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Why can't doctors help me?

Oct 13, 2016 1:28 PM

Im really disappointed with my appointment yesterday. I wasnt expecting some magical cure, but apparently I had some hope that I would get some help.
The specialist said to avoid triggers as much as possible, complete avoidance is impossible because most people use products I react to and I can't avoid society completely. He also gave me a note saying I need a scent free workplace, that won't happen but at least now they have a doctor saying it's real instead of hedging. I officially have a diagnosis on my chart, I don't remember what he called it after he listed off probably 6 or 7 names for chemical sensitivities.
He is putting in a referral to a neurologist since the headache is the first symptom and never truly goes away so he thinks there might be migraines too and the sensitivities are making it worse. And im supposed to do cognitive behavioral therapy to manage my reactions. I really don't know how that'll help the actual reaction but I guess worrying less about reacting will probably be helpful. So I'm waiting on a referral for that. But none of it helps me now and no answers on why I have rage attacks followed by suicidal thoughts with certain triggers.
Can i just give up now? Or is that the diesel fumes from the drive to work combined with peoples laundry products talking? I don't know how much longer I can do this, I feel like I'm going to break at any second.

Oct 13, 2016 2:01 PM

You know - I have a friend who lives with severe chemical sensitivities. (I should say I did have a friend, our paths kind of drifted apart). If I can find her I think she might have some helpful suggestions for you. Let me know if you would like to message with her and I will look her up.

Oct 13, 2016 2:14 PM

If you could that would be wonderful. I am in a facebook group on chemical sensitivities but they are very good at fear mongering and not so helpful.
The most common thing said on there is that you have to completely cut from society or you'll get so bad you'll have seizures and possibly die. Such a happy group. It's not like we all breathe the same air across the globe. Sure some pollution is concentrated in some areas but a lot makes it world wide, at least in the upper atmosphere, I'm guessing what goes up comes down at some point.

Oct 13, 2016 3:14 PM

I'm sorry you are experiencing such symptoms. I have sensitivities to certain chemicals & smells too which trigger extremely horrible headaches with nausea. Funny thing is I've never mentioned it to doctors due to other symptoms that hurt far more and affect strength, walking and such. The mixture of chemicals certainly are taking a toll on you. Migraines are awful to deal with, I've lived with severe headaches since early childhood with symptoms of migraines but never diagnosed. Has anyone done an allergy test on you? I do hope things get better for you!

Oct 13, 2016 4:55 PM

QuietLight I had some sensitivities for years but could ignore it and could for the most part avoid the problem items, until I was exposed to something from the airport for a week straight. Now I react to almost everything, including clothing that was washed in tide original 2+ years ago and has been sitting in storage.
I finally saw an allergist earlier this month and all that came up on the basic skin prick test was mould and dust mites. The allergist felt no need for further testing, I want absolutely everything tested but I'm not winning that one. And for some reason he gave me asthma meds and diagnosed me with some breathing problem even though i only get stuffed up sometimes and it's usually when laying down which could be because of my severely deviated septum.
It would probably do good to mention it to the doctor so it's in your record but no doctor will help with chemical sensitivity.

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