, i definitely feel grateful for my hubby. He's stuck by me since we met, really. At one of the practices we went to fairly recently, one of the uro-gynecologists there mentioned that by the time women usually arrive at their doors they are alone. The men had left them already. How horrible is that. My husband knew going into this that intimate times would be far and few between and for the last couple of years nonexistent due to the pain I'm in and he's still here. Which was smart on his side because he has had escalating back problems and I'm here to support him as well. Sometimes it is us vs family. As long as we are strong together, we can get thru stuff. But it's still really hard.
My lower back hips thighs and behind my knees hurt almost constantly. Roving pain is in my shoulders, neck, elbows ,wrists, fingers and today a new one, my ankles. Oh and i get the worst burning between my shoulder blades a lot. Headaches a lot lately too. Lets see, i think thats every part of my body on any given day....just like most everyone else with Fibro!
Amie, our husbands are the real deal! Like y'all our intimacy is nil to none, and not because we don't want to. I had an exam by a pelvic repair surgeon who said after the exam, "I'm guessing intimacy isn't in the picture?" When I told him "no way after the last 3 attempts," he responded, "I can see why.". He was so understanding and plans to do trigger point injections first. We discussed the botox injx because that's the only suggestion another PF specialist made (who got mad when they heard I was going to the other doc...she tried to hire him and he told her no...lol omg😄 lol). Like you I have leaking issues, due to the PF dysfunction, but mine includes the bowels. My bathroom is 18 feet away from my chair and there have been many accidents. Yuk!!! I hate IBS!!!!! Anyway this new doc said botox is a neurotoxin and would relax the proper PF muscles to address most of my issues, but it would make my bowel leakage (if IBS flare is in diarrhea mode) much much worse! News for thought in the future. If the injx & PF therapy don't help were looking at surgery to see if scar tissues has encapsulated all my organs, again...its happened twice already after other surgeries. Sometimes I think "life handed me a bucket list that really sucks" ... That's when I stop the overwhelming depression from grabbing hold, and I begin to count my blessings, what I have with living longer for. Thank you God for more than the crap in my life!!! 🙏