Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Who do you want to connect with?

Aug 12, 2015 4:04 AM

Hi everybody, I have another question for you ;-) As you probably know, we are trying to provide a personalized community in which you find the people and the content which matter most to you. We believe that you can get/give the best support from/to those people who are very similar to you. But what does similar mean?

- same pain pattern like you (pain drawing)?
- same diagnoses?
- same age?
- same gender?
- same family situation (children, divorced, single, etc.)?
- same job situation?
- same ...?

Which are the 3 most important factors to you? Who do you want to connect with?

Hugs,
Daniel

Aug 12, 2015 8:44 AM

Understanding, humor, empathy

Aug 12, 2015 8:45 AM

There are many more but those are the ones I could think of

Aug 12, 2015 9:02 AM

I think diagnosis and age help me connect to others more quickly at least

Aug 12, 2015 1:14 PM

Pain pattern, diagnosis, and age.

Aug 12, 2015 4:59 PM

Can't really use pain pattern as mine changes daily!
Age bothers me not one iota.

I guess similar dx is about all that matters and even then it doesn't have to be identical.

That's it. 😊
P.

Aug 13, 2015 2:14 AM

Same diagnosis.

Aug 13, 2015 11:13 AM

I'm new but have the message board comforting today. While age and family situation are more top of the list for me I've also found the biggest connections come from those experiencing chronic pain. Maybe that's just where I'm at right now but along with chronic conditions come- giving up activities and social life, explaining to others, guilt etc. It helps to know I'm not the only one...so a big thank you to everyone who shares here.

Aug 13, 2015 11:33 AM

I can't really say anything specific. I enjoy connecting with everyone. They say wisdom comes with age, but in today's tech savvy world I'm outdated & outmaneuvered. And I enjoy the younger generations advice and ideas just as much as from those in my age group or older.

It's maybe easier communicating with those who have similar conditions, but I also have learned from others about conditions that fit my symptoms, only to later be diagnosed with them or something similar. If I couldn't connect with anyone other than those like myself I wouldn't have even known about possible diagnoses to ask my physician about.

I enjoy humor and the ability to share joy too. Suffering with chronic pain, I need the break of pain and glum days by laughter and joy, whether it's mine or someone else's. 🙏🌼

Aug 13, 2015 1:17 PM

I'm not concerned with age, family status or any of that. Diagnosis isn't even a biggie. I'm just glad I can come here and talk to everyone and help as many of these wonderful folks as I can with whatever support I can give. Even if it's something as small as a virtual hug. I think you really need to just make it that if there is a person or people that you develop relationship with and feel better talking with them, then you should just be able to send a private message or direct message to ask if these people want to allow a closer connection. That is really the easiest way to go in my opinion

Aug 13, 2015 1:52 PM

I agree with AlwayZ. It seems much simpler that way.

Aug 13, 2015 2:13 PM

It would be neat if we could filter the threads my diagnosis but still be able to join any message to get a sense of community.

Aug 13, 2015 2:37 PM

Also I would be cool if we could follow certain posts and then get a push notification when someone comments

Aug 13, 2015 4:42 PM

I like age, but it would be cool if it was s range instead of a single number. I couldn't enter my diagnoses on here but it round be cool to connect with other people. It's pretty hard to define things by how we describe our pain, so that seems a bit unreliable. I think it would be cool to have the option to show more info about you on a day.

Aug 13, 2015 4:50 PM

I'm new here. I started looking for similar dx and pain patterns hoping to get some insight or advice.

Thank you to all who share their experience. It does me a world of good to know I'm not alone. It's hard to explain how I'm feeling "okay" one minute and in pain the next to those around me.

Aug 14, 2015 9:45 PM

DX is a good one and I would also like to find people with similar hobbies and interests. Maybe others who understand not being able to do something specific that we love.

Obviously everyone here can relate to that statement in SOME way, but I would like to find people to relate to me in the SAME way. Age, gender and family dont matter to me.
Hope that makes sense, thank you for letting us have input!!

Aug 14, 2015 9:50 PM

Pain pattern, similar issues. I don't think anything else matters.

Aug 18, 2015 8:25 AM

Many thanks to all of you for your feedback. We will try to adapt the app accordingly.

Aug 18, 2015 8:26 AM

Please feel free to continue giving feedback ;)

Aug 18, 2015 9:22 AM

Same symptoms as everyone has things differently, similar triggers, similar life situation like working/unable to work, still active/limited activity

Aug 19, 2015 9:01 AM

I kinda like being able to see it alL.. it's seems like the tab like me is spot on and most everyone is going through the same things.. if I had to choose would be pain...then diagnosis..after that it's gravy...

Aug 19, 2015 9:07 PM

Same diagnosis because there could be something out there that I've never heard of before. Then I can talk about how that treatment or Dr specialty helped that person and maybe pass on that information to help some one else!

Aug 19, 2015 11:04 PM

Being a teen, I'm always hoping to find other teens but it's not that important because I relate to everyone else, just sometimes it's different. I guess one thing that would be cool would be to find other people who've had pain for the same amount of time. Like if there was an injury, or if you were just born with health issues (like me) or had a stressful situation trigger chronic pain (sis). I have never lived without pain, and in certain mods I'm looking for people with that same experience.

Aug 19, 2015 11:38 PM

For me I'd have to say diagnosis would be the most important. I don't care about the rest. If I may offer a suggestion, a "hug" button would be great.

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