If you could just say yes and maybe state how mobile you are... ie- do you work? What do you do? Age? How old are you? What about friends, socially, cleaning, etc.. I find it interesting peoples' pain patterns and can pretty much pick out who does have it by just looking at the pain profiles. But I just want to get an idea of how much functioning you have,etc. I'll start below:
I am 38 and work as a mental health therapist in my own practice. I just cut back my hours to about 32 hours a week vs. about 45. I live in Maine where the temps fluctuate all the time. The weather is probably my biggest culprit. That and the fact that I like to do lots. I have not really cut back on cleaning, working around the house. But I am trying to take more breaks and listen to my body (when it starts screaming at me to stop!). I have a fairly active social and family life, but have started saying no to about 1/3 of the invites! instead Imtry to stay home and rest. It can be difficult doing lots, so I am trying to slow it down and rest more. However, if I stay on the couch it makes me sore toooo!
35 feel like I've lost myself. I'm in pain 99 percent of the time. most mornings it's hard for me to walk. I work full time as a nail tech, horrible on my body. I have 2 children to support though. cutting my hours in half and I'm freaking out. at a soccer game with my daughter wasn't sure if I could drive her there. my family judges me about meds and that im not the same person. well my brain essentially is damaged. and if they were in pain all the time they may be different too. i have chronic fatigue and severe brain fog. mine is an extreme case. it's very hard, honestly just yesterday I wanted to end my life. thank god I'm blessed with two amazing children that keep me going.
I'm 50. I think I've had Fibro most of my life but was only officially diagnosed 3 years ago. Typically I am in some kind of pain all the time. I've also been diagnosed with Lupus and RA. The unholy trinity. I have no children, been married for 23 years, but aside from Hubbie and Mom I have no close friends and rarely socialize. I just can't reliably honor any commitments except for doctors appointments. That and running very short errands makes up my life. Of course, I'm unemployed, waiting for the slow gears of government to grind and approve my disability. In my former life, I was a technologist with a promising career; I owned several businesses and held high level positions in tech companies- so all this forced stagnation really bums me out. Fibro flared up bad since I was assaulted in my own home while my husband was out of town. I've taken up watercoloring to occupy my mind. I do very little housework and I do manage to throw together a few dinners a week so we don't have to go out. We also have a friend living with us who helps out a lot around the house. There. More than you wanted to know, but you asked. Yes, I frequently feel useless, helpless, lonely, and always in pain. In my position, I have to ask why I am doing this. But still I persist.
39, just went on medical leave a few weeks ago and going back to work part time next week. I feel I have been having trouble for decades. Diagnosed in 2013, take gabapenton, tramadal when needed and flexirll for break through. Have turned to alternative meds to help, light exercise, meditation and the hardest one that I am in right now is no processed foods..... Gave up aspertaime completely, and boy did I love my diet soda, hope it will put it in check. Good luck to everyone, this is a hard fight.
44 , I was diagnosed about 7 years ago but have had it longer than that, I work in an office 2 full days a week, I have two grown up children and 4 G children . I have good and bad days , living in pain every minute of every day just the intensity changes.
21. my mobility changes by the day. I live at school and have trouble getting up for classes sometimes. I was just diagnosed in May. still haven't gotten it under control. it took almost a year to be diagnosed. I'm currently on mess and going to PT
59. Diagnosed at age 42. I have struggled with Fibro for years but in recent years it has become intense. 2 years ago I went Gluten free and did really well for about a year or so. but 7 7 months ago the symptons returned and I am at a loss. I remain gluten free hoping I will be able to figure the trigger out.
hi I'm 40 I work as a registered nurse 20 hours a week, I was diagnosed 2 years ago with fibro but Iv had symptoms since my teens. I'm a mum of 3, i took on my husbands children when he died 4 years ago and my new partner is widowed too so Iv got his kids too, so that's 8!!! I have to say I only have 3 young ones at home now as the others have flown the nest lol x Iv tried guaifenesin protocol for a year and it didn't really help me so currently take Celebrex, cocodamol and amitryptiline, I'm waiting for a pain clinic appt. I try my hardest to keep up with the housework but I do pay my eldest to clean for me at times apart from that I do everything, I get up at 6am daily as I'm not as stiff if I don't lay in, today is a reasonable pain day x
I'm 27, got sick at 15 diagnosed about a year later. had to drop out of school and was bed bound for several years. had no life. slowly I have improved enough to attend art school full time from 2010-2013 which was a miracle. however now I am back living with my mom-been the 2 of us for a long time. I'm starting up my own illustration business spend 85% of my time at home have very little social activity. I'm in pain and struggle with fatigue every day but I'm able to work off and on throughout the day? I take a walk most days
Hi, 39 years old, Dutch, diagnosed 16 years ago, but got chronic pain 21 years ago. I work as a marketeer for 36 hours a week. I have someone helping me with cleaning my house, and sometimes also with cooking. I don't have many friends, since a lot don't understand what it means to have chronic pain. most don't understand that one day you are better than others.... I don't like to take meds, only if I have any inflammations. i do go to a physiotherapist on a regular basis and I try to walk and ride my bike as much as possible. I believe that exercising is helping me in managing my pain, instead of resting... I did that in the beginning of my illness (restant as much as possible)that resulted in me doing less and less, so in the end I had to go to an rehabilitation Center to learn how to exercise and do things again. Don't want to got there anymore!
