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Whoever sent me their flare up(Lol)

Jul 03, 2015 11:08 AM

To whoever sent me their flare up of pain, PLEASE take it back. I'm really beginning to question whether it's the pelvic pain making the back pain or vice versa. Have already taken ES Tylenol this morning. Not due another dose until 2, but I am going to pull out my big gun pain relief in a couple of hours and see if that helps and that would be the 800 mg ibuprofen. If that doesn't work, I will go to the ER tonight. It's not tolerable any more.

Jul 03, 2015 11:18 AM

Amanda I am so sorry that you are hurting like that this morning. Have you tried using some hot packs made with rice, sometimes they help. Will keep you in my prayers sending you gentle hugs. Hope you get to feeling better.

Jul 03, 2015 12:33 PM

Thanks Weezie. No I haven't cause we are not even sure what it is yet. Whether it be bowel, pelvis, bladder, etc. I hesitate to do heat if that's the case. They did an ultrasound yesterday and I'm hoping to have some kind of answer by then.

Jul 03, 2015 12:45 PM

Amanda, I'm sorry you're having a flare.. Im in the middle of one myself... Im praying like crazy that it lets up because I never go to the ER because they think that you're drug seeking especially when they see the amount of medication I'm already on. I went ONCE and they told me there wasn't anything stronger they could give me than all the crap I'm already on. If I could take that pain from you and give you a break, Amanda, I would gladly do it. I would do it for any one of you wonderful folks that I have formed bonds with. Hang in there, my prayers and thoughts are with you.💕

Jul 03, 2015 12:54 PM

Alwayz, I'm already scheduled to see my PCP on Monday morning. So unless unusual circumstances happen, I will be waiting until then. Looks like another weekend in the bed, by myself, but that's okay. I need peace and quiet to rest.

Jul 03, 2015 1:07 PM

Well, if it makes you feel any better, I'll probably be doing the same thing. (Although I may go outside for a cold beer!!) my family is going to my Brother's house so I will be home alone (With 2 dogs and a ferret) and I'll just chill out. Hope you feel better hon.. Sending you gentle hugs {{{{Amanda}}}}} 💕😊❤️

Jul 03, 2015 4:14 PM

Can I be with you guys? I'm in bed alone with my sea of meds that don't help!

Jul 03, 2015 5:45 PM

Yes marse, Feel free to join us. I'm not going anywhere. Even thinking about getting up tonight is not happening.

Jul 03, 2015 7:00 PM

I wish I could say it was mine (would not wish it on anyone) but with all the crazy Texas weather I am having my own flare. Wishing you a speedy recovery.

Jul 03, 2015 8:04 PM

Me neither Amanda. I'm using clothes strewn on my bed to prop my neck and on and too tired to get a shower!

Jul 03, 2015 8:56 PM

Amanda, when my pelvic floor muscles tighten up it's bad enough. But when my IBS is on the constipated side, it increases the pelvic pain, and the back pain. I'm not sure if it's the same for you. But with me the only relief comes with a strong laxative. Fun huh? Not! Lol. I hope you get to feeling better soon.

And I am praying all this rainy hot weather changes soon, for all of us. My neck shoulders and upper back hurt from the ride to my dad's today... 90 minutes one way. And Mayo is how far? Can someone loan me a van filled with a water bed or marshmallows or something really soft? Lol 🙏🌼

Jul 04, 2015 8:57 AM

FlappysLady, at this point, I am beginning to feel a tiny bit better then I have been. Still in the bed because movement still hurts. Really ready for these shots to happen. It's been too long without relief(7 months already).

Jul 04, 2015 9:11 AM

Ummm, it very well could be the IBS as well, but no idea.

Jul 04, 2015 10:16 AM

Apparently I over did it and feel like I was hit by a train. Feel free to send me your pain, no reason for all of us to have a crappy day. I have to say the juicing has increased my energy level to a level that I apparently need to learn how to rein in a bit. It has also helped my overall pain but apparently my brain has not remembered that I am still broken and just because I 'think' I feel great I need to NOT go full speed. Hope you are continuing to feel better.

Jul 04, 2015 12:27 PM

I understand the over doing part completely. My biggest problem is learning how to pace myself and not worry if everything gets done or not.

Jul 04, 2015 1:15 PM

I am so sorry all of y'all are having soo much pain. My pain is still there but it's not so bad that I need to stay in bed.I wish there was something that I could do to help all of y'all. I hope y'all will start feeling better soon. Love and hugs.

Jul 04, 2015 1:17 PM

LMB what part of Houston do you live in ? Maybe we could get to get her sometimes. I'm in Lufkin. We have to be in League City on the 29th.

Jul 04, 2015 3:30 PM

When am I not having a flare?!
Please keep the animals safe and protected tonight!

Jul 04, 2015 8:04 PM

(((Hugs))) to all of you bedridden! I'm at least mobile today and yesterday. Praying for relief for everyone soon! 🙏🌼

Jul 05, 2015 8:10 AM

Well I've ask to take on all of your pains today so bring it on But only if you can take on mine if needed Have a pain free day today so do all your running around today.

Jul 05, 2015 10:12 AM

FlappysLady I'm a little bit more mobile today but not much. Up long enough to get sheets changed and floor vacuumed but that's it. This is no way to physically live.

Jul 05, 2015 10:34 AM

Amanda, I'm glad you're a tiny bit improved. I understand what you're saying. It's definitely not the ideal life I had planned in my mind for this age in my lifetime, or even close to where I was 6-10 years ago. But it is what it is, and I'm thankful to be alive. I've thought about if I died, where would various family members be, how would they function without me here? It would devastate my hubby and granddaughter for sure, and my daughter's too. They call me daily just to chat, out ask my advice, or to vent frustration. Even with my declining health, my family would rather me be here than gone. And as bad as I feel when my flared hit, I'm not ready to leave them. I hope and pray I live to at least see my granddaughter get married, at least 15 more years hopefully. I don't know how much my health will decline by then. But I can't change it so by accepting it and doing the best I can when I feel good, it keeps my severe depression at bay. I refuse to let all my crappy health issues defeat me mentally. I take one day at a time. Just this morning while trying to play ball with the dog, I became short of breath, which tells me I need to take it easy today.

I hope and pray you will continue to improve every day. Getting over a flare isn't as easy to all of us as getting over the flu is to a healthy person. Take it easy and don't overdo it even if you feel the flare is over. You know, it just dawned on me that my flares are similar to when I had mononucleosis at 18, and relapsed because I did too much too soon. (((Hugs))) & prayers for you & everyone! 🙏🌼

Jul 05, 2015 10:40 AM

For me, I wish I could be with my family this afternoon, but I don't want my nephews to see how bad I'm hurting. I don't need for them to be exposed to that, mainly because they are too young still and wouldn't understand. I'm so frustrated that I can't even pick up my niece to hold her. I just can't do it, and I don't want to loose that bond either. I'm just angry with my body right now.

Jul 05, 2015 10:49 AM

A few years ago my husband's neice had a baby. I sat down in a chair that supported my arm and she placed the baby in my lap against my arm. I could only hold her ten minutes but it gave me warm feelings to know I at least got a few minutes. My youngest daughter hasn't had a baby yet. If she ever does, you can be sure I will hold that baby if it's only 5 minutes and I have to surround myself with pillows.

I think someone needs to create a bumpee pillow that goes around the adults waist and holds the baby without causing pulling, pain or pressure to the adult. Just imagine how many gramps & grannies could feel joy! 🙏🌼

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