Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Where I'm at

Mar 17, 2017 5:40 PM

Hi everyone, I've been a bit absent lately but I'm getting back on top again.
The main reason I've not been posting or replying lately is because I've been down, getting myself stressed and anxious about my rheumatology appointment which was on Tuesday plus in general I've been struggling a little.
Well I've had my rheumatology appointment now and then verdict is....
....The consultant has diagnosed me with fibromyalgia but to be honest I was expecting the dx but I wasn't expecting the dx on the first appointment, so was a little shocked at that.
I was also shocked when he said fibromyalgia is a psychological condition and I need to see a psychologist to talk through everything from childhood up to now to join the dots together to go through all the emotions so that it will clear/cure the fibromyalgia
He also said....which I wasn't expecting....that my knees have wear and tear and are starting to buckle under my weight, my left knee is particularly bad.
He wants me to have to have an ultrasound to see if I have Gaul stones as well because of the reflux I'm having even on 20mg of omoprazole a day with any other pain being masked by the morphine.
He also thinks that the morphine is also covering symptoms of IBS. Apparently I'm also on industrial amounts of my meds.

So ok it's taken me a while to try and process all this and it actually took someone to PM me on here with their concern for not seeing me around here lately and also reminding me that fibro is a very real condition, to get me back up and and out of my pity party!!! We're all allowed to have them but we also have to pull ourselves out of it and to do the best we can in moving forward for ourselves and our loved ones around us.

As many of you know I've come out of an abusive marriage then straight back into another abusive relationship and even tho I finished the last relationship 18 months ago my confidence and self-esteem and pretty much everything has been knocked down soo low and everything that comes with that but now I'm fighting back, I'm going to get my confidence and self-esteem back and with the help of my mental health nurse and the confidence therapy course I'm doing with the charity "Mind" are going to start with helping me get to a place where I'm going to be the best I can be and the happiest I can be.

I hope everyone else is have a pain free day and I'm sending love and hugs to help you all have a happy and blessed day/night xx

Mar 17, 2017 6:13 PM

Well when I went for my first appointment they diagnosed me with JIA (Juvenile arthritis) I'm only 16, I went from a super healthy teen, working 2 full time jobs to barely being able to get out of bed in the morning. I'm taking about 1000mg of celebrex a day along with 1000mg of Tylenol arthritis. I came out of an abusive relationship too last summer. It was horrible. Since being diagnosed with my JIA I've had very little to none self confidence and self esteem. I feel useless. I know I do have loving friends and family but some days I just don't want to wake up in the morning. I'm new to this app, but if you ever want to talk or need to talk to someone im here for you!

Mar 18, 2017 2:24 AM

Oh Donovan I'm soo sorry you are going through all that

Mar 18, 2017 2:47 AM

Being soo young and having an invisible illness is going to be hard, people will question you but don't let it hurt you or let it get you down. If people truly care and want to try to understand tell them what you want them to know. There are a couple of bits that might help people understand more the ones I've found very good are "The Spoon Theory" and the other is "The Letter To Normals"
If you can and really want to, have a look for confidence building course. Over her in the UK there is a mental health charity called "Mind" and they run such courses, the one I'm doing is based on building confidence after an abusive relationship or a breakdown and it is run by a counsellor and is like a group therapy thing as well.
If you need any help or just need someone to talk to them just give me a shout and I'll try my best to help you.
Sending you positive vibes and warm healing hugs xx

Mar 18, 2017 10:17 AM

Thanks Sezzy! Yeah it's everybody making fun of me. Saying "oh stop faking it" well I sure wish I was faking it so I could just go back to my normal life. It's also the fact that my gym teacher was trying to fail me in gym, so now I've moved and I'm taking online classes. Some days I go and I'll work on my truck because km not feeling that bad, where as some days I can hardly walk. Thanks for the support! Warm big hugs from CanadaπŸ˜ŠπŸ‡¨πŸ‡¦

Mar 18, 2017 10:25 AM

Hello Donovan..welcome to the group. I know we have a few members who are teenagers.

I do understand your frustration. I started having chronic pain when I was 12. (am 57 now).

Am glad you are able to do your courses online. Do you also have a way to get together with other online students? Perhaps build new friendships?