I do have fibromyalgia. Just started using a cane. I stopped working about 16 months ago. Went from 2 jobs to 1 full time and then a split shift and then part time and now nothing. I have a disability hearing Tuesday. Praying it goes well. I have days where I can't get out of bed. I miss the old me.
I have fibromyalgia, degenerative joint/disc disease, scoliosis, spinal Spondylosis, among other thing. the pain has been 24/7/365 for the last 18 years. I go to Pain Management and try to cope with ongoing pain as best I can. I had to stop working 8 years ago because I never knew if I could manage the day with my pain levels. I, too, have lost friends because I just don't want to do things I used to. horses have ALWAYS been my life (I owned two) and being around them is one of the only things that brings me peace. it's a struggle though to get up, get myself together and go down to the stables. just to be there, smell them, see them, put my hands on them. there's nothing like it in the world for me. I hope that you progress to the point that you can get some of your life back. as far as the friends you lost... I know it hurts but let one of them walk a mile in your shoes and they'd be singing a different tune. hang in there. medical science being what it is, there has to be something eventually that will help chronic pain sufferers be as close to pain free as we can get.
I'm a 40yrs old and I've had it for about 5years. I live in Seattle where the weather is damp. Most days I'm in alot of pain. I work full time but it's getting hard. Some days I'm in tears. It's a struggle to get through the day. I'm on meds like hydrocodone, Cymbalta, flexeril and ibuprofen. Which helps some. My mom also had fibermyalgia and when she was in her 60's she was disabled. So I pretty much know what's coming. It's very sad and I'm scared. I want to be active in my golden years without pain. I hope the docs figure something out.
49 and diagnosed three years ago. Haven't been able to work because I haven't been able to access meds (due to interraction of meds from another issue). Have just started on Nortripyline last week and hoping for some relief.
35, single mum of two small kids, diagnosed with cfs when I was a teen.... fibro started 3 months after my daughter was born ((3 years ago) been getting steadily worse, worse again after my son was born 16 months ago. not working, struggle to take care of us three let alone the thought of work too.....most mess have not worked or helped... take oramiroh and codeine when things are bad... takes the edge off but never gets rid...... trying to attack things from a diet perspective and supplements.
I am 21, I'm a caregiver! I love my job . I have fibromyalgia I have dealt w it for a long time.. started hitting me hard at 16.. I try to stay active and upbeat and not let the pain get in the way of every day life .. I try to make the best of it.. I get down SOMETIMES But I try to push through it .. I won't let this depress me like it use to.. glad I found this app .. it's nice to know I'm not alone ... I think sometimes we feel alone bc no one understands us unless they have the same problem..
49 - since childhood I've had to schedule what I call down time, especially if I'm looking forward to doing something. If I don't, I end up getting sick & missing out to what I have been looking forward to doing.
I used to be able to run around & get things done on good days because when I crash, it could be anywhere from a day to 3 weeks. Now-er days, every day is a difficult day. I have plenty of med's to help with each title for groupings of symptoms I have.
I'm at the point in my life that I would like to know & target what causes my symptoms instead if treating the symptoms. Getting traditional doctors to work with me in my pursuit has been a difficult journey. I feel they just want to push meds.
I've found acupressure, acupuncture & chiropractic care has helped but I'm very sensitive to the treatments & not able to attend appointment as much as practitioners would like me to.
I wish I could get a prescription a hot tub with jets installed in my home. When i get to go to my dad's time share & soak in the hot tub the relief I feel is tremendous!
I had a strange feeling one day this past summer, my feet didn't tingle, throb or feel cold.
I'm 44. had fibromyalgia for 6 years. on permanent disability; qualified with PTSD as first illness and fibromyalgia as second illness. on new med Wellbutrin. working fairly well but am having stomache issues with it.
