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Who has/had shingles?

Feb 26, 2017 1:32 PM

I've read other posts here about shingles, but I have a specific question for anyone that has *personally had shingles*.... mom found out about 3 weeks ago, after a trip to the ER with severe pain & headache that she had shingles. She went the same day she broke out in the rash & they immediately started her on meds. She got better for a few days but is now worse again. The rash had dried up, but still visible & red and she's having excruciating pain directly under the rash, located on her back near her shoulder blade. She said the pain is so bad, it takes her breath & nothing helps it. She's also afraid it could be something else because of the length of time she's had it & the severity of her pain. Is this normal? Is the pain so bad that a woman who normally has a high tolerance for pain be completely incompacitated for weeks?

Feb 26, 2017 2:00 PM

I've had it twice on my side. It's aweful. I got nerve damage from it and was put on lyrica for postherpetic neuralgia. I've since switched to neurotin. Both work well on the pain. Lidocaine patches by prescription may help too.

Feb 26, 2017 7:30 PM

That's normal for shingles Merkabachild. The pain is terrible. As Goobette said it causes nerve pain. Sometimes permanent.

Feb 26, 2017 8:03 PM

When I had it my doctor suggested I go to Walgreens and get a cream called Callahist. Its a mixture of the calming callamine lotion combined with a histamine. Of everything I tried this worked best and later when mom had an outbreak it really helped her.

Feb 28, 2017 1:09 AM

You need an amino acid supplement called L-lysine, you can find it easily on amazon or Bulksupplements, com. Any outbreak of herpes, cold sores, shingles are herpes zoster, basically chicken pox, is caused by a lack of lysine in your diet. If you get some and take it 30 minutes before breakfast and lunch, your sores will go away much faster than with what little medication they give you.

Feb 28, 2017 11:24 AM

Thanks for the tips! She went back to the ER yesterday because she said the pain was so bad she thought she was having a heart attack. They didn't check her out at all just told her that it was common for shingles to hurt that much and sent her back home. I'll get her the supplements & cream you all suggested and hope it helps!

Feb 28, 2017 3:43 PM

Yeah, I had them when I was 24, caught them when my niece had chicken pox. It started with a pin in my back sensation, I made the mistake of scratching it and it spread. I didn't know then about the Lysine and they gave me Tylenol with codeine and liquid cellophane. Neither of them helped and a breeze can cause extreme pain!

Feb 28, 2017 4:05 PM

I've had it numerous times. The nerve pain is horrible with it and can last for months after the rash goes. I'm on meds permanently for it or I will get it constantly having lupus and being on immunosurpressents.

Feb 28, 2017 9:17 PM

Had it 5 times and the pain is surreal. I tried the vaccine for it, ended up in ER Allergic to vaccine. I'm now on Vaclovrye on a daily basis to slow down the duration of shingles. Having CRPS on top of that, is unbearable! Hope it goes away quickly.

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