On a different note - my son went to college in Winnipeg. Loved visiting him there. :)

Mar 18, 2017 10:27 AM

Donovan unfortunately you will get that throughout the rest of your life, I have some family members who say "you need to push through it" "you can't be that bad" "stop being lazy" and so on....One of the worst is my step dad, he thinks I'll be fine if I push through it.
This community is great, no one is judgemental and everyone is very supportive so you can come here and ask questions, rant and rave and tell us anything positive and anything you want to celebrate....

Mar 18, 2017 10:30 AM

Hello Mimikay, Yeah I have alot of friends I haven't met yet, but I like to keep a smaller circle. I've got alot of trust issues. I'm trying to cleanse my life right at the moment. Because the last thing I need in my life is stress and I'm constantly stressed out. And yes, Canada is a great place :)

Mar 18, 2017 10:33 AM

I feel for you Sezzy, I had to sit down one time before I was diagnosed with my JIA with my mom & step dad because I wasn't pulling my weight and I wasn't a functioning member of the family. And all I really remember saying was "I wish one of you guys could feel the pain I have on a daily basis" and its never been the same since, I gave the pain to my mom to feel so she could show some more compassion for me and so they would know I wasn't just making it up.

Mar 18, 2017 12:09 PM

Welcome to the group Donovan, I am really sorry for all that you are going through. People can be so mean. Know we are here anytime you need to vent or just talk. Praying for you.

Mar 21, 2017 3:02 PM

Hi Sezzy, sorry to hear you have felt down its a lot to process. And to be told you have fibromyalgia and that it is psychological must of felt like a slap in the face. Did doctor explain how he came to this conclusion? I'd be interested to hear his supporting evidence big gentle hugs xx

Mar 21, 2017 3:13 PM

Dizzzi it really was a slap in the face, he said he doesn't care what the guidelines say, it's from trauma that normally happens in childhood​ and that seeing a psychologist to talk through my life and with time I'll connect all the dots and all the emotions and basically I'll be cured!!!!
It really threw me, it felt like he was belittling the pain have

Mar 21, 2017 3:28 PM

Hey sezzy . How are you feeling ? I'm sorry for all you are dealing with πŸ€—πŸ€—

Mar 21, 2017 3:53 PM

Hey Westrengirl, I'm much better this week than I have been....Getting my positivity back πŸ™‚, the lead up to the rheumatology appointment affected me more than I thought then the appointment itself​ kinda threw me but I've had time to process it and now it's time to put in place measures to help me and being positive and happy as much as possible πŸ˜‰
How are things going with you and your family?

Mar 21, 2017 5:12 PM

Hey sezzy. πŸ™„ I am happy you can see the positive side . That's great. We are good. My daughter got into trouble but life of a teen lol. 😊

Mar 21, 2017 5:27 PM

Lol yes teens can certainly get themselves into trouble then they just keep digging themselves in to a bigger hole!!! My 14yr son does it all the time but my 10yr daughter watches and is a little bit more streetwise than him so she's learned when to stop pushing and thinks I don't see what she does to get around me then gets upset when I say no lol!!! Kids will be kids and I wouldn't change mine for the world.....Ok maybe less cheek at times πŸ˜‚πŸ˜‚πŸ˜‚

Mar 21, 2017 6:05 PM

Mine knows there is a few things I won't go for and over the last month . She has done all. Lie. Cheat. Steal. Bullied. πŸ€”πŸ˜

Mar 21, 2017 6:24 PM

They all go thro that, my son tried to play me off against his dad recently (we're not together) to get what he wanted and it blew up in his face when I actually rung his dad to find out what was going on.....My son's not so keen on mum and dad having an amicable relationship anymore when he can't get what he wants lol.
It's a hard job being a parent and the only thing we can do is to keep the boundaries in place.
You're​ a good parent to know what's going on and to pull her in to line.
There are many parents who would say it's not their kid, their kid is an angel and wouldn't do anything like that. No one is perfect, we all have our faults but it's how we deal with things and try to put them right is what matters xx

Mar 21, 2017 7:58 PM

That is what I keep telling her. That we all make mistakes and we need to get pass them together . And also pointed out to her that I make mistakes all the time.. Thank you for that complement 😊 I always tell her if she's in the wrong then she did wrong and if she is in the right then I will stand up for her .

Ready to start relieving your pain?

Join Community