I'm 23 and diagnosed about a month or two ago but have been in pain for about six to seven years. I work at Target and it's very physical but that is the only time I have less pain is when I'm working. I have horrible stomach issues so on to of the constant pain I'm always feeling sick. Lost friends because they think I'm making it up :(
FYI I was misdiagnosed FMS/CFS for 21 years. MDs are now coming to the conclusion fibromyalgia should be categorized as a symptom as it's name implies (fiber-muscle-pain). many times the disease underlying fibromyalgia is a connective tissue disorder. some people might find it helpful to google Ehlers Danlos syndrome and see how many symptoms/comorbidities you can sympathize with. ednf.org also has a lot of helpful resources.
your stories are all so similar to mine. That's no good, because of our struggles with day to day life. But on the other hand, reading them helps me dealing with my own. I sort of live two lifes: my private life where fibromyalgia is really present. But then there is my professional life. My colleagues and boss don't know that I am diagnosed with this. They do know that I have some trouble with my body, but they don't know the exact cause. and therefore I sometimes feel that I need to "act" at work, that everything is fine with me. but I feel so lousy sometimes....
OMG!!! You just verbalized what my life has become! I have to do the exact same thing. True to the creed "a leader never gets tired, never hurts and is never lost", that's what I portray for my team. And even hubby is tired of me coming home and being in pain. So, I keep quiet most of the time and go to bed early. Not much of a life 😢...
Hi. I'm from western Canada and am 51. I was diagnosed with RA when I was 23 but think that's when I had Fibromalgia as well. it came on 6 weeks after having chicken pox for the first time. it started with sciatica and eventually spread. I was a dental assistant at the time but went back to school for my education degree. I never did get to have my own class but helped co-teach preschool and kindergarten for 8 years. I haven't worked in 4 years as I don't know what I can do anymore.
Hello everyone. I'm 43 a nurse and work 36 hrs a wk. I have two teens and a very understanding mother. Diagnosed two years ago but like others suffered for yrs before. My biggest complaint is the fatigue and muscle stiffness. Mornings are not too bad but as the day progresses so does the pain and tiredness. No energy to do chores anything with children. When I get home from work its usually straight to bed with aching sore muscles 😩 I take cymbalta, mobic, flexeril, and ibueprofen. Hoping medical marijuana gets voted yes here soon.
Hi Jesswoo76 and all, just got this app as I've been struggling with increasing pain for over five years. i don't have an official diagnosis and this is part of the reason for downloading this app.
I am an Occuptional Therapist by trade so reading all your stories about how you spend your time and manage your condition has been really interesting. so here's mine,
From my mid twenties I have suffered on and off from muscle tension and debilitating headaches. when I get an episode it can go on for weeks and I can become tearful and down at these points. Slowly over the past ten years the pain has spread and become more constant. if I don't do some form of gentle exercise, like swiming or stretching and seeing my physio on a regular basis the headache will return.
I wake up every morning stiff and in pain. On days when I can't bare the constant nagging or it's too painfull I take Ibruprofen or paracetamol. they usually take the edge off. I am tired pretty much all the time!
I work two days a week and am a Mum of a 15 yr old and a 1 yr old, interestingly while I was pregnant the pain was far less. I try to stay active but don't do the heavy housework and have a cleaner. I have the type of personality that wants to get the job done and often over do it, to the detriment of my body!
Looking at all your pain diagrams it's really interesting to see how similar they are and that mine is too. I've be living in denial that I could possibly have this condition and been putting it down to getting older but have got to the point that I need to know.
ok so I don't have fibro officially or right now but at times it's really bad - the only thing to think of is fibro. I am hypermobile and a lot of my pain seems to be due to sitting, standing, or lying in one position for more than a couple of hours. long migraines triggered by muscle spasms. my sleep is very poor-sleep disorder, apnea, but not obstructive - 'neurological' - yep really. the past month I've been good but I stopped exercising because it was so tiring and now the pain is coming back.
also forgot to say. I am 40, married, no kids, work from home or while traveling, and this all developed in the past ten years and while in grad school. and I have had premature ovarian failure all my life.
