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White coat syndrome...

Sep 05, 2017 7:12 PM

Hello everyone,
This is my first time in a forum like this. I am 27 year old female in relatively good shape. I have had pain in my shoulders and spine for 9 years. In 2015 I finally had an MRI on my spine (c,t,l) and right shoulder as well as an ultrasound on my left shoulder (I got a job in the medical field). I have a bone spur in my c spine, multiple moderate herniations in my t spine and a hernation plus a tear in a disc in my l spine. I also have tears in both shoulders and trapezius spasms. I have never been in an accident and I have never played intense sports. My issue (a part from my constant, daily pain) is that I have severe white coat syndrome. I cannot have any interaction with a doctor or any needles without having a full on panic attack. A doctor recently said that I need to have blood work to see if I have RA. Does anyone else have this issue? I have no rational explanation to my fear. My loved ones say "just do what you have to do. Be a big girl" yeah....thanks.....that was inspiring. If I could just talk myself through it, I would have done it a long time ago. I am humiliated. I know doctors want to do all kinds of tests because of my "unexplained injuries". Any advice? Had anyone been able to be diagnosed without blood or injections?

Scared, scared, scared.

Sep 05, 2017 7:23 PM

I'm not afraid of doctors but know I have arthritis in my hands because my joints are getting big. I also have a bone sour in my neck which is arthritis. Fibromyalgia and bulging discs in back. I had the blood work done and it showed no inflammation! But I know I have arthritis no matter what their tests say.

Sep 05, 2017 7:39 PM

Has your blood work told you anything you didn't already know? I guess my frustration comes from doctors not wanting to explain why the blood work is absolutely necessary. I know that sounds ridiculous. I just can't believe that there is not another way in this day and age.

Sep 05, 2017 8:40 PM

No my blood work didn't painsteph. 😕

Sep 05, 2017 8:42 PM

Now they want to do an MRI on my neck and shoulder since the blood work showed nothing.

Sep 05, 2017 8:48 PM

@frustrated I cant believe that! My family and friends are even getting frustrated with me because it's causing them stress to see me in pain. Though I can understand what they are saying, it only makes me feel bad. My fear has nothing to do with my friends and family. My fear has nothing to do with hurting myself or others. It is a true blue fear. I cannot control it. Trust ME when I say that if I could just "get over it" (which is always thrown around) I would! It has become so hard to get support. It is always either "get over it and be a big girl" or "I'll come with you! I'll hold your hand and you can just look away!" Oh and my favorite "my mom is a nurse, she can do it! You're not afraid of her!" UGH. Never ending and unsupported.

Sep 05, 2017 9:10 PM

Have you ever heard of an emotional support dog? You can register them like a service dog and are able to take them into a lot of places! That might be an avenue to look into! I previously had one 😊 He made a world of difference with my anxiety disorder and panic attacks!

Sep 05, 2017 9:12 PM

Is there a way that they could order an anxiety medication you can take before going In? Or have the nursrs/doctor take off lab coat and just wear a regular shirt? I know that wouldn't help with the needles part but perhaps by making it a little less formal it might help ease some of the phobia? Have you discussed this with your doctor? If not see if his nurse will call you so you can discuss the problems with her and hopefully come up.with some things to try.

Sep 05, 2017 9:18 PM

@christmas7 I would LOVE this idea but I am not allowed dogs at my apartment. Plus I would not want to do a disservice to the pup with no yard and being home alone for 10 hours in the day.

@mimikay anti anxiety meds don't touch me. For example, when I was 13 I had several teeth pulled. The oral surgeon put me out with the sleepy gas. Before the procedure started, someone touched my finger and I shot up, pulled my hand to my chest and said "WHAT ARE YOU DOING?!" because I thought they were going to finger poke me. Being 27 and still so sensitive to this issue is just humiliating and paralyzingly :(

Sep 05, 2017 9:39 PM

Riddle me this....I have tattoos!! That doesn't scare me! My head is so confusing...

Sep 05, 2017 9:50 PM

If you had a service dog that dog would go everywhere with you, even work and out to eat. But have you had counseling?

Sep 05, 2017 10:22 PM

I hate getting bloods done but I have had to have a lot this year. My advice is make sure you eat and drink a lot before you go, ask to lay down while they do it and close your eyes. You could wear headphones and listen to music while they do it. My first couple of time I was petrified but it's slowly getting easier 💕❤️

Sep 05, 2017 11:11 PM

If it is a support dog or service dog they can not refuse you to have it at home. Check your regulations though! If you have a doctor's note stating you require the dog for medical reasons you shouldn'T be refused! Like I say check into it!

Sep 05, 2017 11:47 PM

Emotional support animals, comfort animals, and therapy dogs are not service animals under Title II and Title III of the ADA. Other species of animals, whether wild or domestic, trained or untrained, are not considered service animals either. ... A doctor's letter does not turn an animal into a service animal.
For more info: https://www.google.com/url?sa=t&source=web&rct=j&url=https://www.ada.gov/regs2010/service_animal_qa.html&ved=0ahUKEwiJ-YWs3Y_WAhVHxoMKHU1iCp8QFghxMAw&usg=AFQjCNFDrKQSf4WwOB6CAvM1bX2jRR8kQw
have terrible white coat and I have a medical degree, I find great humor in that. I usually just take my BP and tell them what it was when they come in. Typically I listen to music when I have blood draws. Stay hydrated (lots of water) it makes it much easier to actually hit a vein also ask them yo use a butterfly needle.

Sep 07, 2017 12:44 AM

My daughter went through ptsd during 9-11. The school had played the videos over and over all day at school. There was nowhere she could go to escape hearing and seeing it. She is extremely sensitive and this really bought her world crashing down around her. About the same time a stray cat peppered with embedded buckshot showed up at our house. Those two bonded instantly. This cat is what pulled her through. Her doctor wrote her a note so section 8 housing wouldnt kick us out of our home. Her cat became her emitional support animal. This was many years ago, and in Minnesota. Not sure if laws are different for each state or not?.

Sep 09, 2017 12:14 PM

Have you tried physiotherapy? We are trained to diagnose without the need to be invasive and also are much cooler and laid back than a doctor which might make you feel more comfortable. Also theyd get you started on rehab-ing those muscle tears and spasms and provide some conservative pain relief.

Sep 09, 2017 2:54 PM

Hello ..

I suffer from panic attacks just about everyday. Once I get control of my breathing, and slowly analyze my surrondings, then I able to relax. Tell whoever you suffer from these attacks when it's time to draw blood so they can help bring out calmer you. Remember the only way to find out is to draw blood. Tell yourself this small pinch is the answer to all your questions as well as your doctor's. If not your suffering will only increase.

Wishing you the best

Sep 10, 2017 9:30 PM

@Painedsteph1990.. Welcome to our support group. 🤗🤗

Sep 12, 2017 4:19 AM

Write on one sheet of paper your issues concerns and questions. Hand it to the Dr. l go with my sister as an advocate over the same reason you have. She is like a deer in the headlights so l explain things for her.

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