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Who is ready for the crazy to come out?

Mar 28, 2016 2:23 AM

I am by my standards, a most reasonable , smart, intelligent, and fun person.....most of the time. As for the other 98% of me , well; let us pray. Dear Sweet Jesus, we have come together, here, in this forum, to support,love and piss each other off. (Angelic smile)....sorry...I have already gotten off topic because I can not at this precise moment remember why I started it...shall we pause for a brief moment while I gather my mind..........AAHH OKAY. I remember now. Our brains are not normal...we have whacked out brains. Our brains don't precieve signals correctly! We don't think like other people... In other words, You cra cra..actual crazy. Our brain chemistry and pathways and gateways and neurotransmitters are whack-a-doo. A regular good ole pain med doctor can't fix it , they are working on tons of brain chemistry / membrane stabilizers/ brain communicators(so to speak).
I am sitting here at 2:00am , talking to my phone to a group of people I want in my life about us being a bit whacked out is ...kinda crazy.
We can help each other in ways that normal brain humans can not. When I tell you that my upper back and right hip has been hurting, ya all get it. In other words your whacked out brain says to my whacked out brain " girl, I understand ",/now if I say this to my normal brained Son, he says," oh, I am Sorry...etc.
I am posting this in hopes of future needs for each other to remind each
other that "people we are whacked".
I am sitting here laughing at myself when I think of future references to our woes..our pain ..our diseases. We are whackadoodles, our brains do not respond normally to anything...so please don't slap a.bitch here , I am just reminding us that we all have a lot of stress. Enormous amounts of stress. Tons of body symptoms, which we typically analyze , over analyze and almost obsess about every thing that we feel. We gotta stop. We gotta remember it may not be exactly as we think it is, I believe when I fall prey to this myself, I GET WORSE,my stress increases, my breathing rate increases, my pain gets bad or worse ...I stop having rational thoughts. I have to be reminded girl you are cra cra! LoL, honest!
I shall shut up now , please remember, it's our brains they need to work on the most as well as finding treatment plans that can help us function until future medicine is laying on a stretcher, in space, and the Star Trek doc waves this funny sounding remote control thingy over our bodies and then Puff we are up feeling super fighting aliens from other universes.
However, for now, We Got Each Other and our whackado brains to deal with. Please feel the love , please be blessed, and take any pysch meds you have! Love, my new username shall be,whackadoodles.... Lol TERRI

Mar 28, 2016 6:44 AM

LMAO!!! I love you, Terri!!! And if I am cra cra, then I sure am glad I have you by my side to be cra cra with!! ❤️❤️

Mar 28, 2016 2:18 PM

All the cra cra's are the best! U just have to own it!!! Love ya too!💕

Mar 28, 2016 2:46 PM

Interestingly long post Terri.. I suppose tho you r right. Our preseptiona are different in many ways. And we do not function like others. Although we are asked daily to function and appear in living color to out normal lives. Which is not at all easy nor understood.

Mar 28, 2016 4:01 PM

Terri, thank you for saying that. Sometimes it takes a ridiculous amount of time to write a post. Often I reread to find it makes no sense, even to me.
Yesterday I cried because I suddenly had to stop playing a board game for young children. I couldn't think or remember what to do. My granddaughter had to help me.
I don't know if it's the fibro or the MS, probably both. But I am definitely crazy too.

Mar 28, 2016 5:25 PM

Are we on the special bus or crazy train? I would like to request my seat. I always say I am half crazy because if I were all the way crazy I would not know it. That being said all aboard............

Mar 28, 2016 5:43 PM

Omg lol!!! Your brain fog clearing-ness in your post, Terri, cracked me UP. Before I got RA and brain fog, I would read posts like yours in a "haha how silly" kind of way. Now? Now I get /precisely/ what truly went on. You seriously had a brain fog fart. I pictured you sitting there, brow furrowed, lips pursing as you tried to recall wtf you were writing about.
Then finally it came back and you resumed. Just proof that yes we ARE of our own "breed" of Super Human ( why not?! We survive pain on a daily basis that would end lesser folk. We adapt, we pull through, we go beyond the normal "having a bad day/tired" feelings non chronic pain folk feel and somehow get through our long work days to do what we gotta DO to keep SOME semblance of normalcy in our really truly un-normal world.....

We are Super Humans.
And we do indeed have our own language.
Our own walking gaits.
Intimately know how many Dr's truly don't give a f*** and we wonder 'WHY get into medicine if you plain don't care......' We are super human, no doubt, no doubt. We all have our badge also, and it's called Pain Warrior.

Gosh, your post got ME on some silly tangent, but I know everyone knows where I'm coming from.

Mar 29, 2016 8:49 AM

Awww, 7autoimmunes, I'm so sorry! But don't give up. I do the exact same thing. We were playing Chinese Checkers and I couldn't keep up with the direction we were playing. My hubby kept getting angry when I'd go to move out of turn. My granddaughter write out names on a piece of paper, for the order we were to move in and laid it beside me! Weeks ago playing Scrabble I had to keep asking how to spell 3-5 letter, basic everyday, words! Like you, I tried later but myself. Then I downloaded a Scrabble app and I play it every day, along with Sudoku. My docs have diagnosed memory loss due to some changes in my brain & actual loss of memories. But my granddaughter is so sweet and supportive when I say I can't help it and don't mean to. She is amazing at her ideas to help me!

Mar 29, 2016 4:36 PM

Having a particularly difficult fibro flare today. Pain is off the chart and nausea is overwhelming. I get the fog...lose the remote every five minutes. Hope u all have good pain days.

Mar 29, 2016 7:01 PM

Do you have pain, like a headache that comes along with fog and vision?

Maybe our pain is so hard for others to understand & accept, that our Loved ones get particularly frustrated and angry.

Would you agree that we all have anger at the illness that can't be directed at IT, so it's directed toward others, including ourselves?

I think that's part of my feeling guilty. I'm supposed to be able to control myself and take care of my obligations. But I can't. Plus, there is no cure Yet and that can bring a feeling of hopelessness. --That and the sight of cellulite beginning to form on my Arms, yiicckk, barf and grrr.

I'm feeling somewhat better right now so I have an improved outlook but last week I was ready, scary close, to cashing in my chips. I know that this forum helped me Not to do that.

Mar 30, 2016 12:05 PM

You are absolutely right!!! It is well known that prolonged pain does cause the brain to change in tangible, measurable ways. And having chronic pain does give us that extra empathy, because we ALWAYS feel pain, and can always want to help others in pain.
We are special whackadoodles!!

Mar 30, 2016 5:25 PM

Terri, you kill me? I am just wondering if you still have this clarity at this time of the day? Good words though. I agree with them. I knew I was unstable and crazy a long time ago. Lol. Thanks for your post.

Apr 02, 2016 2:47 PM

LMB, you want a seat on the bus come to the fire circle!! But you'll have to watch out for Newfibrogirl because she wants all the cherries from the bar!!! 😂😂😂

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