Diagnosis with FMS about 15 -20 years ago! It is one of my Dx .....and it can be managed depending on person and degree of disease. How u eat, how you move around, some days expect nothing works just hard pain then there are days when you can handle it... One clue I have for all Never give up....there will be wars that u can win but u can win the battles,
I was diagnosed with fibromyalgia 4 years ago. Other diagnosis I have are PTSD, bipolar, anxiety/panic attacks and sleep apnea. I am 31 years old, married and have 1 child. I am a radiologic technologist, which is a very demanding job, both physically and mentally. I work 40+ hours a week. I have some sort of pain every day of my life. The location and intensity of the pain changes often. But lately I have been battling agonizing pain in my shoulders. Most days I rate my pain a 3-5/10, which I make myself just deal with. I know that I am not ever going to be pain free, so when my pain gets to a 5 or more that's when I take pain meds and muscle relaxers. I used to be on all kinds of meds for fibromyalgia but decided to stop taking them because they never took the pain away completely. I now only take hydrocodone and muscle relaxers when I rate my pain a 5 or above out of 10. I will not allow this illness to rule my life. I am not going to say there are not days that I don't just lay in bed because of the pain that I am in, but sometimes you have to use mind over matter and push through.
blessed by for you nailed it! Never give up, never give in! I bought a treadmill and use that whether I want to or not. I find if I don't use it I am in pain more so than when I do in other words, keep moving! I find aromatherapy helps, reflexology is a godsend! Acupressure even self applied, is also a tremendous blessing if you don't know what, learn it! Help someone else learned to apply it to each other.by all means, watch what you eat, get rid of diet soda completely! The acid that builds up is so harmful you would be amazed at the transition. Vitamin therapy is another positive step in the rightdirection. Stay away from gluten, white sugar, and yeast! God the Father is our only true compassionate care giver through His Son, Jesus, the Christ. He totally understands our every pain and limitation and inner strength as well! Surround yourself with like-minded family and you will never be alone again, unlike the many who simply have no time or patience for those of us with debilitating pain. I will commit to pray for all of you to find His peace despite what your body is doing! The Lord be with you all, Chaplain Nathan
Iathompson you said your husband is tired of you coming home in pain. Mine is leaving myself and my two children. He says I've lost my motivation! I wish for one day he could feel my crippling pain! I'd never wish this on anyone, but if it helped people understand........
I'm 21and I was diagnosed almost a month ago, though I've been fighting for a diagnosis for 6 years. I am unemployed. I was studying, but I was kicked out of the course once I'd gotten my diagnosis. They said they couldn't cater to my needs as it wouldn't be fair on the normal students. They actually said that. They didn't mind my additional needs that came with being deaf, but they refused to even try with the fibro. I'm Australian, and we're coming into summer now which always helps my pain. Though each summer I'm hospitalised due to bruised cartilage on my chest that prevents me breathing. I've had multiple leg and hip surgeries due to spontaneous dislocation and as a result I lost all conscious feeling. Two days ago my right leg, toes to hip, was full of the most agonising pins and needles. After four years of nothing in my legs to suddenly wake up with pain that amplifies a thousandfold each time I move is practically unbearable. I'm glad I got my diagnosis, because after six years of being told that it's all in my head, that I'm making it all up for attention, to finally have an answer is amazing.
I found it a huge relief when I got my diagnosis also. definitely makes you feel like your not going out of your mind. but to not teach you. That's illegal in the United States. and they would have s huge law suit on their hands for discrimination.
Hi all! I'm 29 years old (feeling about 70) and have had chronic back pain all my life. I've recently been diagnosed with Fibromyalgia and possible ME (still looking into that), as well as Disk Degeneration Disorder. I'm now taking Lyrica to assist with the fibro, and meloxicam for the joint pain and swelling. Any one else on these medications :)
Hi. Im 48 and was diagnosed with fibro & hypermobility syndrome a few months ago although had the fibro symptoms for several years since i was involved in a car accident where i suffered a brain bleed...stroke and hearing damage..i also have tinnitus and cluster headaches as a result too. 😩😔
Howdy to all. I'm 37, married with 5 kids. I was diagnosed with fibro and CFS in September, but my doctors didn't tell me on record until mid-October (long story). I know we were blessed in that my Pain didn't start until May. Prior to that, I was being seen for syncope, which we believe May have contributed to the FM emerging. Currently taking gabapentin and amitriptyline.
Hey there. I'm 21, I've been fighting this since I was 7. My mobility varies from day to day but I'm generally pretty immobilized. I was "officially" diagnosed with fibromyalgia in January. I haven't been able to work for just over a year now since my last job almost landed me in a wheel chair. Before that I was in and out of jobs trying to find one that would accommodate my health needs without leaving my employer short staffed. My most disabling symptom is nerve pain, which started 2 years ago in my arms and has gradually worked its way to my legs. I can do basic chores around the house like dusting, wiping down counters, cleaning the sinks/toilets, fridge but I can't wash dishes, vacuum, or do anything that involves much lifting and/or bending. I don't take any medicine because everything I ever tried left me with more symptoms than they helped. I smoke marijuana, which all but saved my life when I suddenly dropped 20+ Ibs in a month because of loss of appetite and unbearable nausea not to mention how much it helped with other embarrassing IBS symptoms. I tried regular PT but that always left me in more pain; tried the MELT method and it's not a cure but it keeps my nerve pain at bay and I can't go a day without it. I don't go out with friends more than once a month, but I go out with my boyfriend fairly regularly (he's one of the few people who's considerate of my mobility, so it makes it a lot easier to do things).
Hi I'm Lindsy, 30 years old. I was diagnosed with Fibro and IBS a couple years ago but had issues for a few years before that and even in childhood. I'm alsmot always in some fuel of pain that ranges between a 2-6 on my pain scale. I clean houses for a living and have been for over 10 years. When first started I was cleaning 2 houses a day everyday. When I was diagnosed I cut down to one a day. Now I clean one house a day maybe 4 days a week. I'm do end up rescheduling often or sometimes canceling on really bad days. The change of seasons is always really hard on me. I've been having a particularly hard couple of weeks and haven't been to work in a week and a half. Sometimes it's so hard to just keep going. My job is very physical but I work an average of 3-4 hours the days I do work. Plus since it's my own business I have a bit more freedom when it comes to sick days and my schedule. I have highs and lows. Some days I'm able to do a lot and others I can barley move.
Im 49 and have Fibro & Hypermobility syndrome. I had just gained my nursing diploma and was working upto 60hrs a week and really loving my work. Then i was involved in a car accident several years ago in which i suffered a minor vertebral artery dissection and suffered 2 strokes. I am now a shadow of my former self and hate my life. I lost not only my job but my freedom and social life as well as friends.. didnt take any drugs at first because i didnt believe in it. Now im dependant on them in order to get just a few hours sleep 😩😔
✔️Healthy eating 🍉🍎🍓 ✔️Massage 💆💆 ✔️Magnesium 💊 20yrs old, diagnosed with fibro & neuropathic pain about 1yr ago. Had laser treatment which has cut down pain about 50%. See Quantum Health Clinic in Kingscliffe NSW Australia!! Really helps me maintain a happy balanced life without too much pain :))
I'm 40 and I just have fibromyalgia, initially the drs thought I had an immune type arthritis but my inflammatory markers never go up! My pain stays pretty much the same and doesn't move around at all, I'm also a nurse and work with 3 colleagues with this condition!
35 married, self-employed. Diagnosed 6 years ago. I was a very active high school teacher, but had to stop teaching because of a herniated disc and degenerated discs. Had surgery last year to remove the herniation. As for the fibro, I have the roaming random type of pain (minute by minute pain updates, anyone?) and hellish insomnia. I'm on Cymbalta. Chiropractic helps with the back pain. Wishing I lived in a state that allows medical MJ. My husband and I used to joke that we need a maid, but I'm not really joking anymore.
I've been doing yoga for a while, too. Nothing spectacular, mainly basics, but it helps. So does meditation and gentle exercise. B complex vitamins help with energy, and I'm trying to ease my carnivorous husband into a plant based diet. And eliminating sugar.
Overall, though, I REFUSE to allow this to ruin my life. I have a few friends who understand (med students like my husband) and who help me get out of the house. My husband is supportive and encourages me.
I have not been diagnosed with fibromyalgia (yet, if I may say so). Reading everyone's symptoms I have a feeling it's only a matter of time. I thought my fuzzy brain was still recovering from a concussion, but that was four months ago, so there's got to be something else going on as well. The traveling pain, the pins and needles, the muscle spasms, It's all there. The nerve pain in my cranial nerves is what gets me the most. Four months and counting of relentless, everyday headaches. I'll be getting some botox shots for those on Tuesday. I really hope that helps...
I was diagnosed with fibromyalgia in 1997. I was bedridden for a year. In pain, sleepless, confused. A Rheumatologist & Homeopathic doc helped me stabilize. It was a big change in my active life. I couldn't work, socialize, be me. I have learned to accept what has happened & do the very best I can each day to stay happy with my reality as it is now. In a flare I know this will pass, but help myself as needed, It varies with each flare. Its still very frustrating, my mind says I can do things, but my body wont comply. War is always being fought. Im 63, my happiness & self esteem come from my volunteer work. I take Lexapro to calm my nerves, muscle relaxer as needed, various alternative meds for sleep, pain, anxiety. Imodium for IBS, but Lifeways Kefir to stabilize it, that helps alot. Lyrica resulted in a very bad reaction. Vicodin too. The opiates dont help much. Since each flare brings new surprises ( not good ones) I am always interested in new approaches. As I age I have learned to accept change, but want to stay positive. I enjoy a good pity party like all of us have to, but I've learned not so stay there to long. Negativity is my worst enemy, I just can't deal with that! It literally makes me sick. I hope this helps someone. We all need "good words" from each other, thank you for yours!
I am almost 32, have Fibro, diagnosed with it for 4.5 years but probably started it alongside CFS symptoms 10 years ago. I am in grad school full time and fairly functional and have minimized my pain through supplements, physical therapy, staying as active as possible and gradually increasing exercise, pacing, reading lots of books, self care to manage flares, meds, and therapy.
I am 22, and am a grad student most days I force myself to function but some days I can't and just crash. I have 80% mobility, ie stiffness, locked joints, subluxating joints, balance problems, exhaustion, pain, that doesn't account the fibro fog that makes me feel braindead half the time :p
34, unemployed for 8 years since dx but had it most my life, have artihritis too. No social life, live with mum, she is my carer. In pain most days, but tiredness is worse at the mo, try new things all the time as pain eventually stops me, oh have hypermobilty too
Hi I'm 26 I work in fast food at McDonald's I was just recently diagnosed bout a month ago. I live in Wisconsin n usually my pain happens mostly when I'm lifting, bending, walking or carrying things but lately been having back pain just sitting n my legs sorta also. I have two young kids n I'm always fatigued n work is getting more difficult as it is faced paced at times. I was just prescribed gabapentin a few days ago. Anyone know if it helps?
Reading all everyone's responses I feel has given me a little bit more understanding of our condition but also sorta scares me I'm only 26 n my pain has only been going on since July. I'm already getting annoyed with being in pain all the time I want relief. In my opinion tho I was just recently diagnosed feel like everyone or maybe employers should read bout the symptoms of fibermyalgia so people without it understand it's not easy for us to do certain things. So thank u all for the stories. N plz annything to help me? My main problem is the fibro fog, pain in movement and headaches often.
Pain: Skin hurts to touch. Muscles always feel like I exercised too much yesterday. . Tendons and joints painful. Everything is painful at one point or another. It moves around so much and sometimes so fast. But I have areas that are always symptomatic... Hips, shoulders, wrists, hands, fingers. I have "golf elbow" on both sides and I have never played golf in my life!!! Lol Have always been extremely sensitive to cold. It is actually painful to touch something too cold or to be in cold temperatures. I live in Vermont, US and it is 2 degrees this morning. Everything aches. Chronic headache... Not migraines just last for days. Have always been classified as a "space cadet", "airhead" whatever... "Butterfingers" because I'm clumsy.. Hypermobility... I have fallen down so many times in my life because of my ankle, knee or hip joints giving out. "Loose ligaments" run in my family we have always said. Low grade fevers. Dry eyes. Dry mouth. Up until I was diagnosed with extreme hyperthyroidism I was very hyperactive ... I could never shut myself off but was still going through all this other stuff. went through the nightmare of using radioactive iodine therapy and losing function of my thyroid and waiting until my TSH was pretty much zero and then starting on meds to get me balanced out. It never happened!! That was 17 years ago!! Thank God that a chronic white blood count got me referred to a hematologist who was very observant and we talked about Ehrler Danlos and Sjoghren's. He referred me to a wonderful rheumatologist and we went on for a long time trying to figure me out. As of now I have been "officially" diagnosed with: Systemic lupus, fibromyalgia, Sjoghren's, Graves' disease, and osteoarthritis. I take so many meds... Including Cymbalta , gabapentin, levothyrixine, plaquenil, methotrexate, Wellbutrin, oxazepam, folic acid, vitamin D in large dose with calcium, low dose aspirin and Vicodin 5/325 I take 3 twice a day. It keeps it tolerable. Now as I am a member of this community I feel like I can share it all and get it all out at once. I am so tired of trying to keep my complaining to a minimum. My husband and family are wonderful and try to understand but they never will. So, "hello, my new family"!! Well, I definitely feel better now knowing I'm not crazy... It's not just me... WOW!! I kind of have to readjust my whole way of thinking. I will let you know that what I believe has saved my life is a really good (and sometimes weird) sense of humor. I have a funny family and I have funny friends. The day I stop laughing is the day I don't know if I'll be okay. So everybody try to find something to laugh about today or even just smile about..... I hope everyone's pain is eased a bit today... Live, love and laugh...
Wow, I can relate to symptoms described by JustBcuzz. I've had symptoms 5-6 years but only got diagnosed 3 years ago. I have so many other DX following a major pelvic surgery from a mass that its sometimes hard to determine what's causing what. Had to go grocery shopping with hubby ystrdy, and (thank you for big stores...not!), I could barely walk by the time we got home. Some doctors accept fibromyalgia as a true DX, but others don't. Because of the osteoarthritis & neuropathy I went through epidural nerve blocks on my spine, multiple... Its made my symptoms more bareable, excluding days like ystrdy, where we had to be out running errands too much at one time.
Do u think I have fibromyalgia? Anyone answer I don't care!
Im a 13 year old female. I have had pains although my body for 2 years. I would rate the pain 7/10. I believe I have chronic muscle and joint pain. The pains are in my joints and muscles. The pains are all over my body. They mostly occurred in my feet and legs, but also my arms and back. The pains have slowly got worse. They occur everyday. Everything about them is random. They always change. It's so random that sometimes it hurts to touch and other times it doesn't, the pain moves, the type of pain changes, the intensity and where it is. It's a combination of these things at once but it changes. Pains happen when walking, running, jumping etc but also sometimes when sitting down, or not moving. It's rare that I can walk without anything hurting. Lately I feel like my left arm is very weak, (I'm right handed) and hurts when I use the muscle. I also find that roughly where my large intestine is and under my ribs gets pain sometimes. I have glasses for things at school like reading or on my iPad or looking for desk to board because my eyes have trouble focusing, don't know if related. I sit out on most pe lessons because I just can't join in. Mostly I just try to deal with it. Sometimes I have to limp. The doctor has given me supplements because I have some vitamin deficients. I also have orthotics because I have flat feet. I have been wearing them for 4 months and these is no improvement at all. I have been taking the supplements for 2 months and still no improvements. I have had blood tests, and they only show iron deficient and nothing for anything else. They don't show anything for arthritis either. I don't know how to describe the sort pain but I would say aching but the type of pain all ways changes. I get cramps when running sometimes as well. I also get a lot of cracking which is sometimes painful. It happens almost everything I move in an awkward position. Sometimes I also get tingling fingers and sometimes toes. My fingers get numb when easily. They go white then after about 10 mins they go purple then back to normal. In the shower sometimes my skin gets these weird red blotches. They don't hurt or itch. My shower is quite hot, and they only appear a my lower back and left side of my stomach. Sometimes randomly I get this weird thing where my skin feels really sensitive. It hurts to touch, even just the lightest bit. I find it hard to concentrate a lot sometimes. I just can't. I also get memory loss, just after I've thought of something or am about to do something and I can't remember it. This happens a lot, like all the time. I also get random really small muscle twitches. I normally get a small headache at the end of the day. I used to do netball and diving but have stopped because of pain. I have seen many doctors, specialists and no one knows anything. I have seen a peditrition, foot specialist, eye place for glasses, nutritionist and local doctors loads of times and nothing has helped.
Recently I've noticed lumps inside my nose. They don't hurt, but make it a little harder to breathe. I've also noticed that I feel like I've pulled all my muscles. Like I'm bruised all over. They hurt a lot doing simple things. E.g getting out of the car. And I've noticed the I have been getting bruises from doing nothing, they just appear. Or either I'm bruising really easily. They sometimes hurt and sometimes don't. On the 3/11 my hands were tingling for 6 hours. And afterwards in bed I felt like I had a dead arm. This wasn't caused anything. I've been getting lost of headaches as well. I get pulsing points randomly, recently.
I have been taking supplements and wearing orthotics for 3-4 months and I've noticed no difference. It even be getting worse.
I have all symptoms for fibromyalgia apart from fatigue, a might have it a bit, but not a lot. I also don't know if u have tender points. Please tell me if you think I might have fibromyalgia. If it's not fibromyalgia then I think it might be nerve pain.
Zam - you really should start a log with all your symptoms listed nice and neatly on paper and track situations where certain things happen, like your hands getting cold and changing colour (raynauds). That will make it easier for the doctor to actually give a diagnosis, and you wont have to remember everything when you go in because it's all there. It also helps when going to see a specialist because then you are giving them the same info the doctor has and nothing is missing. I hope you find answers soon. Be prepared for a lot of ' you can't have *insert condition name here* because you are too young.' I still get a lot of that and I'm 27. Keep on the doctors and your parents and don't quit.
i am in severe pain almost all day i am on diclofenac sodium 50mg twice daily also hydrocodon 7.5/325 as needed. i am tired all the time in a fog most days. i have other problem that go hand and hand with fibromyalgia. i hate life. i am depressed alot. if it wasnt for my kids i dont think i would be here. its hard. i cant work anymore do to the pain. i have chronic migraines all most daily. by the way people with chronic migraines fluorensent light are by bad to be in.
Hi, 41 years young. Married one year with a 5year old step son. Started with problems in my 20s with endometriosis and a hysterectomy by age 23. Hypothyroidism diagnosis in 2014,fibromalgia in 2015, osteoporosis and degenerative bone disease. I'm employed full time for tmobile but using fmla, so I can come and go as needed. My fmla will run out soon. I don't know what I'll do. I'm in so much pain 3 out of 4 days. I try baths, heat ice Epson. I'm trying Cymbalta and minivelle as well as Guaifenesin and vitamin d3, and cannabis cbd. I cut out gluten, soy, salicylic, raised my magnesium, potassium, calcium, iodine, serotonin, melatonin, cut out tea. Added honey, ginger, cinnamon to my daily intake as well as egg and yogurt. Anyways I still feel like crap.
25 I haven't been formally diagnosed. I am in the process of getting a new doctor because mine isn't interested in sorting out what is wrong. I've had issues for as long as I can remember. I am currently finishing my last year of school for engineering. It took me six years but I'm so close. I have found active release therapy is good for deep pains but if I'm too sensitive I can't handle the deep manipulation. I'm also on a whole slew of natural supplements including 5htp, lithium, magnesium, phenitropic, inositol etc. My stomach is doing sooo much better now that I've cut out dairy and gluten although I didn't notice much change in pain or fatigue. I haven't managed to find anything for my dizzy spells. So far I've just been treating symptoms and unfortunately my husband is just starting to come around to believing me when I say I'm at my limit so I'm not pushing myself over it quite as often as I used to. It still happens way more frequently that I would like it though.
I have fibro. I am 59 and was DX 8 years ago. I have been in SSDI since 1994 because of mental disorder. I am single, no children and live by myself. I am on tramadol and Lyrics. They helped a lot with pain. My back and legs hurt most of time. My sister and nieces and nephew live nearby but don't help me. I find it difficult to get cleaning done. I went gluten free. It cut my pain level in half.
17- i was diagnosed with fibromyalgia in may after being in pain for as long as i remember. things started to get unbearable a year ago, stopping me from being about to hang with friends, go to school, shop, anything fun or beneficial.after only being able to attend school once or twice every month in the semester , i had to withdraw and do online school. my symptoms include horror migraine, joint pain, skin sore to the touch, light and sound sensitivity, loss of apetite, foot pain, you name it i got it. Im always told that it's weird that i fibro so young, people say it like i asked for this. it feels like the life has been sucked right out of me . my brain is like mush, i cant remember anything, can't focus, i daze out, it really sucks. i feel pressure and pain all the time. Im no longer able to have fun like all the kids my age or apply to colleges far from home because im reliant on my parents to help me through the times where im in so much pain all i can do is lay there. although i think my symptoms are awful, i try to remind myself that i'm probably experiencing a whole lot less than a lot of you on here .
I'm 35, diagnosed 9 years ago right after I had my second child. I was told not to have any more children due to it would make the fibro worse. Live in Nebraska where weather is constantly changing and is an issue. When I lived in Texas, pain was much better. Had a full time job until four years ago, now work part time as treasurer for my church. I do have to say no a lot to friends, but they do understand the best they can about my pain. Used to exercise a lot, which did improve the pain, but when I moved to Nebraska, pain got so much worse, I became immobile, and have to push myself so much harder to get anything done. I know I need to exercise, but it is very difficult. I am on multiple meds for fibro, migraines, IBS, depression, and anxiety (due to the fibro and fatigue that comes along with it). I used to be a very active person, and my house used to be clean always, but I started getting the fibro symptoms about 13 years ago, and have been fighting ever since. It is a constant battle, but I will never give up.
I'm 37, live in GA. Mom of 3 boys - 21,16,and 11. . I was diagnosed 4 years ago. But I've had the pain problems since I was in middle school. I was a correctional office, had to quit due to safety issues(fibro fog, fatigue, missing days from work and etc.) I was very active with my oldest son when he was smaller . My youngest 2, not so much. I had to cut out any extra stress, pretty much all physical activity and I loved being outside playing with my kids. Not to mention I'm no longer interested in doing much more than what's needed. I do try to do what I can when I can and I've become pretty good at moderating my energy supply. During flare ups, there is no regular pain list. It changes or progresses each time. But each time is exhausting! I sometimes still catch myself thinking this is just crazy! There has to be more to this than what the Dr is telling me. Or I try to rationalize it to myself. I gave up explaining all my aches and pains to everyone a long time ago. I just push through and stay strong for my boys.